Top Tweets for #cPDPH
Open Access:
An MRI study using the Bern score finds that patients with chronic post-dural puncture #headache do not have typical imaging features of #intracranial #hypotension
https://t.co/BHghPObrt4
@ZanderCharlotte et al
This week’s SPIN-POV: Post-LP CSF leaks are not uncommon in children. This child presented with a severe headache and MRI features of intracranial hypotension and was treated with targeted epidural blood patching. Using atraumatic pencil-point needles can reduce the risk.
And another CSF Leaker has died. Suffered for 5 years. Prior brain sagging, worsening after LPs. Treatment options: rejected, no options left - gone, hopefully to a better place.
May they get their much deserved rest.
Visit beautiful Amsterdam, the Netherlands 🇳🇱, in 4 weeks to participate in the 2-day Intracranial Hypotension conference https://t.co/ilVrrTWvQZ hosted by @CedarsSinai @DukeU @FreiburgUni @UvA_Amsterdam sponsored by @spinalCSFleak
FREE @csfleakuk💧Spinal CSF Leak webinar on symptom management, with expert speaker @KathaDCwolf
You don't want to miss this! Register below ⬇️
#spinalCSFleak #CSFleak #PDPH #cPDPH #SIH #NeuroX
🚨 We're excited to announce our sixth speaker, Dr. Katharina Wolf, clinical scientist from Germany. Join to learn about symptom management in SIH and prognosis for patients with CSF leaks. Register 👉🏻 https://t.co/B4MDQw7yRJ
#CSFLeakAssociation #CSFleak
"Chronic post-dural puncture headache–a serious and underrated complication following lumbar puncture: a cohort study"
28.11.2024 (Beck, Ulrich, Fung, Urbach et al.)
#cPDPH #PDPH #postpunktionellessyndrom
#Liquorverlustsyndrom
https://t.co/G5HpOCdnH9
"Chronic post-dural puncture headache–a serious and underrated complication following lumbar puncture: a cohort study"
28.11.2024 (Beck, Ulrich, Fung, Urbach et al.)
#cPDPH #PDPH #postpunktionellessyndrom
#Liquorverlustsyndrom
https://t.co/G5HpOCdnH9
This is a slide from his talk, showing a ventral PDPH case and what that looks like. You can see the puncture leak to the top right. Patient was able to get back to physical activity by 12 weeks, though that is not the case for all patients.
Verschiedene Dura Defekte
#PDPH
Bild unten rechts : Nurboja B. et al. 2009: "Spinal meningocele due to iatrogenic dural puncture during epidural analgesia for childbirth: 5-year history of headache with a spinal etiology."
👇🏿
https://t.co/1ZztU1r6fL
#cPDPH #chronicPDPH
@WouterSchievink He also shared different types of dural defects found in cPDPH:
-arachnoid blebs—noted earlier;
-ventral dural leaks—👀
-basic defects—'just' a hole
-neomembrane—thin scar tissue covers the hole, but it's not sealed. Needs to be peeled back, then stitch/cover the leak.
🆕️➡️ "Health-related quality of life, work ability and disability among individuals with persistent post-dural puncture headache"
Ali Kapan, Jürgen Beck et al. 24.04.2024
#PDPH #cPDPH #chronicPDPH #persistentPDPH #pPDPH
#postduralpuncturesyndrom
https://t.co/V1mmsidBqf
@vajkoczy Vielen Dank, dass Sie und Ihr Team sich auch dem chronischen postpunktionellen Liquorverlustsyndrom (#cPDPH #PDPH) und auch dem spontanen Liquorunterdrucksyndrom (#SIH) annehmen mit all seinen Herausforderungen. 🌺
#Liquorunterdrucksyndrom
#Liquorverlustsyndrom
#CSFleaks
A short clip from @legalnomads talk at the Bridging the Gap conference about living with a persistent leak, and the nature of acceptance.
2. Continued to write, in my productive hours. To do what I can to advocate for the right medical treatment for #cPDPH. Completed an introductory course on better understanding medical research.
Thank you @spinalCSFleak! For those who want to have a little peak into the psychological aftermath of #chronicPDPH - #cPDPH (little peak): see the testimonial at https://t.co/umYZPmT1Au. See particularly from 2:58min.
#PDPH
Today is #WorldMentalHealthDay. Spinal CSF leak can profoundly affect mental & emotional well-being. Our ADAPT articles show what one patient/clinical psychologist learned about attending to her mental health while living with spinal CSF leak. Start here: https://t.co/oukePDbEYg
⚠️Nützliche Informationen zum postpunktionellen ( #PDPH) und chronischen postpunktionellen Liquorverlustsyndrom (#cPDPH) auf der Homepageseite der Uniklinik Freiburg @Uniklinik_Fr
⬇️⬇️⬇️
https://t.co/i2z4kMh1kG
#postduralpunctureheadache
#postpunktionellesLiquorunterdrucksyndrom
@AndrewCallenMD Über #Durableb #Arachnoidbleb #Arachnoidprolaps #Duradefekt nach #PDA #Epidural #Epiduralanesthesie, welcher jahrelang bestehen bleiben kann und zu starken Beschwerden führt
#Kopfschmerzen #DD / #NDPH
#PDPH #cPDPH #Peridualanästhesie #Spinalanästhesie
#Punktion
Transcript: https://t.co/MoAZIulqDB
Genauer hinschauen 👀bei Verdacht auf:
#Liquorverlustsyndrom
#CSFleak #SIH #PDPH #cPDPH
Spezialisten/ #Ärzte die sich dieser Erkrankung intensiver annehmen in der Neurochirurgie u.a. in:
@Uniklinik_Fr 💖
@ChariteBerlin 💜
@Lindenhofgruppe 💚
@inselgruppe 💛
#Kopfschmerzen
I am sorry for these experiences. There needs to be more education and awareness about CSF leaks and their impact.
Many overlaps with #MECFS #ChronicFatigueSyndrome or #Fibromyalgia whether as a differential diagnosis or a comorbidity.
#MedTwitter #Fibro #POTS #PDPH #cPDPH #SIH
So common! Me too.
@CSFLeakMatters @jenbrea Agree. Or chronic post dural puncture syndrome #cPDPH . Very Important. We are "many". The number of unreported cases is estimated to be high. The stories of those affected are often very dramatic. The impact on all areas of life is enormous.
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