Top Tweets for #datatrusts
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How Can #DataCooperatives Help Build a Fair #DataEconomy?
#Report
https://t.co/hlQcJqPI3F
#Article
https://t.co/OfDPfbm5Wk
#Video
https://t.co/O9FkOwf1QL
Looking ahead to #cooperative chats in #WashingtonDC this April!
#DataTrusts #DataCommons
Are there viable business models for data empowerment structures that enable collective action?
At #ProjectLibertySummit our 'data that serves' session w/ @jensmolbak explores how 'public utilities' and #datatrusts can harness data as a shared asset to deliver essential services
In the past decade, Lab affiliates have published several books, changed public policy at the municipal and federal levels, launched new enterprise forms such as #DataTrusts, and supported 1000s of #NPOs worldwide to integrate #DataGovernance and responsible data practices.
Really excited for this round table event today discussing all things #DataTrusts
How important is it to promote mechanisms for sharing data among different actors to enhance its use and reuse? Discover it in our publication π https://t.co/9WPKg5ziyr
#DataTrusts #DataCooperatives #DataPools #PublicInterfaces #ResearchPartnerships
What are the minimum specification essential requirements #MinSpecs for #DataTrusts/data repositories/other data collabs? @paprica_alison + #HDRNCanada's @kimchspr, @docschull & others convened an int'l team to discuss/test/refine. Here's what they found: https://t.co/T3wGAaErvZ
As research evolves and data possibilities grow, we need to develop new ways of protecting and sharing health research data. Discussing all this with #datatrust project colleagues today - youth participation v important @BISDataTrust #datatrusts @jessylaurenbell @GPDT_Project
My talk at #CoDSummit3 on moving compute to the data to unlock more data sharing in government, healthcare and between competitors is now online! Iβd really like some feedback from gov types (this feature is for you π) and the #DataTrusts folks.
https://t.co/eY87Zndiu3
@fxia61 @geospatial_md @_sereneho @lisagiven @_FrontierSI_ Talking #datatrusts, their impacts on governance and community participation with my friend & colleague @biancawylie https://t.co/jXdHPxksgf
"A cooperative could offer one attractive legal structure: all citizens are members and would share in any surplus generated, the governance reports to the data subjects, not shareholders. " #datatrusts @SalusCoop
Health data could form the basis of a UK sovereign wealth fund https://t.co/RavBs4MjPA
@Alison_Inman @jayn19 @shivmalik @rogerswannell @edsaperia @pooldata I guess if you want your labour to be valued, you join a union; same principles with gaining value from the data you create. Sounds good to me. #dataunions #datatrusts
@JeremySachs_ @UYPScotland @AYPHcharity Fantastic pictures! So looking forward to taking forward lessons learned in the Born in Scotland Data Trust project with you! @AYPHcharity @JeremySachs_ @born_scotland #datatrusts
@JeremySachs_ @UYPScotland Huge thanks to everyone who took part in this, so exciting to hear your views on use of data & get your input into our work on data governance @jessylaurenbell #datatrusts
Can we trust trust-based data governance models?
Bart van der Sloot & @EstherKey, @TilburgU_TILT
β https://t.co/ZYQqOUBbOr
#Trust #DataGovernance #DataStewardship #DataTrusts #DataStewards #InformationFiduciaries
Finally got to this great article that explains the differences between #datasharing pools, #datacooperatives, public #datatrusts and personal #datasovereignty initiatives. Well done @minaemme,
@Abesuman, Marisa Ponti, and Max Craglia
https://t.co/YiyN5qrnil
This was the animating concern behind using #datatrusts - before they became part of the data exploitation hype cycle.
What happens to the public record of history if Twitter goes bankrupt? The platform includes first-hand accounts of the death of bin Laden, the Arab Spring, the Iranian uprising and the Russian invasion of Ukraine. By me for @techreview https://t.co/HGjz0QyKNl
Fantastic focus group today at The Pregnancy and Parents Centre in (sunny!) Edinburgh, as part of our Born In Scotland Data Trust project. Helping us shape ideas for future data governance.Thx to all involved! @rr_metabolicmed @lesaangelica @born_scotland @futuresrosy #datatrusts
So #DataCommons can take many forms:
ποΈ#OpenAccess commons
ποΈdata collaboratives
ποΈdata cooperatives (#DataCoops)
ποΈpublic data commons
ποΈ#DataTrusts
ποΈdata unions
ποΈcommon data spaces & data access bodies (see #EHDS #HealthUnion). 5/14
some recent thoughts on #datatrusts from @ODIHQ and @aaptiinstitute.. "While the differentiating characteristics of data trusts are theoretically attractive ones (the placing of fiduciary duties on trustees).. these characteristics have yet to be applied and tested.."
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