Top Tweets for #WorldPIweek
We’re so thankful for our incredible #WorldPIWeek sponsors whose ongoing support helps drive our mission forward - creating healthier, more hopeful futures for those living with Primary Immunodeficiency. Because of their partnership, the Jeffrey Modell Foundation is able to expand global awareness and grow impactful programs for the PI community. A sincere thank you for making this work possible. ✨
This #WorldPIWeek, stories like AJ and Maverick’s remind us that no one faces PI alone - and that awareness, connection, and early diagnosis can change lives. AJ and Maverick are two incredible kids living with X-Linked Agammaglobulinemia (#XLA). Through advocacy, community, and even bringing Rare Disease Day into their school, this family is helping others feel seen, supported, and empowered. 💙 Read their full story here: https://t.co/GHiRdZyPcE
This #WorldPIWeek, we call for earlier diagnosis and equitable access to care for primary immunodeficiencies.
Through #Plasma4Life, we support access to essential plasma-derived therapies and stronger health systems.
#HealthForAll #UNITAR
Happy #InternationalChildrensDay! 🖍️🌍Today, we’re celebrating the creativity, courage, and joy of children around the world—especially those living with PI.
These colorful masterpieces were created by some of our amazing JMF kids using pages from our #WorldPIWeek coloring book! 🎨💛
Because of the Roots & Wings program, one little boy received a lifesaving bone marrow transplant — and today, he’s thriving at 6 years old. 💙
This #WorldPIWeek, help us give more families the hope and support they deserve. ✈️💛 Donate today: https://t.co/pJIY4ySCRp
#JeffreyModellFoundation #RootsAndWings #WorldPIWeek #PrimaryImmunodeficiency #INFO4WPIW
🎉 Happy #WorldPIWeek from all of us at the Jeffrey Modell Foundation! We’re here for you, we believe in you, and we’re working harder than ever to advance research, awareness, and support for the PI community. Together, we’re making a difference — today and every day. 💙 #INFO4WPIW
On the last day of #WorldPIWeek, please help us raise awareness about the importance of plasma donation for people diagnosed with primary immunodeficiency! https://t.co/6Yyfk9kzNn
Meet Elena, a SCID and bone marrow transplant survivor! This #WorldPIWeek, let's amplify the voices of folks like Elena and demand improved access to diagnosis and treatment for primary immunodeficiencies. #WorldPIWeek #SCID #BoneMarrowTransplant #AccessToCare
This World Primary Immunodeficiency Week, X4 remains committed to raising awareness of WHIM syndrome, a diagnosable and treatable combined PI. Learn about its distinct underlying cause, CXCR4 pathway dysregulation. Connect with us @ClinImmSoc on May 1–4. #WorldPIWeek #CIS
It’s #WorldPIWeek! We asked you—our amazing PI community—why plasma is so important and what your treatment journey looks like. 💛 Swipe through to see your voices brought to life through data, quotes, and firsthand stories. #INFO4WPIW
Thank you Pokhara, (and organizers) for this immense respect and adoration!)
यो हार्दिक सम्मान र मायाप्रति आभारी छु - सम्पूर्ण पोखराबासी एवं आयोजकप्रति! @ipopi_info
#worldPIweek #Primaryimmunodeficiency
🌍 Happy #WorldPIWeek! We’re incredibly grateful to our generous sponsors for their continued partnership in our shared mission to help create healthier, more hopeful futures for people living with Primary Immunodeficiency. 💙Thanks to their support, the Jeffrey Modell Foundation can grow our awareness campaigns and expand meaningful programs for the global PI community. ❤️ #INFO4WPIW
During #WorldPIWeek we're focused on advocating for access to treatment for every person diagnosed with primary immunodeficiency (PI). Here are the treatment options available for someone with PI. 👇
Advocacy is a powerful tool—and when it comes to Primary Immunodeficiency (PI), your voice truly matters. 💬✨
This #WorldPIWeek, we’re highlighting the importance of speaking up—for yourself, your loved ones, and the global PI community. Advocacy leads to awareness, earlier diagnoses, better access to treatment, and policies that save lives.
One of the most impactful ways to advocate? Pushing for newborn screening for SCID—a simple test that can catch Severe Combined Immunodeficiency early, before symptoms even begin.
We’ve created a template letter you can send to your country’s health representatives to encourage the implementation of newborn screening. It’s easy to use and can make a real difference. 💌
Together, we can raise our voices, shift policies, and save lives. Let’s keep advocating for change. 🌍💙
#WPIW #AdvocateForPI #NewbornScreening #PrimaryImmunodeficiency #INFO4WPIW
Estamos en la #SemanaMundialIDP
El objetivo de esta #WorldPIWeek es informar y educar a los responsables de las políticas sanitarias, educativas y al público en general sobre las #IDPs.
13 Signos de Alerta de #InmunodeficienciasPrimarias
Gr. @aapidp
During #worldpiweek, let’s highlight the importance of registering our patients. We are proud to share the LASID registry! This not only helps us understand our patients better, but also helps us to fight for their access to treatment. In other words, see the unseen!
Meet Jodi Taub — a Primary Immunodeficiency (PI) patient and licensed psychotherapist who specializes in chronic illness and rare disease. 💬 In honor of #WorldPIWeek, Jodi wrote a powerful blog for us—answering the most common (and often misunderstood) questions she gets about PI. 📖 Read the full blog at https://t.co/d0I5WP0gvN
From all over Latin America, we are starting this #worldpiweek to raise awareness! Patients with immunodeficiency are there. To find them, you need to know about them! See the unseen #wearepi @Info4PI
From all over Latin America, we are starting this #worldpiweek to raise awareness! Patients with immunodeficiency are there. To find them, you need to know about them! See the unseen #wearepi @Info4PI
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