#cfucdf - Twitter Hashtag

over 2 years ago

This #RareDiseaseDay, we want to raise awareness about Urea Cycle Disorders (#UCD)--a genetic #raredisease that currently lacks adequate treatment. #NUCDF #CFUCDF #ShowYourStripes for #UCD and learn more here: https://t.co/UfS8xuxw9e

zevratx's tweet photo. This #RareDiseaseDay, we want to raise awareness about Urea Cycle Disorders (#UCD)--a genetic #raredisease that currently lacks adequate treatment. #NUCDF #CFUCDF
#ShowYourStripes for #UCD and learn more here: https://t.co/UfS8xuxw9e https://t.co/G01BATBxWU

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CFUCDF @CFUCDF

over 7 years ago

Check out our newsletter @HZNPplc @OptioBiopharma @RecordatiRare @VitafloUSA @lowproliving #cfucdf

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Michael Deleon

@ucdfamily_org

almost 8 years ago

Met another Urea Cycle Disorder survivor today at #GlobalGenesSummit2018 #CFUCDF

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CFUCDF @CFUCDF

almost 8 years ago

Just watch me @GlobalGenes @HZNPplc @biopharmaglobal@aeglea#ureacycledisorders #cfucdf

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CFUCDF @CFUCDF

about 8 years ago

Remember: "Without ice, no dice!" NO TOURNIQUET after vein ID. STAT lab, right away. No fist pumping. #ureacycledisorders #cfucdf

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CFUCDF @CFUCDF

over 8 years ago

Love them ❤️@GlobalGenes @HZNPplc @biopharmaglobal @MadisonMcLaugh @RecordatiRare @ThePatientExp @RareDiseases #CFUCDF

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Michael Deleon

@ucdfamily_org

almost 9 years ago

#CFUCDF is thinking of those who will NOT have Thanksgiving due to spending today in the hospital with a Urea Cycle Disorder. Our thoughts and prayers go to those hospitalized today. Thank you to the selfless heroes we know as parents and caregivers who always sacrifice for UCDs

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