Top Tweets for #RareIsBeautiful
LAST CHANCE TO VOTE!
Elisete & Avery need YOUR VOTE to help raise awareness and make an impact!
⏳ Voting closes TOMORROW! Don’t miss the chance to support them.
https://t.co/ucNfJSLUPW
#TheRareWeShare is #MoreThanYouCanImagine #RareDiseaseDay #HoFH #FCS #FHEEF #RareIsBeautiful
Two of #FHEF Young #Ambassadors are finalists in the EURORDIS #RareIsBeautiful contest!
💖 Elisette (#Estonia) has #FCS, loves dancing & bravely manages a strict diet.
💃 Avery (#USA) has #HoFH, survived 3 heart surgeries & still shines on stage!
Vote now! 🗳️ ⤵️ #RareDiseases
We have our 6 finalists, but who will be the winner? 👀
From all your submissions, our expert judge, @marcusbleasdale, has selected our finalists. Now it's your turn!
🗳️ Voting will be open until the winner is announced during the #EURORDISAwards2025 ceremony on 24 FebruaryWe have our 6 finalists, but who will be the winner? 👀
From all your submissions, our expert judge, @marcusbleasdale, has selected our finalists. Now it's your turn!
🗳️ Voting will be open until the winner is announced during the #EURORDISAwards2025 ceremony on 24 FebruaryWe have our 6 finalists, but who will be the winner? 👀
From all your submissions, our expert judge, @marcusbleasdale, has selected our finalists. Now it's your turn!
🗳️ Voting will be open until the winner is announced during the #EURORDISAwards2025 ceremony on 24 FebruaryWe have our 6 finalists, but who will be the winner? 👀
From all your submissions, our expert judge, @marcusbleasdale, has selected our finalists. Now it's your turn!
🗳️ Voting will be open until the winner is announced during the #EURORDISAwards2025 ceremony on 24 FebruaryWe have our 6 finalists, but who will be the winner? 👀
From all your submissions, our expert judge, @marcusbleasdale, has selected our finalists. Now it's your turn!
🗳️ Voting will be open until the winner is announced during the #EURORDISAwards2025 ceremony on 24 FebruaryWe have our 6 finalists, but who will be the winner? 👀
From all your submissions, our expert judge, @marcusbleasdale, has selected our finalists. Now it's your turn!
🗳️ Voting will be open until the winner is announced during the #EURORDISAwards2025 ceremony on 24 February!
A beautiful new portrait of two siblings from one our unstoppable CHoR families was unveiled this week as part of the @BeyondtheDx art exhibit, currently on display in our Sky Lobby. Make sure to stop by to see it next time you visit us! #rareisbeautiful #rarediseases
Lilia is our wonderful, shining, little rare-star.
She was diagnosed with STXBP1, a rare genetic disorder at age 8.
#RareDiseaseDay2024
#RareIsBeautiful
Being #individuallyrare can be a bit lonely but knowing we are part of the #rarecommunity is something very special 🥰 thanks @rareireland
#rareisnotinvisible #rareireland #rareismany #rareisbeautiful #rarediseaseday2024 #rarediseaseireland #rareisme #livingwithrare
🔐 Unlock the potential of rarity and uniqueness! 🌈 #NFT redefine collectibles, turning the mundane into the extraordinary. Own your slice of rarity now! 🚀💎 #NFTCollectibles #RareIsBeautiful #NFTGiveaways
Follow for more!
@SpeedballBailey @OhioWrestlingA1 my son loves to watch you! We’ve seen you at an Impact show, but this kid would die if he saw you at our favorite local promotion!! #OWA #OhioWrestlingAlliance #JaxsonsRide #kabukisyndrome #chdwarrior #strokesurvivor #rareisbeautiful
Koolen de Vries Syndrome awareness day. Alanna was the second person diagnosed with kdvs in Ireland. She has brightened our lives and the lives of everyone who knows her. Our ray of sunshine who is never without a smile #RareIsBeautiful #kdvs @rareireland @KdVSFoundation
Today is World #MFDM Day - 22nd June
MFDM stands for Mandibulofacial Dysostosis with Microcephaly
MFDM is a rare #genetic disorder
MFDM changes the #EFTUD2 gene
#RareIsBeautiful
My daughter has this rare genetic disorder
It’s Kabuki Syndrome Awareness Day & I am SO blessed to get to celebrate my beautiful niece Nuala today! 💚 #Kabuki #KabukiSyndrome #RareIsBeautiful
We are so happy to have our first batch of literature sent to the printers #RaisingAwareness #StrongerTogether #RareIsBeautiful #RareIsMany
Today is #RareDiseaseDay
Lilia has a rare genetic disorder called STXBP1. She was diagnosed aged 8. Getting her diagnosis was like getting a little window into her world & allowed us to connect with other families worldwide.
#RareIsBeautiful #RareStar
#DifferentButEqual #STXBP1
Over 300 million people are living with a rare disease worldwide. Rare diseases are currently affecting 3.5% – 5.9% of the worldwide population.
#RareIsBeautiful #LetsBreakTheStigma
#SickleCellDisease #rarediseasesday
#rareInsights #rarediseaseday #showyourstripes #careing
28th February 2021 is International Rare Disease Day. This year we have Partnered with @RealSamHumphrey to bring you an event to raise awareness about some of the Rare Diseases in Australia. Join us
#RareIsBeautiful #LetsBreakTheStigma
Just signed Ollie man up for kindergarten. #teamoliver. #kickinitkabukistyle. #mybaby. #rareisbeautiful.
Be sure to follow @GreyGeneticsPod to learn more about the Rare Outreach Coalition and the DISORDER: Rare Disease Film Festival in the new episode out next week! #RareIsBeautiful #Disorder #BeyondTheDiagnosis #MedTwitter
#FactFriday - This week we’re defining #RareDisease. The total number of Americans living with a rare disease is estimated to be 25-30 million. Check out more facts about rare disease in this post. (Source: @NIH) #Genetics #GeneticDisease #GCChat #RareAsOne
Keep spreading awareness. 💞 #bethevoice #childrenwithspecialneeds #childcare #support #makeadifference #rareisbeautiful #showyourrare#specialneedsparent #littlewarrior #warriorparents #differentnotless #littleandbrave #specialneedskids #avoiceforthevoiceless
Pure joy, his face says it all. Someone loves his big sis 😍
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#love #bigsister #littlebrother #purejoy #noboundaries #loveisblind #support #rareisbeautiful #wegotthis #journeytocuremichael #curespg50 https://t.co/YwAvy1dmN8
Today is RARE DISEASE AWARENESS DAY! Tell us how you celebrated and shared about rare.
#rarediseasemonth #kabukisyndrome #allthingskabuki #rareisbeautiful #advocate #awareness #themoreyouknow #wrdd2019 #wearerare #careaboutrare #february28 #rarediseaseawarenessday
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