Top Tweets for #heDS
So I think these doctors and @OneShow should like get out of this and look at what we went through. #hEDS and audhd you know @OneShow @BBCAccessAll I've got these lot now too and guess what we have support and am part working. @DrAmirKhanGP @DailyMirror @TheSun
#chronicillness #pots #heds #mcas #gastroparesis #smallfiberneuropathy
Just to name a few. I also have pneumonia and a sinus infection. Thatโs a major issue with managing chronic illnesses. You never know if itโs your body or a virus/bacteria
I had a very bad night last night. I had to cancel a trip to Nashville to see 3 specialists. Very frustrating. Managing chronic illness(es) is not for the weak.
NEW: Actress Christina Applegate says she was misdiagnosed with multiple sclerosis, a neurological and autoimmune disorder.
Read more: https://t.co/ka4jtfB8Aq
Is it possible she has #hEDS EhlersDanlosSyndrome? I was diagnosed with that but American Orthopedic doctor said it was just a body riddled with Osteoarthritis. https://t.co/d3nKHZNEnc
Early results from an EPRI-led, @CalEnergy-led demonstration are showing how a high-efficiency HVAC retrofit could help reduce cooling and natural gas reheat loads in healthcare facilities.
EPRI is evaluating a 9,000-cfm high-efficiency dehumidification system (#HEDS) retrofit at an operating healthcare facility in coastal Southern California.
Since operation began in September 2026, preliminary results include:
โก๐ฎ๐ต% ๐น๐ผ๐๐ฒ๐ฟ ๐ฐ๐ต๐ถ๐น๐น๐ฒ๐ฟ ๐น๐ผ๐ฎ๐ฑ ๐ฎ๐ป๐ฑ ๐ณ๐ฒ% ๐น๐ผ๐๐ฒ๐ฟ ๐ป๐ฎ๐๐๐ฟ๐ฎ๐น-๐ด๐ฎ๐ ๐ฟ๐ฒ๐ต๐ฒ๐ฎ๐ ๐น๐ผ๐ฎ๐ฑ during unusually hot and humid conditions
โก ๐ฐ๐ฎ% ๐น๐ผ๐๐ฒ๐ฟ ๐ฐ๐ต๐ถ๐น๐น๐ฒ๐ฟ ๐น๐ผ๐ฎ๐ฑ ๐ฎ๐ป๐ฑ ๐ด๐ฑ% ๐น๐ผ๐๐ฒ๐ฟ ๐ป๐ฎ๐๐๐ฟ๐ฎ๐น-๐ด๐ฎ๐ ๐ฟ๐ฒ๐ต๐ฒ๐ฎ๐ ๐น๐ผ๐ฎ๐ฑ during milder, more typical coastal conditions
โก~๐ฑ๐ฎ% ๐ฟ๐ฒ๐น๐ฎ๐๐ถ๐๐ฒ ๐ต๐๐บ๐ถ๐ฑ๐ถ๐๐, with temperature and dew-point control maintained during both periods
The demonstration is also examining real-world implementation considerations, including commissioning, controls integration, air balance, and maintaining critical healthcare facility requirements. Results remain preliminary, with monitoring and independent verification planned through Q3 2027.
See the Field Demonstration Update for early findings, implementation lessons, and next steps.
EPRI is leading the CEC-funded demonstration with technology and technical support from Conservant Systems, Inc
Explore the field demonstration update: https://t.co/P6N11sXQdD
https://t.co/fInaeg9Sgo #hEDS
@DiaryofaSickGrl Also, it's apparently not super uncommon in #hEDS, as my surgeon has had multiple patients with both conditions (he specialises in both, sheer luck I found him before my EDS dx), so worth being on the lookout for! 2/end
@Ilmpiranha @derralfbaer Ich habe in deiner Bio gelesen #heDS
Damit empfiehlt die Stiko die Herpes Zoster Impfung ab 18 J.
๐ Go
My thoughts about the film Complicated, with children who have EDS/hEDS, where they and their families are not being take seriously. With child protective services as a result.
Medicine needs to do better!
https://t.co/6TTJzkGOsa
#EDS #hEDS #pwme #myalgicE #millionsmissing
Me too! #hEDS
I have these!
In Ehlers Danlos Syndrome Families, The one who receives the most stress gets sick first and continued stress contributes to severity of disability. It isnโt only about infections. Stress plays a huge role in this disease. #EhlersDanlosSyndrome #hEDS #LongCovid #pwME #POTS
I am remodeling an RV to be my new dog grooming salon. The kennel banks fit like a tetris piece in the shower. But i had to deconstruct the whole bank, and put it together in a room only twice the size of the kennel.
Impossible? Not if youre hypermobile apparently lmao. #heds
#hEDS ? is this a subluxation? Ever day and night my shoulders do this and I always thought it was just my skin folding weird but it occured to me I was pulling out of joint every night I sleep
And to Barry, my family, caregivers, Stacia, donors, friends, and everyone following along: thank you. ๐
#LongCOVID #MECFS #POTS #hEDS #MCAS
Na bitte! Geht doch! Ein Talk auf dem 4th Canadian Symposium on Long Covid.
https://t.co/KENFgqRHps
Wann auch hier in Deutschland?
#LongCovid #MEcfs #hEDS #EDS #Marfan #connectivetissuedisorders #CTD
ใจใผใฉในใใณใญใน็ๅ็พค้ข็ฏ้ๅฏๅๅ
ไฟกๅทๅคงใ้ฝๅ
ใฎใฒใใ ็ง2้ขใง่จบๆญใใใ
ไปใฏ้ฝๅ
ใฎใฒใใ ็งใจใชใฆใใ่ ๅ็
ๅ
็งๅ
ผไปปใฎๅ
็ใซๅฎๆ็ใซ่จบใฆใใใฃใฆใ
ๆฌๆฅใฎไฝใฎไป็ตใฟใๅใใไฝฟใๆนใ้ข็ฏใซ่ฒ ่ทใชใๅไฝใซๅใๆนๆณใๅฐ้ใซใใฆใๅ
็ใฎใชใใใชใ้ ๅผตใ๐ชใ#hEDS
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