Top Tweets for #WSSwarrior
Rare is Strong 𧑠The WSS Foundation provides education, fosters community, & stimulates research to improve the lives of everyone impacted by #WSS, like the Cripps in Australia.
Read Kohen's story: https://t.co/XNKBO3rePZ
#wiedemannsteinersyndrome #WSSwarrior #RareDiseaseDay
Rare is Many π§‘π #WiedemannSteinerSyndrome is among 6,000 rare diseases & discovered in 2012 due to mutations on KMT2A gene. Before, many searched for answers, like 40-yr-old Sarah in UK. On #RareDiseaseDay, read her #WSS story: https://t.co/hVUAs56I07
#WSSwarrior #WSSawareness
What does "Rare" mean to you?
Susan Thompson, a mom of a WSS warrior, provided a very insightful & emotional response to the question. Read her story as we celebrate Rare Disease Day on Feb 28: https://t.co/P2vqja7naf
#wiedemannsteinersyndrome #WSSwarrior #WSS #RareDiseaseDay
In this video, Amanda and #WSSwarrior Finn chat with Annabel, #WSS Foundation board member, about their #WSS diagnosis, researching WSS information, and finding community in Australia and abroad. https://t.co/jdjCYG5pVY
Happy #WSSAwareness Day! We continue to share videos of our #WSSwarriors and their parents. In this video, Annabel, one of our #WSS Foundation board members, speaks with Steven, a.k.a. Bink, and his mom. The video guest stars Alex, another #WSSwarrior. https://t.co/rUxAKxRTp7
In this video, hear from Abbi, mom to #WSSWarrior Jenni-Anne, as she talks about their journey with #WSS. Be sure to subscribe to the WSS Foundation's YouTube channel for updates. Like and share this post and help spread #WSSAwareness!
https://t.co/xZjjkVRpMd
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