#bosaware - Twitter Hashtag

USA Boccia @usaboccia

over 4 years ago

Today is Bohring-Opitz Awareness Day! I am. We are. 💙💛 #BosAware https://t.co/WRaTukPaU0

0

2

0

ARRE Foundation @arrefoundation

over 4 years ago

It's #BohringOpitz Awareness Day! Learn more about this ultra-rare neurodevelopmental disorder that is caused by a change in the #ASXL1 gene. #BOSAwarenessDay #BOSAware

arrefoundation's tweet photo. It's #BohringOpitz Awareness Day! Learn more about this ultra-rare neurodevelopmental disorder that is caused by a change in the #ASXL1 gene. #BOSAwarenessDay #BOSAware https://t.co/j9Xk5bSQfm

0

3

2

0

Pulse Infoframe @pulseinfoframe

over 4 years ago

Today is worldwide Bohring-Opitz Awareness Day. Bohring-Opitz syndrome (BOS) is a rare, multiple anomaly syndrome that most often is evident at birth (congenital) and affects an individual’s growth, development, and variable organ systems. #BOSAware #BOS

pulseinfoframe's tweet photo. Today is worldwide Bohring-Opitz Awareness Day. Bohring-Opitz syndrome (BOS) is a rare, multiple anomaly syndrome that most often is evident at birth (congenital) and affects an individual’s growth, development, and variable organ systems. #BOSAware #BOS https://t.co/qPljzCm74u

0

2

0

RARE Revolution Magazine®

@RareRevolutionM

over 4 years ago

Today is worldwide Bohring-Opitz Awareness Day. Bohring-Opitz syndrome (BOS) is a rare, multiple anomaly syndrome that most often is evident at birth (congenital) and affects an individual’s growth, development, and variable organ systems. #BOSAware #BOS

RareRevolutionM's tweet photo. Today is worldwide Bohring-Opitz Awareness Day. Bohring-Opitz syndrome (BOS) is a rare, multiple anomaly syndrome that most often is evident at birth (congenital) and affects an individual’s growth, development, and variable organ systems. #BOSAware #BOS https://t.co/lVOk1EPmMe

0

4

2

0

Fetalist @fetalist

over 4 years ago · Istanbul

#BOSAwarenessDay2022 #BohringOpitz #BOSAware #medicalai

0

2

1

0

BohringOpitzSyndrome @childrenwithbos

almost 7 years ago

So happy that the documentary KULUUT is part of #Disorder . #BOSAWARE #ASpire2XL #ASXL #BohringOpitz

Bo Bigelow @bobigelow

almost 7 years ago

More press for the fest! #DISORDER @SMANewsToday @bohring_opitz @BlythCPN @Pacs1families #NR2F1 https://t.co/1J1AEh49b8

1

3

0

1

2

0

Amy Havaich @amyhavaich

over 7 years ago

We Are Stronger and BOS Aware! Love you Vaughan! #BOSAware #BOSStrongerTogether

0

4

0

jessica drake

@thejessicadrake

over 7 years ago

today is #BOS awareness day- how can you help? visit https://t.co/VHe5MP6JiG & make a donation- any donation over $100 gets a very special gift pack from me! DM me a pic of your receipt, i ship boxes next week. 💛💙💛 #BOSAWARE #BOSstrongertogether

thejessicadrake's tweet photo. today is #BOS awareness day-
how can you help?

visit https://t.co/VHe5MP6JiG & make a donation- any donation over $100 gets a very special gift pack from me! DM me a pic of your receipt, i ship boxes next week.
💛💙💛
#BOSAWARE #BOSstrongertogether https://t.co/FtjqKk8DmE

1

9

0

Bohring-Opitz @bohring_opitz

over 7 years ago

Today is #BOSAwarenessDay! Show your support, share your photos, and raise awareness! #BOSAware #BOSStrongerTogether #FewerThan200Worldwide #CareAboutRare #SpecialNeeds #BohringOpitz

bohring_opitz's tweet photo. Today is #BOSAwarenessDay! Show your support, share your photos, and raise awareness! #BOSAware #BOSStrongerTogether #FewerThan200Worldwide #CareAboutRare #SpecialNeeds #BohringOpitz https://t.co/uiIRZRMHkd

0

8

5

0

Taylor Gurganus @TaylorGurganus_

over 7 years ago

#BOSAware #BOSstrongertogether #talynnsjourney

0

1

0

Bohring-Opitz @bohring_opitz

over 7 years ago

https://t.co/GCdy2csPsh #BOSaware #BOSStrongerTogether #RareDisease #GlobalGenes #NORD #specialneeds #SWAN #BohringOpitz

bohring_opitz's tweet photo. https://t.co/GCdy2csPsh
#BOSaware #BOSStrongerTogether #RareDisease #GlobalGenes #NORD #specialneeds #SWAN #BohringOpitz https://t.co/J8ZuakWVHl

2

11

10

0

Talynn's Journey:BOS @talynnsjourney

over 8 years ago

I am. We are. #BOSAware #TalynnsJourney

0

6

2

0

Talynn's Journey:BOS @talynnsjourney

over 8 years ago

I am. We are. #BOSAware #TalynnsJourney

0

4

1

0

Luce Elementary @Luce_Elementary

over 8 years ago

Luce Elementary is BOSAware! We are supporting Mr. John Bell & son Theo on BOS Awareness Day! #BOSAware

0

6

1

0

Fireflybyleckey @Fireflybyleckey

over 8 years ago

Bohring-Opitz Awareness Day 💙 >> https://t.co/iMB8kN9pl1 #specialneeds #specialneedsparenting #BOSaware

0

5

4

0

Permobil Canada @PermobilCanada

over 8 years ago

Although this was originally posted in 2016, it's a great video to showcase Bohring-Opitz Syndrome: https://t.co/PZsXMNadCb #BOSAware #BohringOpitzSyndromeAwarenessDay

0

5

0

Permobil Canada @PermobilCanada

over 8 years ago

Bohring-Opitz Syndrome is an extremely rare genetic syndrome. There are fewer than 100 cases in the world. Taylor Gurganus, co-founder of the BOS Foundation, organized the first BOS Awareness Day on April 6, 2015. #3YearAnniversary #BOSAware #BohringOpitzSyndrome https://t.co/C7foQxRchB

BohringOpitzSyndrome @childrenwithbos

over 8 years ago

I am. We are. #BOSAware. @childrenwithbos @arrefoundation @BOSAwarenessDay @bohring_opitz

0

5

1

0

3

0

Fireflybyleckey @Fireflybyleckey

over 8 years ago

It's Bohring-Opitz Syndrome Awareness Day! 💛 Bohring-Opitz syndrome is a rare condition that affects the development of many parts of the body. Share this post to raise awareness about this rare genetic syndrome.😊 #BohringOpitz #BOSAware