Deb Paust

Blessed mom, lover of snow, old fashion enthusiast and trying to be the change I wish to see in the world. #GoodTrouble

[ALS Advocacy @alsadvocacy]

Thank you, @baseballhall !

[MLBPAA @MLBPAA]

Today, on #LouGehrigDay, we join the baseball community in raising awareness for ALS and honoring the life of the great Lou Gehrig.

[FDA Drug Information @FDA_Drug_Info]

FDA is seeking input from the rare disease drug development community on its LEADER 3D educational materials! Comments are due by April 3, 2026. https://t.co/HRJIiv9tLM

#RareDiseaseWeek

[Deb Paust @PaustDeb]

Important opportunity for people living with ALS. 👇

[ALS Advocacy @alsadvocacy]

Dear Folks in ALS Land,
Please submit your "rare" disease insights to Senate Aging Committee using this form --
https://t.co/pViBRWbl4h

Everyone can help put ALS on their radar, and this is important!

[Deb Paust @PaustDeb]

10 Best Instagram Influencers to Learn Storytelling https://t.co/R3iNnm6GtT via @I_m_Digital

[ALS Network @youralsnetwork]

The ALS Network is proud to collaborate with the @BarrowNeuro’s Summer Internship Program, led by Rita Sattler, PhD, to sponsor @ASU neurology student and intern Ria Moharil.

Read more about the next generation of ALS researchers: https://t.co/xkVFk99faO

[Rep. Brad Schneider @RepSchneider]

I'm back in DC to vote HELL NO on Trump's big bad tax bill.

[Rep. Jim McGovern @RepMcGovern]

The Senate's tax bill is the most dangerous legislation in modern history—ripping health care from the sick, food from the hungry, and hope from working families, all to shovel more tax breaks to billionaires and corporate executives.

Just despicable. My full remarks.👇

[I AM ALS @iamalsorg]

Thank you for being part of the ALS Caucus, Rep. @rosadelauro! We are so grateful for your commitment to supporting the ALS community and prioritizing the urgency of ALS, funding for research, support for people living with ALS, and more.

[New Democrat Coalition (NDC) @NewDemCoalition]

Republicans just voted to hurt our economy, endanger our communities, and threaten our national security.

Statement from New Dem chair @RepSchneider on the passage of the Continuing Resolution.

[Sen. Lisa Murkowski @lisamurkowski]

When it comes to government funding, we find ourselves at a crossroads: we can either pursue a long-term continuing resolution and abandon the work we've accomplished as Congress, or we can face a government shutdown, which is also an untenable alternative. We can do better than this.

[Mike Quigley @RepMikeQuigley]

Republicans want to brag about funding the government but what good is funding when there's no one left at these departments to provide services? Republicans won't get my vote on government funding until they take REAL steps to improve government. They can start by firing @elonmusk.

[I AM ALS @iamalsorg]

Urgent action! The House has released a continuing resolution bill to fund 2025 with dramatic cuts to the Department of Defenses’s CDMRP, which funds ALS research. We cannot allow this. Ask your legislators to continue to fund this critical program: https://t.co/DVJVYE1lKl

[ALS Advocacy @alsadvocacy]

Coming soon. More Than Our Stories - the eighth annual!
https://t.co/FXWVFWFS2R
Be there or be square.

[Motivational Quotes @motivational]

Be good to people for no reason

[ALS Advocacy @alsadvocacy]

More Than Our Stories 2025 Feb 4-5 Registration will open soon. Meeting location on Feb 4 is near Union Station, DC. Cyber-Monday might be your friend for travel bargains. This is the #kickALS advocacy conference... Nothing else like it.
https://t.co/qzBjKnRrwv

[Lisa's Legacy for ALS @LisaLegacy4ALS]

On #givingtuesday support a new nonprofit - GeoALS, using GIS (Geographic Information System) to #endALS and support researchers, connect underserved communities, improve access to clinic care and more.
https://t.co/3diJo4b11F
@Team_Thriving @farmstronginfo

[ALS TDI @ALSTDI]

You can donate to ALS research in honor of Janie and everyone living with ALS this Giving Tuesday! #EndALS #GivingTuesday https://t.co/fGYevRmEBB