Top Tweets for #fhef
π FHEF is at the #ICPerMed & #EPPerMed Joint Conference in Prague!
Weβre proud to co-develop the EP PerMed Strategy on People Engagement & support research on public understanding of personalised medicine.
#PersonalisedMedicine #PatientVoice #FHEF
The excitement is real β our participants are ready for #ANM2025! ππ
Letβs make this weekend count.
#FHEF #TogetherEngagedForChange
β¨ Our youngest #PatientAmbassador is all set and ready for #ANM2025!
The excitement is real β and we canβt wait to kick things off! ππ
#FHEF #TogetherEngagedForChange
π₯ Our Programme Committee has carefully curated this weekendβs #ANM2025 programme to ensure meaningful, relevant and inspiring discussions.
Thank you for shaping an agenda that drives impact.
#ANM2025 #FHEF #TogetherEngagedForChange
β¨ Getting ready! We are finalising preparations ahead of your arrival and look forward to welcoming you to Zagreb. πΌ
Our team is ensuring everything is in place for a productive, inspiring and collaborative Annual Meeting. See you soon!
#ANM2025 #FHEF #TogetherEngagedForChange
βοΈ Bags packed?
Weβre putting final touches on the #FHEF ANM 2025!
π¬ Whether youβre joining us in Zagreb or online, we canβt wait to welcome you.
π
14β16 November
𧑠Together, engaged for change!
#ANM2025 #FHEuropeFoundation #Zagreb #TogetherEngagedForChange
A huge thank you to all the participants and our incredible speakers for being part of our Webinar. Your engagement, insightful discussions, and shared experiences made this session truly impactful.
#TheRareWeShare is #MoreThanYouCanImagine #RareDiseaseDay #HoFH #FCS #FHEF
Today is Rare Disease Day β an opportunity to raise awareness and advocate for FCS and HoFH!
Join our webinar today to learn more and be part of the conversation.
Register Now! https://t.co/Ee7znzA67x
#TheRareWeShare is #MoreThanYouCanImagine #RareDiseaseDay #HoFH #FCS #FHEF
Elisete living with #FCS, and Avery living with #HoFH. Facing unique challenges, they continue to shine brightly.
Both finalists in the @eurordis Photo Award 2025!
Vote here: https://t.co/ucNfJSLUPW
#TheRareWeShare is #MoreThanYouCanImagine #RareDiseaseDay #FHEF
70% of genetic rare diseases, like #HoFH and #FCS, start in childhood. Early diagnosis is critical. Let's raise awareness and improve access to testing on #RareDiseaseDay. π #TheRareWeShare #MoreThanYouCanImagine #HoFH #FCS #FHEF @eurordis
Our #RareDiseaseDay webinar will feature medical and patient perspectives on living with #HoFH and #FCS.
Join us on February 28 at 4:00 PM CET
Register: https://t.co/Ee7znzA67x
#TheRareWeShare is #MoreThanYouCanImagine #RareDiseaseDay #HoFH #FCS #FHEF
Two of #FHEF Young #Ambassadors are finalists in the EURORDIS #RareIsBeautiful contest!
π Elisette (#Estonia) has #FCS, loves dancing & bravely manages a strict diet.
π Avery (#USA) has #HoFH, survived 3 heart surgeries & still shines on stage!
Vote now! π³οΈ β€΅οΈ #RareDiseases
We have our 6 finalists, but who will be the winner? π
From all your submissions, our expert judge, @marcusbleasdale, has selected our finalists. Now it's your turn!
π³οΈ Voting will be open until the winner is announced during the #EURORDISAwards2025 ceremony on 24 FebruaryWe have our 6 finalists, but who will be the winner? π
From all your submissions, our expert judge, @marcusbleasdale, has selected our finalists. Now it's your turn!
π³οΈ Voting will be open until the winner is announced during the #EURORDISAwards2025 ceremony on 24 FebruaryWe have our 6 finalists, but who will be the winner? π
From all your submissions, our expert judge, @marcusbleasdale, has selected our finalists. Now it's your turn!
π³οΈ Voting will be open until the winner is announced during the #EURORDISAwards2025 ceremony on 24 FebruaryWe have our 6 finalists, but who will be the winner? π
From all your submissions, our expert judge, @marcusbleasdale, has selected our finalists. Now it's your turn!
π³οΈ Voting will be open until the winner is announced during the #EURORDISAwards2025 ceremony on 24 FebruaryWe have our 6 finalists, but who will be the winner? π
From all your submissions, our expert judge, @marcusbleasdale, has selected our finalists. Now it's your turn!
π³οΈ Voting will be open until the winner is announced during the #EURORDISAwards2025 ceremony on 24 FebruaryWe have our 6 finalists, but who will be the winner? π
From all your submissions, our expert judge, @marcusbleasdale, has selected our finalists. Now it's your turn!
π³οΈ Voting will be open until the winner is announced during the #EURORDISAwards2025 ceremony on 24 February!
Rare diseases affect fewer than 1 in 2,000 people. Over 300M globally live with one, including HoFH & FCS. On #RareDiseaseDay, we emphasize awareness, early access to treatments. Support rare disease communities. #TheRareWeShare #MoreThanYouCanImagine #HoFH #FCS #FHEF @eurordis
π One month to go! The FH Europe Foundation Annual Network Meeting is in one month in Vienna (8-10 Nov)! Together, engaged for change!π€
Learn more: https://t.co/pP7jOFQxrh
#FHEFAnnualMeeting #FHEurope #FHEF
π Get Ready for FH Awareness Day 2024! Join us on August 22 at 6 PM CEST for a special campaign call where weβll reveal the full campaign toolkit! Register now! https://t.co/V0nmA98vI1
Letβs make an impact together. πͺ
#FHAwarenessDay #RaiseAwareness #FHEurope #FHEF
Join our #FHAwarenessDay Kick-off Meeting! π
π
Thurs, 8 Aug, noon CEST. Register: https://t.co/k89I1non1B
#FH #FHEF #FHEurope #community #awareness
π±β¨ Happy International Self-Care Day! π Self-care is key to resilience & well-being. Embrace mindfulness, advocacy, or managing health conditions. Let's build a healthier tomorrow together! πͺπΏ
π Learn more: https://t.co/uwPaz17s6p
#SelfCareDay #WellBeing #FHEF #FHEurope
DAY3 of the #HU24EU! High-Level Conference on Cardiovascular Health! #Hungary will present a concept paper on #CVD which builds on the #EACH #CVH Action Plan.
#FindFH #FindHoFH #FindLpa #FindFCS #cholesterol #LDL #PerfectoFH #UseHeart #FHEF #PatientVoice https://t.co/gSpoGkDrDl
π£π· Wishing you a very happy and active Easter holiday! π·π£
#happyEaster #FHEurope #VoteHealth2024 #FHEF
Today is #WorldObesityDay.
Obesity matters also in people with genetically high cholesterol. Read more:
https://t.co/rJnqBHseY4
#fhef
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