#hEDSAwareness - Twitter Hashtag

7 months ago

Few conditions are as misunderstood - and as life-altering - as what she has... #ehlersdanlos #ehlersdanlossyndrome #heds #hedsawareness #ehlersdanlossyndromecheck

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Sumalicious @Sumasaurus_Rex

almost 2 years ago

Whatever worry or fear i had that no one would take me seriously just went out the windows. #hedsawareness #zebrastrong #pots

Sumasaurus_Rex's tweet photo. Whatever worry or fear i had that no one would take me seriously just went out the windows.

#hedsawareness #zebrastrong #pots https://t.co/oXPWN8cvTk

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💙 Queen Buttercup Speaks 💙 @BethT79

almost 2 years ago

Today, I’m DRIVING MYSELF to physical therapy. It’s right down the road. Everything, is right down the road. 💙🦋 #fuckcancer #hEDSAwareness

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Caitlin @edu__c8

over 3 years ago

Happy EDS awareness month to all the zebras out there. You’re strong as heck,you’re valid,and you matter 🤍🖤🦓 #ehlersdanlossyndromeawareness #hEDSawareness #EhlersDanlosSyndrome

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Chronically Fighting @uneebra26

over 5 years ago

When a #Doctor has to #Google my medical condition after asking how to spell it...I no longer have confidence in the “expert” #RareDiseaseTruth #EhlersDanlosSyndrome #RareDisease #hEDSAwareness #BornThisWay

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Chronically Fighting @uneebra26

over 5 years ago

It is terrifying when #Drs rely on algorithms to determine the needs of their patients #RareDiseaseTruth #EhlersDanlosSyndrome #IssuesWithMyTissues #NotInMyHead #RareDiseaseWarrior #EducationMatters #HealthCare #OpioidEpidemic #Mislabled #hEDSAwareness

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Mimosa Vendetta @MimosaVendetta

over 7 years ago

Thanks for all the messages of support! Got some good "before and after" pics. Mamamimo is soooo happy to have two clear nasal passages again!! Healing has begun in earnest now. #ZebraStrong #hEDSAwareness

MimosaVendetta's tweet photo. Thanks for all the messages of support! Got some good "before and after" pics. Mamamimo is soooo happy to have two clear nasal passages again!! Healing has begun in earnest now. #ZebraStrong #hEDSAwareness https://t.co/oPpqokRTWt

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