Top Tweets for #curescn8a
π Day 1 of the SCN8A Research Roadmap workshop at MIT in Cambridge, MA is off to an incredible start!Β
#SCN8A #SCN8AResearchRoadmap #scn8aawareness #scn8astrong #thisisscn8a #collaboratingforacure #curescn8a #epilepsyawareness
π¨ SCN8A Families - We need your help!
Take our Caregiver Research Priorities Survey & help shape the future research/ bring our children improved quality of life. It takes less than 10 mins!
π https://t.co/5dpEpq61z4
help - [email protected]
#SCN8AAwareness #CureSCN8A
π’Don't miss the launch of the FIRST-EVER Global Consensus on the Diagnosis and Treatment of SCN8A, a historic milestone for the SCN8A community.
Sunday April 7th at 4 PM EST | 1 PM PDT | 10 PM CET | 7 AM AEST (+1) https://t.co/qX1YLQuWtL
#SCN8AAwareness #SCN8AStrong #CureSCN8A
β¨π£ Share Your Stories π£β¨
Share your #SCN8A Superhero's unique journey, challenges, and their extraordinary strengths to help us spread hope ποΈ, awareness π and support π€ for our SCN8A community. Raise your voice and make a difference.Β Β https://t.co/K3TE6wXy8B #CureSCN8A
π
2024 marks the 10th anniversary of the International SCN8A Alliance. Reflecting on a decade of progress, we're grateful for the global community we've helped build. ππͺ To everyone who's been part of this journey, thank you! #SCN8Aawareness #CureSCN8A #CollaboratingForACure
π
2024 marks the 10th anniversary of the International SCN8A Alliance. Reflecting on a decade of progress, we're grateful for the global community we've helped build. ππͺ To everyone who's been part of this journey, thank you! #SCN8Aawareness #CureSCN8A #CollaboratingForACure
#SCN8A family meet-ups, like this one at #AES2023, are a place for families to connect, support and celebrate as a community. We came together to share our stories, our communityβs progress and talk about where we're headed together. #SCN8AStrong #CureSCN8A #collaboratingforacure
Check out all these beautiful #SCN8Asuperheroes.
Learn more about them and the work we do here: https://t.co/TRyRi4N3cX
#ThisIsSCN8A #CureSCN8A #SCN8Aawareness
#SCN8A is not just 1 disorder. There are at least 5 forms of SCN8A. Seizures are not the main issue for many - anxiety, GI, behaviors, respiratory, motor challenges, pain. Follow, share, donate, volunteer. https://t.co/BflU5Oo0re #ThisIsSCN8A #NEAM2023 #collaboratingforacure
We are learning that SCN8A is a highly complex disorder. Our community comes together in online, weekly meetings to discuss our experiences and SCN8A research. Our highly engaged community is fueling progress for #SCN8A. #SCN8Aawareness #CureSCN8A
Hooray for the Oudin lab, the amazing @MadeleineOudin and all those who help support the incredible research Madeleine's team is doing and our work at the @SCN8AAlliance. #EpilepsyAwareness #CureSCN8A #CollaboratingForACure
The Oudin lab is doing its part to raise awareness and funds for epilepsy and the @SCN8AAlliance . Tufts friends - Stop by the SEC lobby for a snack to help children impacted by severe epilepsy! #proudPI
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