Top Tweets for #espku
🌍 E.S.PKU President Eric Lange joined 'Low Protein Traces of Life: PKU Family Meetings' in Istanbul 🇹🇷, sharing European PKU updates, new treatments & importance of doctor–patient relationships. Grateful to PKU Turkey for the warm welcome! #PKU #ESPKU #PKUTurkey
This time last week was en-route my 1st #espku conference.Fab event @official_espku & @NSPKU. Apologies if I missed saying 'hi' to some in #pku community, many there, great turn out! Back to work-life this week, early rise for teaching classes, office & prepping for next travels.
"Best session at any conference, ever!"
Many thanks to all who attended our session @ESPKU
"Starting the Conversation: a panel for adults with #PKU, by adults with PKU." was a hit!
Couldn't have done it without @Sohebsoheb @GirlGreenDress @NSPKU
#LivingWithPKU #ESPKU #NSPKU
Waking up in my own bed....
So thankful for the last pass days.. It was a experience I will never forget.
Met so many great and sweet people, learned a lot and it was so inspiring
🤩
#espku #pku #loprotein
#espku2023: Fab weekend, great to catch up & share experiences, ideas & of course some special celebrations 🍾 😀 #nspku @nspku #espku @official_espku
Day 2 at #ESPKU and we learnt about the guideline updates and up and coming treatments including sepiapterin (similar to Sapropterin which may work for more people).
#IMDdietitian
Pick up a copy at ESPKU - 30% off today!
The lovely @nspku ladies at registration can help you out. Or I am roaming the conference in my dinosaur shirt and can take card payments.
#LivingWithPKU #espku
PKU management has come so far - where are we going now? A: The conversation needs nuance and balancing burden of high Phe vs the psychosocial burden of strict treatment compliance. #espku @official_espku
The @NSPKU welcomes the @official_espku to the UK. Bringing patients, scientists, clinicians & industries together from across Europe.
Day 1, we look to PKU history, present & future. An exciting day ahead.
#ESPKU #PKU #ESPKU2023 #Vitaflo
Absolutely fab to be able to hear Sheila's story, the first individual to be treated with dietary modification for PKU, from Prof Green from BCH who authored a book of the same subject. Such an incredible story. #espku @NSPKU @official_espku
Great to be at the #espku @NSPKU @official_espku annual conference today in Birmingham with a poster relating some of my frcpath project work. Happy to answer any questions or share the tool by email to anyone interested in it.
How many bloodspots makes an accurate trend…? Such a useful tool for sapropterin response testing
@official_espku 1st poster is up (34 to follow!)
Thx @NathanWPCantley
🩸🩸🩸
We are proud to sponsor the 37th @official_espku conference in Birmingham 👏
The agenda is great, lots of interesting clinical updates to come over the next few days!
Please do visit our stand to meet our team 🖐
#ESPKU #PKU #37thESPKUConference #ESPKU2023 #Vitaflo
We are attending the E.S.PKU 2023 Conference this week in Birmingham! 💙💚
Looking forward to seeing you all there, make sure to stop by our stand and say hello 👋
@espku @nspku
#ESPKU2023 #ESPKU #ESPKUCon23 #NSPKU #PKU #GalenMedicalNutrition #Microtabs
At this year`s ESPKU Conference #ESPKU2023 prof. dr. Francjan J van Spronsen Chairman of the #ESPKU Scientific Advisory Committee will talk about the clinical outcome in #PKU, what is left to understand and learn. Register today not to miss it. Go to:
https://t.co/3DMFukWxnA
Proposal for revised pharma legislation adopted today. ESPKU/EP Cross-Party PKU Alliance will now carefully assess its impact on accessibility and development of innovative treatment for those living with PKU and their families. #PKUMEPALLIANCE #PKU #ESPKU
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