Top Tweets for #NotInMyHead
@VinoNStrosGal This has been my experience exactly. Doctors are so quick to try to label you a psych patient if you react emotionally to chronic pain and the loss of an active life. You'd think specialists would know better. But if the can't fix it, they demote it's importance. #NOTInMyHead
@snfdwt @frerardie this argument might have made sense if he was just a player for the org but he's a co-owner bruh. i already told you this weeks ago #SMH #NotInMyHead
The pain in my hands and feet is unbearable this week. Soles of feet completely discoloured and having to โpopโ toes back into right place. WTF is this ๐
#LongCovid #notinmyhead
@calirunnerdoc โSick for life?โ Where does that leave those of us with genetic connective tissue disorders, where there is no cure or treatment. Simply managing symptoms is a daily battle! As for PEM, no energy = inability to exercise. Iโd dearly love to, I just physically canโt. #notinmyhead
@StenHelmfrid They are not liking their cash generating illusions being questioned, are they?
Like to see them explain why every time I attempt to do something more than rest, I collapse! The fact I still try destroys their โfear of exerciseโ mantra. Itโs not fatigue, itโs PEM! #notinmyhead
@CatherineL_Hill @lynmarch1 @TheLancetRheum It took 7 yr and multiple drs/ tests to get a dx for #RA I spent countless appointments just wanting someone to listen to my experiences and symptoms. Why are female patients not being taken seriously? #notinmyhead
7 yr w/o treatment๐คฆโโ๏ธ
Does anyone wanna make a hashtag for this like previously stated? Any good ideas? #notinmyhead or something like that
Had a #LongCovid test that didn't come back as 'normal' ๐ฅณ
Phosphocreatine:
-stored in the muscle
-with exercise PCr is broken down to produce ATP
-it took 131 seconds for my PCr levels to go back to preexercise
-normally you would expect it to be around 50 seconds
#NotInMyHead
@doctorfabrowski Iโm so happy you tweeted this! I literally watched those 2 episodes (S5E1-2) 3x last week & wanted to share with the #ME #pwME #NEISvoid #chronicillness family but I couldnโt find the words. TY for being on the same wavelength as me!
#ListenToPatients #NotInMyHead #GoldenGirls
The message the same from #sepsisurvivors globally. The lecture you attended on #sepsisrecovery did not even skim the surface. #patientfocus #notinmyhead #septicshock #longcovid #ChronicPain #infection @SepsisCanada @CanSepsisFdn @GovCanHealth @WorldSepsisDay @CIHR_IRSC
@rupert_pearse I speak to 100โs if not 1000โs of Sepsis survivors globally and believe me they are taking it seriously. Also they are a little disheartened that long Covid is being recognised as a thing when Post Sepsis Syndrome which is physiologically the same has been ignored for years.
@elisaperego78 They referred me to cardiology who gave me bp meds then cardio referred me to resp who declined to see me. I thought that was the end of it. Glad someone is chasing up whats going on. I have a stent in my iliac artery from 12 years ago. Feet are still alabaster white #notinmyhead
Health is no joking matter. Women's health concerns deserve to be heard and validated. Here are the signs of Medical Gaslighting:
#HearMyHealth #HealthNotHysteria #NotinMyHead
I was brainwashed as a teen convinced by #Drs that I needed treatment for #bulimia when actually I was suffering from #Gastroparesis
Yrs of untreated symptoms led to irreversible damage
#Misdiagnosed #NEISvoid #Gaslighting #NotInMyHead #InvisibleIllness #VowToBeSeen
It is terrifying when #Drs rely on algorithms to determine the needs of their patients #RareDiseaseTruth
#EhlersDanlosSyndrome #IssuesWithMyTissues #NotInMyHead #RareDiseaseWarrior #EducationMatters #HealthCare #OpioidEpidemic #Mislabled #hEDSAwareness
Tamir Rice (12) was shot w/in TWO SECONDS of police arrival while holding a toy gun. Kyle Rittenhouse (17) carried a real weapon across state lines *twice*, was applauded for his efforts *by police*, & then murdered two people before his arrest @ home *the next day*. #NotInMyHead
This brings tears of relief- itโs being called out. #notinmyhead fought hard for every broadcast - harder when started wearing a scarf. Limited successes. Saw less experienced โothersโ accelerate past me becoming mainstream. @guardian thank you David Olusoga #mactaggartlecture
@JessicaXDiamond @JoannaNoBanana Misdiag MANY x= autoimmune, 7 jakked discs, torn tendons, broken feet & horrific Guillan Barre episode that I still recover from have been slapped under โyour just anxiousโ. Really Mr. Dr. ๐ let me give you some of it! #medicalmetoo #notinmyhead #hatedrs
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