Top Tweets for #Unite4IPF
@NoelEdmonds @maggiephilbin @janicelongdj we're over the 10000 can you help us get more please? Just a retweet would be amazing #ipf #unite4ipf https://t.co/P3WaDRPdTE
“Don’t let anyone tell you .. I’m so sorry for you because of what we deal with. See us with courage and bravery, not pity. We are warriors sometimes in an invisible battle that most people have no idea.” https://t.co/9FsnI6d9ky
#IPF #MyIPFstory #pulmonaryfibrosis #Unite4IPF
@janicelongdj can't thank you enough it just keeps going up since you retweeted thank you so much for your support #unite4ipf
Do you know a healthcare professional that would benefit from our free resources? We have a range of leaflets, posters and flyers that can help healthcare professionals support people living with #pulmonaryfibrosis. All available to download - #Unite4IPF https://t.co/tZx5yt3WXx
What a week! Thank you! We are overwhelmed by the support, energy, awareness raising & fundraising that we have seen up and down the country. We feel lucky to be part of a growing number of associations around the world. Together we can build a stronger voice for IPF #Unite4IPF
"He is the foundation upon which we're all working" The Mike Bray Research Fellowship in #IPF is a £300,000 grant that will be awarded over three years to an outstanding research project, which enhances understanding of the causes of IPF or advances treatments. #Unite4IPF
We fund research projects directly. This year, APF helped Professor Gisli Jenkins of Nottingham University in planning his prestigious £1.7m National Institute for Health Research (NIHR) professorial research project on biomarkers. #Research #IPF #Unite4IPF #IPFWeek
Another great turn out at our pulmonary fibrosis support group meeting :) thank you @drschadwick from @Hospicstfrancis, Dr Erez @LNWH_NHS and Dr Roy. Great connections today! Next meeting will take place in November @ActionPFcharity #Unite4IPF #pulmonaryfibrosis #IPFWorldWeek
Do you know about our support line? Our free support line is available for patients and carers. If you need information or advice on living with pulmonary fibrosis, we are here to help #Unite4IPF #IPFWeek #MyIPFStory #PulmonaryFibrosis
"The support group was totally empowering" We know that support from people is one of the most powerful tools you have. Watch our patients journey from diagnosis to support online https://t.co/kKckXVg5op #Unite4IPF #MyIPFstory
We want everyone to be aware of the symptoms of IPF. The most common symptom is shortness of breath. Please do read full the full symptoms of IPF online #Unite4IPF https://t.co/En70HFKfsg #PulmonaryFibrosis #IPFWeek #Unite4IPF
APF have been working tirelessly over the last five years to provide better care and treatment to patients living with IPF. Everything we do is guided by what patients and families need https://t.co/LORmEbwwM4 #Unite4IPF #5years #MyIPFstory #PulmonaryFibrosis
"Every year, every month, every day is precious but I’m using my time the best way I can. I get a little more breathless now but I adapt. I know my limitations.” Read Janet's story - https://t.co/MAwT1awCqO #Unite4IPF #MyIPFStory #PulmonaryFibrosis
"My advice is talk to people; friends professionals or anyone whose been through something similar. Always keep in the back of your mind the five P’s: Prioritise, Plan, Pace, Positioning, Purse - lip breathing." Read Steve's story - https://t.co/Nt5t2SpkcM #MyIPFStory #Unite4IPF
What are you doing for IPF Week? Whether it's having a conversation with your neighbour about the cause, taking some time out to self care, fundraising, calling someone you know that needs support- we're all doing our bit this week to raise awareness. #Unite4IPF #IPFWeek
"At 8.30am I go to the clinic to get set up, sometimes with a nursing or medical student in tow. I catch up with Dr Simon Hart, our respiratory consultant, just before 9 am prior to the clinic." #ILDSpecialist #8.30 #Unite4IPF #MyIPFStory https://t.co/cNyLar99Dc
A day of perspective & positives at the @ActionPFcharity Patient Council meeting with so many inspirational people discussing #IPF #PF #PulmonaryFibrosis in their lives Appropriate way to start #IPFWorldWeek; together as an IPF community #Unite4IPF Text IPFW44 £5 to donate #proud
Interesting and informative day at The Belfry for APF voice of the patient meeting @ActionPFcharity @JaneScullion @EmmaVincent_UHL @murph_ac. Thanks for all the hard work #Unite4IPF
So great to see so many pulmonary fibrosis awareness initiatives happenning at the same time! #Unite4IPF is a great hashtag & #IPFWeek is a fantastic idea as are the more established #PFMonth & #BlueUp4PF & #CureIPF & #GPFAM18 BUT #Closest2MyHeart is #PFWarriors
It's here, it's #IPFWeek! This week we'll be working together, with Idiopathic Pulmonary Fibrosis patient associations across the world to drive action for greater awareness of IPF, call for better access to care and bring hope to those living with the condition. #Unite4IPF
Amazing! So many Pulmonary Fibrosis Awareness activities in New Haven! The Union Building goes #BlueUp4PF for #PFAwareness & @GovMalloyOffice issues #PFMonth proclamation - Kudos to @jmorthanos & @YalePCCSM team & @PFFORG & #PFWarriors for campaigning for #CureIPF #Unite4IPF
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