Top Tweets for #TrachLife
๐ Life with a Trach: A Journey pt. 1!
#TrachLife #Resilience #LivingWithATrach #HealthJourney #Inspiration #LifeLessons #DailyLife #Support #Gratitude #FYP #ForYouPage #ViralHealth #TrendingNow #ExplorePage #HealthReels #WellnessReels #LearnOnTikTok #HealthContent #ViralTips
I'm 3 weeks overdue for the follow-up CT scan to see if I still have the abscess in my left lung so we can treat it, either with antibiotics or by removing that part of my lung. I'm getting nervous! #ALS #LivingWithALS #ALSwarrior #trachlife #ALSsucks
I stopped the antibiotic, loaded up on Benadryl, and my rash is slowly but surely clearing up! Thanks for the #prayers and #tips! #ALS #LivingWithALS #trachlife #gratitude
I'm home! The ambulance ride triggered intense muscle spasms, but it's soooo good to be in my own bed! Thanks for all the #prayers, crossed fingers, and loving messages! #ALS #LivingWithALS #ALSwarrior #trachlife
I was just cleared of lethal structural heart damage caused by the pneumonia! And I don't have to have part of my left lung removed! Even more good news - I'm going home in the morning! #ALS #LivingWithALS #trachlife #joy #heralsstory
Pneumonia update - I almost had to get part of my left lung cut out, but I have dodged that bullet... For now. #ALS #ALSwarrior #trachlife
Evan has started doing this thing when I'm struggling through the nebulizer. When I am short of breath, he lays his hand gently on my chest and says, "Watch how it's moving up and down?" It really helps. He is the kindest man I have ever known. #ALS #trachlife #relationships
Here's something bizarre. My oxygen has stayed above 96 during nebulizer treatments. However, I'm still short of breath! Thoughts? #ALS #LivingWithALS #trachlife
I'm still waiting on my oxygen prescription to be filled, but the nebulizer went very well this morning! My O2 stayed above 97! I hope this continues! #ALS #LivingWithALS #trachlife #Optimism #Hope
Good news! My pulmonologist is giving me oxygen to support me during nebulizer treatments! I'm so relieved. The nebulizer will be bearable until the respiratory therapist comes to solve the mystery of why my oxygen drops as soon as we turn on the nebulizer. #ALS #trachlife
I think the feeling of suffocating during the nebulizer treatments is triggering my #PTSD from when a man tried to strangle me. This is also the month it happened 17 years ago. I feel weak because it still upsets me. My husband is trying to talk me out of that. #ALS #trachlife
My oxygen immediately dropped to 92, so we couldn't do the nebulizer this morning. Whenever we do the nebulizer, I #pray in every language I know - Christian prayers, Jewish prayers, Wiccan prayers hoping someone will hear me. #ALS #LivingWithALS #trachlife #prayersneeded
I'm concerned. No one is acknowledging the qualifier I added to my reply to @sunnystrongals 's question about end of life choices. I said I will end my life if, God forbid, my husband dies before me. I can't do this without him. I don't want to. #ALS #trachlife #endoflife #death
"This is Rachel Doboga's ventilator just after starting the nebulizer, and her oxygen is dropping to 95, now 93," Evan says, holding his phone up to film my ventilator readings.. #ALS #LouGehrig #LivingWithALS #trachlife #blog Every Breath You Take https://t.co/L7jVK3jw2j
I'm encouraged by the amount and efficacy of studies and trials but a bit sad too because insurance won't let me have the new drugs since I'm in the "end stages" aka on #LifeSupport. I want #Radicava and #Relyvrio! #ALS #ALSresearch #ThisIsALS #trachlife
Athira Pharma's therapy candidate ATH-1105 shows anti-inflammatory and neuroprotective effects in a mouse model of ALS and FTD. https://t.co/pa2Cyr6fqy
#ALS #ALSNewsToday #amyotrophiclateralsclerosis #livingwithALS #ALSresearch
Good news! My new #ventilator comes tomorrow AND I'm tolerating the travel vent! Last time my home vent acted up and I went on the travel vent, I had a #panicattack and felt like I was dying! Big stuff, friends! #ALS #trachlife #LifeSupport #joy
Here's some irony for you - insurance thinks I'm too sick to qualify for medicine. #ALS #LivingWithALS #trachlife #LifeSupport #ventilator #Relyvrio
Let's celebrate the 4th of July by imagining true #independence for pALS. To me, that means a #cure! #ALS #EndALS #KickALS #ALSwarrior #trachlife #Hope #love
The 4th of July - ALS Style! https://t.co/peuOR6hjMo
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