Top Tweets for #hiddenillnesses
13/
Conclusion:
“We should not underestimate the power of doctors saying ‘I believe you’ to patients with multiple invisible symptoms, and ‘I am sorry for what has happened in the past’ if they had a difficult road to diagnosis. (contd).”
#invisibleillnesses #hiddenillnesses
⚠️13 years 4 days ago my life changed. 13 years ago I was having my last drainage tube removed from my throat.
This was the start of my journey to becoming the me of today. It took weeks for me to be able to move my head, it took months for my voice to return! #hiddenillnesses
14/
"It’s discouraging and isolating, especially when you feel that you can’t make plans simply because you do not know that you’ll be able to carry them out"
#DynamicDisability #chroniclife #hiddenillnesses #invisibleillnesses #Spoonies #Spoonie #ChronicallyIll #PwME #PostCovid
2/
“Like Richard, many report trying to hide their symptoms by pushing themselves to work despite extreme pain and exhaustion as a means to avoid the negative judgment. As he puts it, he felt it necessary “to prove I was not a malingerer.’”
#invisibleillness #hiddenillnesses
@livinlavidalopo @raredisease This is so frustrating. #awareness is key. Others shouldn’t assume they understand the trouble anyone faces. They are called #hiddenillnesses for a reason!
Epilepsy is a common comorbidity in people with learning disabilities, many are at risk of SUDEP. Please share to raise awareness #SUDEP #EpilepsyAwareness #LearningDisabilities #HiddenIllnesses
Today is #SUDEPActionDay! 💜 💟 💜
There’s an increase with the diagnosis of #epilepsy which means there could be a rise of sudden unexpected death in epilepsy (#SUDEP).
For more information, contact AOE or a local epilepsy foundation in your area.
#SUDEPActionDay2022 #OCT19
"Things Not to Say to People with Invisible Illnesses" (Feb 2022) by @miss_diagnoses
https://t.co/7XXrNqlPa7
#hiddenillness #invisibleillness #hiddenillnesses
#invisibleillnesses #chronicillness
"3 Reasons Why An Invisible Illness Is More Dangerous: Invisibility presents extraordinary obstacles and risks depending on who is blind to your illness" (from 2016)
https://t.co/qVGqtXG73m
#hiddenillness #invisibleillness #hiddenillnesses
#invisibleillnesses #chronicillness
So here we go again! After its success in 2021, we are running a second edition of the #Diversity and #Inclusion (D&I) Festival! This year we will be learning about #UnconsciousBias, #HiddenIllnesses, #Disabilities, #ToxicMasculinity and #Burnout. #diversityandinclusion
13/
“To all my healthy readers, please know that you will only ever see a spoonie when they are well enough to be seen.”
#energylimitingchronicillness #ELCI #Spoonie #Spoonies #invisibleillnesses #hiddenillnesses
11/
“Even now with a diagnosis, I am forever having to justify myself to people because my illness and pain is invisible” - @Chr0nicFeminist
#hiddenillness #hiddenillnesses #invisibleillness #invisibleillnesses #chronicpain #chronicillness
One of my best memories watching Mork & Mindy (showing my age now)
You don’t know what is going on in another’s life -
Be kind!❤️
#mentalhealth #kindness #begentle #bekind #walkinmyshoes #compassion #empathy #hiddenillnesses #bepositive #mindfulness #meditation #beyourbestself
‘Everyone you meet is fighting a battle you know nothing about.
Be kind. Always’ - Robin Williams
#RobinWilliams #BeKind #AlwaysBeKind
#Fibromyalgia: does mindfulness help with pain and symptoms?
#ChronicPain #MindfulMeditation #meditation
https://t.co/wETpfOhIGE via @nikki_albert
Still a lot of work to be done to understand #Fibromyalgia
I try to stay positive & proactive & so important to have a support network around to to remind you to stop ✋
#fibroaware #fibromyalgia #chronicpain #fibrowarrior #fibrofog #IBD #exercise #hiddenillnesses #selfcare
#Fibromyalgia is much more complicated than just the debilitating, excruciating pain. #Fibro #ChronicPain
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