Bohring-Opitz

Bohring-Opitz Syndrome Foundation, Inc.-a 501c3 non-profit organization-is dedicated to improving the lives of people affected by BOS. #BohringOpitz #BOSAware

[Bohring-Opitz @bohring_opitz]

https://t.co/GCdy2csPsh
#BOSaware #BOSStrongerTogether #RareDisease #GlobalGenes #NORD #specialneeds #SWAN #BohringOpitz

[Bohring-Opitz @bohring_opitz]

THANK YOU TO ALL OF OUR WONDERFUL SUPPORTERS!!!

We beat our record of last year and sold 431 shirts and raised $4,060!!

For every T-shirt purchased, the BOS Foundation gets a percentage. All funds… https://t.co/KcVZ90d4c0

[Bohring-Opitz @bohring_opitz]

T-Shirt & Financial Scholarship Application Deadline TODAY, RARE DISEASE DAY! - https://t.co/KNAW2kfkQc

[Bohring-Opitz @bohring_opitz]

BOS ornaments are being shipped all over the world! - https://t.co/UeCRrzIa6J

[Bohring-Opitz @bohring_opitz]

BOS ornaments are being shipped all over the world! - https://t.co/UeCRrzIa6J

[Bohring-Opitz @bohring_opitz]

2019 Annual Ornament Fundraiser happening NOW! - https://t.co/doW90pkRGO

[Bohring-Opitz @bohring_opitz]

BOS Family Meet-Up, Guest Speakers, Research, and More! - https://t.co/IX0vAlda4O

[Bohring-Opitz @bohring_opitz]

“Alex loves the aquarium at the Columbus Zoo.” #bosaware #bosfoundation #bohringopitz https://t.co/rZstxYt0PB

[Bohring-Opitz @bohring_opitz]

Today is #BOSAwarenessDay! Show your support, share your photos, and raise awareness! #BOSAware #BOSStrongerTogether #FewerThan200Worldwide #CareAboutRare #SpecialNeeds #BohringOpitz

[Bohring-Opitz @bohring_opitz]

Thank you @DividInvestor !

[Dividend Investor! (except sometimes) @DividInvestor]

@bohring_opitz Because, why not? #donation #givingback

[Bohring-Opitz @bohring_opitz]

BOS Latest News and Updates - https://t.co/BQ9Z6cLcJJ

[Dra. Roser Urreizti @Roser_uf]

We just published our opinion and revision on Opitz C Syndrome clinical delineation, genetics conformation and therapeutic strategies at #EOOD (by @tandfnewsroom)
#RareDiseases @CIBERER @SindromeOpitzC @bohring_opitz @GeneticsUB @eurordis @BLACKSWANFound https://t.co/DNWuNHkwfu

[Bohring-Opitz @bohring_opitz]

T-SHIRT SALES EXTENDED THROUGH THE WEEKEND - https://t.co/4GsqInAY5N

[Bohring-Opitz @bohring_opitz]

T-SHIRT SALES EXTENDED THROUGH THE WEEKEND - https://t.co/4GsqInAY5N

[Bohring-Opitz @bohring_opitz]

Last day to order your 2019 BOS T-shirt! - https://t.co/cX9kxey7aJ

[Bohring-Opitz @bohring_opitz]

Financial scholarship applications due tomorrow, February 28! - https://t.co/Br5FmFyh63

[Bohring-Opitz @bohring_opitz]

BOS Foundation Funds Research! - https://t.co/fcKFCbcMQ0

[Bohring-Opitz @bohring_opitz]

BOS Foundation Funds Research! - https://t.co/WFkq4RGIAH

[Bohring-Opitz @bohring_opitz]

BOS Foundation Funds ASXL1 Research https://t.co/Qd0FSh8eLP

[Custom Ink @customink]

We’re supporting @bohring_opitz this #FundraisingFriday! Bohring-Opitz Syndrome is a rare genetic syndrome, and the Foundation works to improve the lives of those affected by it. Order yours to receive your gear in time for BOS Awareness Day on April 6! https://t.co/3MSi6htFh3