Top Tweets for #SystemicScleroderma
Overview of Autoimmune-ILD
#SclerodermaIndia #Scleroderma #SystemicSclerosis #AutoimmuneILD #ChronicIllness #SystemicScleroderma
Scleroderma, a chronic autoimmune disease that affects the connective tissue, can significantly impact a person's mental health due to its physical symptoms, uncertain prognosis, and effects on daily life.
#SclerodermaIndia #SystemicScleroderma #MentalWellness #MentalHealth
“Evaluations of heart involvement in #SystemicScleroderma should happen annually.” - Francesco Boin, MD.
Are SS patients getting this thorough of an #evaluation every year? #ACR23
June is Scleroderma Awareness Month. Scleroderma is a progressive, debilitating autoimmune disease for which there is no cure. I was diagnosed in 2021. I’m still hoping for better treatments or a cure. #SystemicScleroderma #SystemicSclerosis
It’s a mournful thing for disabled people that even with diagnoses and lab work that you share with them, they still question your illness
#disabilities #chronicillness #ChronicPain #systemicscleroderma
#sle #lupus #Fibromialgia #Migraine
The five symptoms most commonly reported by systemic scleroderma patients are fatigue, Raynaud’s phenomenon, hand stiffness, joint pain and difficulty sleeping #Scleroderma #SystemicScleroderma #healthing #ICYMI https://t.co/ccLDnq7MVe
Study of the Week: Topical CBD May Have Benefits for People Living with Scleroderma https://t.co/MO4ccAam7S #Scleroderma #SystemicSclerosis #SystemicScleroderma #StudyOfTheWeek
Mental health and rare diseases go hand in hand. #mentalhealth #MentalHealthAwareness #lupus #systemicscleroderma
https://t.co/4y2rImBwOs
June is Scleroderma Awareness Month: Spreading Rare Disease Awareness https://t.co/1Ts8eQsbhC #scleroderma #awareness #systemicscleroderma #rarediseaseawareness #news @scleroderma
I got my second #CovidVaccine yesterday, and while I am feeling pretty terrible, it doesn't feel like a #LupusFlare. That's a big victory for me.
#VaccinesSaveLives #Lupus #LupusAwarenessMonth #autoimmunedisease #SystemicScleroderma #HashimotoThyroiditis
This week in honor of #RareDiseaseDay, we share Amy’s story, a #systemicscleroderma patient. She shares her story because she wants others to know that she believes in being proud to #ShowYourStripes. Read more: https://t.co/fpbXC4qkit
Have a Copy our Newsletter : https://t.co/H2zDQvvhwS
#raredisease #rare #disease #medicalsciences #newsletter #promotion #covid19 #healthcare #business #systemicscleroderma #readerscommunity #readinglist #newsletterdesign
A huge thank you to a long time #scleroderma supporter who sent this for us to share. “Hi all! Just thought I would share the song I wrote in 1995, Country Waltz. It was about my partner, who later passed from #systemicscleroderma on Dec. 25, 2002.”
Feeling so much love and support tonight! Thank you guys for ALWAYS having my back and a kind word for me. This type of life is one I wouldn't pick by choice but I'm so thankful for. I've met some amazing people and felt so much love! Thank you for that! #systemicscleroderma
Phase 1 Study of Experimental Systemic Sclerosis Treatment Bermekimab Begins https://t.co/c4UvzOk28p #raredisease #SystemicSclerosis #SystemicScleroderma #SSc #Scleroderma @scleroderma
Well said @LEAD_Coalition! It can't be understated the importance of #selfcare for #caregivers of individuals with #Alzheimers -- and so many other diseases! As the pre-flight saying goes, one must put on the oxygen mask first so they can best help others. #SystemicScleroderma
Please re-Tweet if you agree: It is so hard to find time for your own #health when caring for someone who has #Alzheimers disease or another form of #dementia. But it is essential for quality #caregiving.
(image via @BupaHealth) #diet #exercise #sleep #mentalhealth
@UprightSiddy I miss being active but mostly i miss working. I worked til they said it could kill me. I was working in hospitals while on chemo. Now I miss it so much! I desperately want to be healthy again so I can go back to work. #systemicscleroderma #invisibleillness #autoimmunedisease
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