Top Tweets for #addisonsqa
@uhbtrust Our Birmingham Member Get Together will also include breakout sessions discussing the topics affecting you #AddisonsQA, emergency injection training & plenty of opportunity for you to meet & connect with others.
📆 Saturday 26 April. 1-6pm
➡️ RSVP 🔗 https://t.co/FvIb2TRnff
We're delighted to welcome Dr Agata Juszczak @uhbtrust, as our main speaker at our Birmingham Member Get Together.
🎤 "When to consider an alternative steroid replacement to hydrocortisone"
📆 Saturday 26 April. 1-6pm
📍 Birmingham
➡️ RSVP 🔗 https://t.co/FvIb2TRnff #AddisonsQA
Treat the diagnosis as a positive allow your brain to process it can be tricky
Educate .. read & read
Include your loved ones they are on this journey too
Listen to your body!
Join the ADSHG forum!
You are not alone ..we might be rare but we are strong together #AddisonsQA 🩵
Today we're asking you to share the advice you would offer to someone who has been recently diagnosed with Addison's or adrenal insufficiency.
We recognise this is best understood by those who've gone through it themselves. Share the things that have helped you 💜 #AddisonsQA
In the early days of a diagnosis & learning the management of this rare condition, there is a lot to take on board & this can feel overwhelming, especially if feeling unwell.
We're here for you. For more support, please visit Newly Diagnosed⤵️
https://t.co/5fWlKOAwxB #AddisonsQA
Today we're asking you to share the advice you would offer to someone who has been recently diagnosed with Addison's or adrenal insufficiency.
We recognise this is best understood by those who've gone through it themselves. Share the things that have helped you 💜 #AddisonsQA
It’s not just expert talks & emergency hydrocortisone injection practise at our events! There’s plently of opportunity to meet & chat with others. People who understand daily living with Addison’s & adrenal insufficiency.
Join our community 👉 https://t.co/XPVeLDHCpD #AddisonsQA
Julia from @SOLUtionmedco dials in from America to update us on the development of the EpiPen style injection for our hydrocortisone emergency injection.
Described as “adrenal crisis medication to fit your lifestyle”, read the latest update👉 https://t.co/Rg3xa1dpjr #AddisonsQA
Our 40th anniversary cake, kindly made by amazing volunteer Anna, is cut by Prof John Wass & Noel 🎂
40 years ago our charity didn’t exist - now we support & educate people all over the 🌍! Together we work to improve the future of those with adrenal insufficiency. #AddisonsQA
Grab an orange, it’s injection practice time! Expertly led by @lisashepherdcl1 & @AldonsChua in 4 sessions across the day, answering your questions about emergency hydrocortisone injection kits & adrenal crisis. #AddisonsQA
💉 Practise at home 👉https://t.co/CqNxbiyp22
At our AGM #AddisonsQA @AlePreteUoB presents on Looking to the Future - exploring new formulations, therapies, tools to diagnose, round the clock & real time monitoring plus adrenal regenerative therapies.
Great hope for improving the future of those with adrenal insufficiency!
We welcome Professor John Wass to our AGM #AddisonsQA stage - the Chair of our Addison's Clinical Advisory Panel, @OCDEM & Endocrine Lead @NHSGIRFT.
Prof Wass speaks on: "Adrenal Insufficiency: Past & Present”, looking at causes of AD & AI, symptoms, treatment & more.
Lunch break time at our 2024 AGM #AddisonsQA!
See you back at 1pm for a special (secret) presentation 👀🏆
Then for the second half of our day, where we hear from our expert speakers: Prof John Wass, @AlePreteUoB, Julia @SOLUtionmedco & injection practise with @lisashepherdcl1.
Robert our Trustee, shares his cycling fundraising challenge, inspired by his daughter, who has Addison's.
Robert & Mark will be cycling 450km from Verona, Italy, to the shores of Lake Garda.
🚴Watch their video & support their fundraising➡️https://t.co/Ygr7Ac6HTY #AddisonsQA
Next up at our 2024 AGM #AddisonsQA @PhilippaSh_ gives us a round up of the last 12 months at the ADSHG!
From research, GP awareness and education, paramedic CPD for adrenal crisis, just to name a few. Thank you to all our members for making this vital work possible.
We start our 2024 AGM #AddisonsQA with an introduction from our Chair of Trustees @HargreavesDom.
Thank you to everyone who is with us in London & online, including our medical Trustees @AlePreteUoB & @lisashepherdcl1. We have lots to share with our fantastic community!
In London to celebrate the 40th year anniversary of @AddisonsUK, a wonderful charity that helps thousands of patients with adrenal insufficiency across the world every day. Proud to be part of it! #addisondisease, #hormonesmatter
Our AGM is today 🎉
If you're joining us in person in London, our team are ready to welcome you! If you're joining us online, our meeting will start at 10.25am. Please introduce yourself in the chat so you can connect with others at our meeting!
📲Use our hashtag #AddisonsQA
Our Addison’s Roadshow begins🎉
Thank you to our amazing Trustees & volunteers for welcoming our amazing Addison’s & adrenal insufficiency community to Glasgow🏴
If you’re joining us today use #AddisonsQA to follow the conversation. Talks inc @drjarodwong & @lisashepherdcl1 🩺
Tristan planned and organised a bake sale, raising an impressive £97.10 for @AddisonsUK. Your contribution brings a meaningful addition to their upcoming 40th anniversary celebration.
Your dedication and generosity are an inspiration to us all! 👏
#AddisonsQA #AddisonsDisease
Starting in 20 mins, our Paramedic CPD session 🚑 If you're joining us please use #AddisonsQA for any extra q's you may have.
For follow up information on our #ParaCPD sessions, or if you could donate to fund futures session, please visit our website ⤵️
https://t.co/KEavdU0UrW
Starting in 10 mins, our #ParaCPD session on adrenal crisis🚑 If you're joining us please use #AddisonsQA for any extra q's you may have.
Our next session is Tuesday 14 May, 1pm. To attend please RSVP now to avoid disappointment ⤵️
https://t.co/KEavdU0UrW @ParamedicsUK @AACE_org
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