Top Tweets for #TerminalToTreatable
'I choose to live my life with hope', says dad living with brain cancer https://t.co/oRHNzPnK1W
Mamma Bears ๐ป are not going away. We will fight for our cubs to not die from ALS. #terminaltotreatable Approve NurOwn NOW ๐๐๐๐๐
2. Why does a SOD1 therapy matter for those who don't carry the gene?
ALS is a heterogenous disease, so changing it from #terminaltotreatable requires a therapy cocktail. Qalsody is the first treatment for a specific gene--but it won't be the last, and that's good news.
2/4
@sabrevaya 2023 priority for #ALS. 1. #NurOwn Adcom 2. Patient and physician voices sharing how #NurOwnWorks 3. The beginning of the #ENDALS as #NurOwn Approval brings this disease from #terminaltotreatable
Making things happen @POTUS for the moonshot as the #ALS community bonded to see 30k+ US signatures in just a few weeks. This adds to the 1million worldwide for #NurOwn. This treatment will transform #ALS forever. Next an Adcom from @FDACBER. Then #terminaltotreatable. Awesome!

Looking to connect with people interested in #GBM #Glioblastoma #glioblastomamultiforme, particularly in the UK. Working with @ourbrainbank to research the current picture for patients diagnosed, researchers and health care professionals. #terminaltotreatable
Love This! Awesome statement made today by @DrCaliff_FDA. Acknowledging the current priorities of the #FDA. Letโs get it done! #Terminaltotreatable #ALS #NurOwn #AMX0035 #toferson @iamalsorg #biomarkersFTW #livingproof

This just recently from @FDACBER. We all need to come together to make #ALS #terminaltotreatable now, not 10 years from now @alsassociation. Letโs get creative, certainly pathways exist. Letโs innovate. #livingproof #NurOwn @janschakowsky @bsw5020 @sabrevaya @stevens_nation

Thank you @rosadelauro for hearing and responding to the need for additional funding to help turn #ALS from #TerminalToTreatable. @TomColeOK04 @RepMikeQuigley @RepKayGranger your ongoing support and advocacy is greatly appreciated. #endALS
Incredible news!!
A big thank you to someone who has shown up for the ALS community time and time again, @rosadelauro.
And thank you to ALS champions @TomColeOK04, @RepMikeQuigley, @RepKayGranger, and all members of the appropriations committee for making this possible.

523-3 vote
This historic day brought tears to people fighting #ALS
Thx to @rosadelauro @TomColeOK04 @RepMikeQuigley for your leadership
Now House Labor HHS Committee can make hope a reality by fully funding the $75M for 2023 #ACTforALS EAP grant program!
#TerminaltoTreatable

Help my son Tyler sail past his goal. Can you help him double it? Funds raised go to MGH, UMass, TDI and CCALS. ALS has stolen my ability to run. Tyler runs for all of us in this battle #ENDALS #TerminalToTreatable
@bsw5020 .@mradamscott lost his mother to #ALS in 2020. He understands the harsh reality of the disease and hopefully would be willing to help change #ALS from #TerminalToTreatable.
@CourteneyCox lost her close friend and publicist Nanci Ryder to #ALS.

Thank you @SenDuckworth , for helping #ALS go from #TerminalToTreatable!
The remaining #Senators who haven't cosponsored yet, please do! We're #DyingWaiting for access to treatments that work & are safe but are stuck in the pipleline for no good reason.
Senate #ACTforALS Score: 49
Thank you @SenDuckworth saying YES to #S1813
And for your service!
Map https://t.co/xbdXuEmhyI
#Veterans @farmstronginfo

@DrOzdinler You are 1 of the few who โgets it.โ For those with #ALS the timeline moves fast and furious. TY for feeling a sense of urgency to get answers and treatment. If only others felt the same as you . . . #EndALS #notimetowaste #terminaltotreatable
@DrOzdinler Thank you for speaking up and being vocal about this! We need our neurologists to be just as loud as we are. Status quo is clearly not working. #ENDALS #TerminalToTreatable
The ALS community can not thank you enough .@SenWarren for cosponsoring Act for ALS (S.1813)! Thank you for hearing us and for being our champion! #ENDALS #TerminalToTreatable
Thank you @SenMarkey @EdMarkey for cosponsoring #S1813 #ACTforALS Thank you for helping to change the future of #ALS #DrugsInBodies #TerminalToTreatable #ItsTime ๐บ๐ธ๐
Massive gratitude to @SenMarkey of #Massachusetts for cosponsoring #S1813 - the #ACTforALS. Your support will help thousands get the same access to investigational drugs as people with cancer & help us change the face of #ALS.
#ExpandedAccess will change lives!
@MeritCudkowicz

A big heart felt thank you to @SenMarkey and his staff for cosponsoring Act for ALS! Together, with your support, we can change the course of this disease. #ENDALS #TerminalToTreatable
Yes! Thank you @NormaJTorres & @RepChrisPappas ! This cup is as tasty as my #PumpkinSpiceLatte !!!!
#als #DyingWaiting #TerminalToTreatable #SaveMyMapMan! #veterans
Afternoon House cup of #ACTforALS
Thank you @NormaJTorres and @RepChrisPappas for saying YES on #3537
And thank you @RepChrisPappas joining your fellow #ALS Caucus members Cosponsoring #HR3537
@iamalsorg @sandymorris333 @nicolecimbura @PaustDeb @Michell62614519 @farmstronginfo

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