Top Tweets for #CollaboratingForACure
🚀 Day 1 of the SCN8A Research Roadmap workshop at MIT in Cambridge, MA is off to an incredible start!
#SCN8A #SCN8AResearchRoadmap #scn8aawareness #scn8astrong #thisisscn8a #collaboratingforacure #curescn8a #epilepsyawareness
@TheLancetNeuro @JAMANeuro @GreenJournal @NeurologyCP @GeneticCouns @CCampbell49 @AANmember @TheACMG @ABGCertifiedGCs @TheNotoriousEEG @AledoNeuro @stephane_auvin @Neurology @Child_Neurology @ChildNeuroSoc @JChildNeurol @EANeurology @Duke_Neurology @NeurologyToday @NatRevNeurol @ClinNeuroNews @PracticalNeuro @MDedgeNeurology @Neurology__ @mayoneurores @VJNeurology @UCLIoN @NeuroAdvisor @JNNP_BMJ @neurology_live @NMatch2024 @wfneurology @MedscapeNeuro @MadeleineOudin #collaboratingforacure #neurology #functionalneurology #neurologylife #neurologyresident
🌟 Missed our International SCN8A Awareness Day online event? We've got you covered!
👉 Catch up here - https://t.co/r2KKVOjH0C
If you want to join us in advancing SCN8A research, you can help as we are #CollaboratingForaCure #SCN8A #SCN8AAwareness #SCN8AStrong
🌟 Feb 9, 3PM EST: Join us for International SCN8A Awareness Day to honor Shay Emma Hammer & all affected by #SCN8A. Let's create a future without SCN8A together. Your support fuels critical research & care. Details: https://t.co/1yFRGxnmFB #SCN8AAwareness #CollaboratingForACure
📅 2024 marks the 10th anniversary of the International SCN8A Alliance. Reflecting on a decade of progress, we're grateful for the global community we've helped build. 🌍💪 To everyone who's been part of this journey, thank you! #SCN8Aawareness #CureSCN8A #CollaboratingForACure
📅 2024 marks the 10th anniversary of the International SCN8A Alliance. Reflecting on a decade of progress, we're grateful for the global community we've helped build. 🌍💪 To everyone who's been part of this journey, thank you! #SCN8Aawareness #CureSCN8A #CollaboratingForACure
🌟 Meet Ryli: Our #SCN8A Superhero🌟 | Ryli’s life is filled with the joy of music and the wonder of car rides. Despite the her challenges.
🙏End-of-Year donations fund vital research for children like Ryli
https://t.co/KjNc3OfwH4
#scn8a #scn8astrong #collaboratingforacure
🎅🦌 Merry Christmas from all of us at the International SCN8A Alliance! Wishing you a holiday full of laughter, love, and cherished moments. ❄️☃️
#scn8a #scn8astrong #collaboratingforacure
#SCN8A family meet-ups, like this one at #AES2023, are a place for families to connect, support and celebrate as a community. We came together to share our stories, our community’s progress and talk about where we're headed together. #SCN8AStrong #CureSCN8A #collaboratingforacure
Attending the AES meeting in Orlando last week was an exciting opportunity. This week, we'll be sharing insights and developments from this pivotal annual meeting of doctors, researchers, industry, patient advocates, and more. #AES2023 #SCN8A #SCN8AStrong #CollaboratingForACure
Exciting (and historic) day at #AES2023: our first co-authored poster with members of our CACNA1A Research Network. This represents the largest dataset on #CACNA1A. #CollaboratingForACure @Laina_GC @PangkongFox @IngoHelbig @BCH_PoduriLab @LalDennis @nupharm1 @lbhmana
Hooray for the Oudin lab, the amazing @MadeleineOudin and all those who help support the incredible research Madeleine's team is doing and our work at the @SCN8AAlliance. #EpilepsyAwareness #CureSCN8A #CollaboratingForACure
The Oudin lab is doing its part to raise awareness and funds for epilepsy and the @SCN8AAlliance . Tufts friends - Stop by the SEC lobby for a snack to help children impacted by severe epilepsy! #proudPI
#SCN8A is not just 1 disorder. There are at least 5 forms of SCN8A. Seizures are not the main issue for many - anxiety, GI, behaviors, respiratory, motor challenges, pain. Follow, share, donate, volunteer. https://t.co/BflU5Oo0re #ThisIsSCN8A #NEAM2023 #collaboratingforacure
We are so incredibly grateful to have a leader like @ConeckerGabi who is helping #SCN8A families by #collaboratingforacure and innovating on so many fronts! Please tune in, RT and reach out to partner with us. @OnceUponAGene https://t.co/9CL4Cr4sP0
A lovely presentation by Cinzia Scarcelli, President and Founder of @SCN8A_EU and SCN8A Italia, shared some of the challenges faced by families and the evolution of the many #SCN8A groups working to support families and #collaboratingforacure 💜
A huge undertaking but working towards ensuring that every med decision is made using #data is very worth the effort for these beautiful children! #collaboratingforacure
Developing global guidelines for treatment of #SCN8A presented by @ConeckerGabi from @SCN8AAlliance. “A massive but critical undertaking!” Thank you for paving the way for #SCN2A!
We are excited to share that SCN8A Italia - a Global SCN8A Leaders Alliance partner - has made a contribution to help advance the progress of our ongoing effort to develop the 1st guidelines for the treatment of those with SCN8A. #collaboratingforacure
https://t.co/QQhQfvqoNs
Just wrapped up Session #1: understanding genotype-phenotype correlations & characterizing the natural evolution of #CACNA1A disorders #ResearchRoundtable #CollaboratingForACure
Samuel Waxman Cancer Research Foundation - 21st Anniversary of the #CollaboratingForACure Benefit Gala - At #CiprianiWallStreet, Featuring A Performance By #Dawes. The Gala Raised $2.5 Million To Support Research Projects Focused On Eradicating Cancer. @WaxmanCancer @Cipriani
Longtime #WaxmanGala emcee @ChrisWragge joins us live via the #CBS2ny newsroom to again emcee #WaxmanGala2018. We are excited and grateful to Chris for being with us and for #collaboratingforacure
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