Top Tweets for #inflammatorychat
@MyHealthTeams π 2 more #socialnetworks: https://t.co/ENGeUo3Ujg https://t.co/AGlcmt4VJc #inflammatorychat #RareDisease #DigitalHealth
@BeingCharisBlog I was grateful for both the insight of others & a chat I could join bc time zones or later after the fact. I'll still use #inflammatorychat
I'm really sorry for anyone I'm letting down. #inflammatorychat is still a tool we can use for continuing fluid, open, vulnerable discussion
Friends, I need to discontinue #inflammatorychat. I'm not able to focus on myself as much as I need to. Please continue to use the hashtag!
Thanks @BeingCharisBlog & @CodaJen for another great #inflammatorychat I was stuck on a plane & sleep deprived, it's made my day, again!ππ€
@BeingCharisBlog A8 No, apat from my psych, he sees the value/benefits. PCP, etc don't take wholistic view, so will never get it
@CodaJen #inflammatorychat
@BeingCharisBlog A7 You are not alone, on the worst days/flares, even in the rarest illness, there are people who will talk/support you.
#inflammatorychat
@BeingCharisBlog A6 No, I wouldn't know where to start, illness wise, too many tomchose from. I share info & advice freely if asked.
#inflammatorychat
@BeingCharisBlog @CodaJen Finally, "Internet time" can be hours, so don't get upset if you don't get a reply. Sleep, Drs, calls, 101 things happen.
#inflammatorychat
@BeingCharisBlog @CodaJen + unnecessary pain/struggling. Also, we're all different, so meds & foods work on us differently. Calling out/in is OK. β
#inflammatorychat
@BeingCharisBlog @CodaJen A5 don't be afraid to ask, for help, clarification, advice & know that your experience can help others avoid +
@CodaJen #inflammatorychat
@BeingCharisBlog A4 I'm trying to focus on being the help/support(mainly online) that I never had. Helping our chronic community.
@CodaJen #inflammatorychat
@BeingCharisBlog A3 Apart from my wife & kids if I'm honest, I only have 1 friend but he's great with any help. More than most.π
@CodaJen #inflammatorychat
@BeingCharisBlog @CodaJen Now bc pain, I am the sad, isolated, tired, rage filled, brain fogged nobody. Who cries at tweets, including my own. π’
#inflammatorychat
@BeingCharisBlog @CodaJen I know this is vague but it's true. I used to solve problems, both as a job & hobby. I was the "fix it" or crisis person!
#inflammatorychat
@BeingCharisBlog A2 This is like asking about a favourite child, but I'll go with control. I miss being in control of my life.
@CodaJen #inflammatorychat
@rbouchard007 @BeingCharisBlog Yes, both the new or increased symptoms/conditions & cycling thrie stages. Sometimes all in a single day. #sadbuttrue
#inflammatorychat
@BeingCharisBlog @CodaJen Agnger at my lack of control & often being unable to participate. Followed by realisation, "this is me now" & depression
#inflammatorychat
@BeingCharisBlog A1 I like to believe I'm accept/bargain but flares show me denial & then anger, often followed by depression!
@CodaJen #inflammatorychat
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