Top Tweets for #TogetherMakingAdifference
The first FraXI Congress has officially begun. A splendid venue in Barcelona hosts international Fragile X experts. This is a crucial opportunity to exchange skills and common growth.
https://t.co/deXWM4ilA5
#FraXIcongress #togethermakingadifference #fragilexsyndrome
We continue the presentation of the speakers at the First Fragile X International Congress. Here we are with Dr Laia Rodríguez-Revenga, Dr Joanna Moss and Dr Alice Montanaro.
https://t.co/deXWM4ilA5.
#FraXIcongress #togethermakingadifference #research #barcelona2024
Hosted 7 Swedish youth politicians with @UNICEF_Sweden @Gavi @GlobalFund to showcase our collaborative work in #Zambia! From children’s rights to vaccine access & tackling diseases like HIV, TB & malaria, the delegation saw our joint efforts in action. #TogetherMakingAdifference
Very pleased to announce that our President, Dr Kirsten Johnson, is the newly elected Chair of RDI. Great news for our Fragile X community! Thanks to Kirsten for her commitment and hard work.
#rarediseases #togethermakingadifference #fragilexsyndrome https://t.co/deXWM4hNKx.
Thanks to all our sincere friends, who break down barriers and build a more inclusive world, those capable of embracing and encouraging, those who help us achieve our goals.
https://t.co/deXWM4ilA5
#friendshipday #togethermakingadifference #togetherwecandoit #fragilexsyndrome
It’s time to celebrate! We are together with @FragileXAus @FragileXIndia @FragileXNZ @NFXFoundation on their National Fragile X Awareness Day.
#togethermakingadifference #everydaymatters #22july2024
To help FraXI achieve its vision, go to https://t.co/deXWM4hNKx and donate!
Great News! Fragile X International is officially a full member of @eurordis. Together, stronger, with a unique voice, making a difference!
To help FraXI achieve its vision, please go to https://t.co/deXWM4hNKx and donate.
#fullmembership #togethermakingadifference #rarediseases
4 months away to our 1st Fragile X International Congress in Barcelona! If you are interested in attending, please send expressions of interest to [email protected]. More info at https://t.co/deXWM4hNKx
#togethermakingadifference #fragilexsyndrome #research #FraXIcongress
Top priorities in genetic syndrome research. The voices of people.
#ShapeResearchChangeLives #voicestolistento #rarediseases #fragilexsyndrome #fragilexinternational #fragilexawareness #togethermakingadifference
https://t.co/deXWM4hNKx
#ShapeResearchChangeLives Report launch: Shape Research, Change Lives: setting priorities in genetic syndrome research. @GaiaScerif @liz_pellicano @JoVanHerwegen @lacristescu To download our report: https://t.co/UnBTUjx6NW
What people say about FraXI is really important to us. Their opinion pushes us to work with greater commitment and desire. Thank you! To support us go to https://t.co/KWleNxv52e and donate. #togethermakingadifference #supportus #fragilexsyndrome #didyousayfraxi #wordsofsupport
Congratulations to RARE DISEASES INTERNATIONAL on this important achievement from the entire Fragile X community.
#togethermakingadifference #fragilexsyndrome #fragilexinternational #community #rights #futuregoals #rarediseases #advocacy #betterworld
Rare Diseases Side Event at the World Health Assembly will take place on May 29th.Our President Dr Kirsten Johnson will be attending the in person event in Geneva to advocate for Fragile X.More info at https://t.co/LUTTKWHWSt… #togethermakingadifference https://t.co/KWleNxv52e
In this story Pietro shows us how passions can lead to great achievements.Never give up because nothing is impossible when you are truly motivated.From the book "Stronger than Fragile X"-Italian FXS Association.Comics by designer Sara Matteucci. #togethermakingadifference #FraXI
Today, we share with you the 7th episode of "A Day with Ben", a book to tell about FXS. With the help of Fraxi, a small blue puppet, we will better understand some common behaviours that children with this condition usually have. #fragilexawareness #togethermakingadifference
Fragile X International brings together people from all over the world to make a difference for those with Fragile X. To help FraXI achieve its vision, please donate here https://t.co/Blsy7a3tQO
#givingday2024 #togethermakingadifference #april25 #distantbuttogether
Next April 25th will be FraXI Giving Day. You can help us achieve our vision. Please go to https://t.co/deXWM4hNKx and donate.
#togethermakingadifference #fraxigivingday2024 #supportus #yourdonationmatters #fragilexawareness #fragilexsyndrome
In 2022 FraXI managed to change the discriminatory terminology used for identifying the gene and protein linked to Fragile X. What does this change mean to people with Fragile X? Watch the video!
#rarediseaseday2024 #togethermakingadifference #fragilexsyndrome #wordsofrights
Today, we share with you the 5th episode of "A Day with Ben", a book to tell about FXS. With the help of Fraxi, a small blue puppet, we will better understand some common behaviours that children with this condition usually have. #fragilexawareness #togethermakingadifference
Rare Disease Day 2024 is one month away. Join the rare disease community in raising awareness and generating change for the 300 million people worldwide.
https://t.co/gM3Ht27Gxr
#rarediseaseday2024 #fragilexsyndrome #togethermakingadifference
What people say about FraXI is really important to us. Their opinion pushes us to work with greater commitment and desire. Thank you!
To support us go to https://t.co/deXWM4hNKx and donate.
#togethermakingadifference
#supportus #fragilexsyndrome #didyousayfraxi
#wordsofsupport
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