Top Tweets for #pPDPH
I survived my third #Halloween celebration after my #CSFleak surgery. May all CSF leak- demons be banished forever...🤞
Nothing is as scary and disturbing as a CSF leak....!!
I thank friends for my Birthday/Halloween Party 2025
#forsupportcsfleaker #SIH #pPDPH #chronicPDPH
This week’s SPIN-POV: Post-LP CSF leaks are not uncommon in children. This child presented with a severe headache and MRI features of intracranial hypotension and was treated with targeted epidural blood patching. Using atraumatic pencil-point needles can reduce the risk.
A new Spinal CSF Leak-specific disability scale has been developed and is in the process of scale validation!
Dr F. Amoozegar et al. ⬇️
#spinalCSFleak #CSFleak #PDPH #pPDPH #SIH #NeuroX #Neurology
@KerenLeah The content will be published once we’ve collected more data, hopefully within the next year.
In the meantime, if you’d like to see what’s on the poster, here are some close-up photos that might help.
Next, some very exciting news for global collaboration, dissemination of knowledge, education, & research in the field! Dr. @PeterGKranz announced the International Society for Spinal CSF Leak (@issclsociety), a multidisciplinary society for healthcare professionals:
🌎 International Society for Spinal CSF Leak - @issclsociety
Really great to see this ⬇️ https://t.co/UNFFoEOvc0
#spinalCSFleak #CSFleak #pPDPH #CSFVF #SIH #NeuroX #SpontaneousIntracranialHypotension
Great to see more research on #pPDPH 🆕️⬇️
Autologous platelet-rich fibrin as an alternative epidural patch for persistent post-dural puncture headache: A single-center observational study
✒️ Ioannis Vasilikos et al.
#PDPH #Anes #OBAnes #spinalCSFleak
https://t.co/A6JFrCO40M
#CSFLeakStory from Kimberly (2022 but hopeful) 💛
#LumbarPuncture #pPDPH #SIH
https://t.co/0sDaoO8GYz
This is a slide from his talk, showing a ventral PDPH case and what that looks like. You can see the puncture leak to the top right. Patient was able to get back to physical activity by 12 weeks, though that is not the case for all patients.
KONFERENZ für ÄrztInnen, Betroffene und Angehörige 👏
Die Registrierung für die "Bridging the Gap" -Konferenz ist geöffnet.
Für Betroffene und Angehörige ist die Teilnahme (egal ob virtuell oder vor Ort anwesend) kostenlos !😊💜🙏💚🤗#Liquorverlustsyndrom
#PDPH #pPDPH #CSFleak
We're thrilled to share that registration for Spinal CSF Leak: Bridging the Gap Conference is open!
We have an exciting agenda of physician & patient speakers discussing many aspects of the condition, including its emotional toll & overlapping syndromes https://t.co/WJ3INv02Mz
⬇️ Trendelenburg. A position many patients w/#spinalCSFleak & #pPDPH are familiar with.
I personally recover much quicker from any 'upright time' when in trendelenburg.
I have an electric scissor jack (with extended control) fixed under our ottoman bed. ¹/²
I used to race mountain bikes, triathlon, and spend time with my children and grandchildren. With this cerebral spinal fluid leak, I'm either laying flat or in trendelenburg 24 hours a day, 7 days a week. #csfleak #cerebralspinalfuidleak #cerebralcsfleak #iMissMyLife
@OBsleepmerchant @halyan9512 @Ropivacaine @ESRA_Society @noolslucas @MarcVandeVelde6 @MelissaEBauer1 @rjharrison79 @DevroeSarah @KalagaraHari @OAAinfo @euklaas Thank you. Even if it affected "a few" people with #pPDPH, the impact can be massive for them. I appreciate you giving it some thought, with thinner needles, education etc. Together we can optimise these things. Good medical treatment/diagnostics needs feedback from patients.
Spontaneous intracranial hypotension mimicking iatrogenic spinal cerebrospinal fluid leaks - Tay - Headache: The Journal of Head and Face Pain - Wiley Online Library https://t.co/L9dCPZzp6W
🚩 PAs doing independent LPs? I'm sorry, but to hear that as a patient is rather frightening 💉
I doubt that most PAs have appropriate knowledge of #spinalCSFleak #PDPH #pPDPH - risk factors, reducing risk, & how to diagnose & treat especially.
#AskForADoctor #AnesTwitter #Anes
Also
🚨 consenting for chemo
🚨 independent ascitic drains
🚨independent lumbar punctures
Why is this ok ?
I mean … is it ok ?
Maybe I’m missing something here
🆕️ Some very exciting updates in 'leaker LIFE' - The @csfleakuk e-newsletter💧🇬🇧
Read it here online ⬇️
https://t.co/R74ySYra5Y
Subscribe to get the next one direct to your inbox ⬇️
https://t.co/9vwxMXuOSV
#spinalCSFleak #CSFleak #pPDPH
No video about CSF Leaks this time, but maybe in the future?
Peter #Vajkoczy always a helpful person😊 and #neurosurgeon also for CSF leaker 🫶🏽
#pPDPH #SIH
For more information on our practice and research @BCN, and to share opinions about Neurosurgical mindset follow us on our new Insta project https://t.co/OU4yajV68C
Open Access:
A cross-sectional study demonstrates that in individuals with persistent post-dural puncture #headache, a tailored approach to management is needed
https://t.co/lhNSAEDkEC
Ali Kapan PhD et al
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