Top Tweets for #itpaware
My take on why Rare Disease Day is so important - https://t.co/ZekzwhNdds @GeneticAll_UK @rarediseaseapps @RareRevolutionM @RareDiseases @eurordis @rarediseaseday @rarepatientvoic @ITPSupportAssoc #RareDiseaseDay #ITPAware
Ahead of Rare Disease Day tomorrow, here's a piece of verse I wrote about this years theme of Equity - FAIR IS FAIR FOR RARE -https://t.co/nhy0NChPhY @GeneticAll_UK @ITPSupportAssoc @RareDiseases @rarediseaseapps @RareRevolutionM @rarediseaseday #RareDiseaseDay #ITPAware
Here's a video that I recorded last year about living with my ITP & Fibromyalgia - AUTOIMMUNE ADVENTURES -IT's A WRAP - here's the link -https://t.co/byWuD2rKtC @GeneticAll_UK @fibromyalgiast1 @fibro_fairy @Fibromyalgia_b @fibromyalgiaME #ITPAware #RareDiseaseDay
The latest from my ITP Blog looks at the importance of Vitamin D & why we should consider taking a supplement - https://t.co/DI3FFMWKvO
@ITPSupportAssoc @AnthonyH7 @PDSA_ITP @mervyn_t_morgan @GeneticAll_UK @eurordis #ITPAware #ITPAwareness #Health #VitaminD
February 28th 2025 - Rare Disease Day, here is the Rare Disease Day 2025 official video https://t.co/zfVeE782J7 via @YouTube @AnthonyH7 @mervyn_t_morgan @ITPSupportAssoc @PDSA_ITP @GeneticAll_UK @eurordis @RDD_UK #ITPAware
This is a helpful & informative video that anyone with any interest in ITP would benefit from viewing- How do I handle a patient with ITP Dr Drew Provan https://t.co/9izp3q0Md4 via @YouTube @ITPSupportAssoc @AnthonyH7 @GeneticAll_UK @mervyn_t_morgan #ITPAware #ITPAwarenes
A very helpful & informative presentation on Teenagers and ITP Prof Nikki Cooper https://t.co/9XLBzXoMt0 via @YouTube @ITPSupportAssoc @UKITPR @mervyn_t_morgan @PDSA_ITP #ITPAware #ITPAwareness
The @ITPSupportAssoc You Tube Channel has over 100 ITP related videos to view FREE on all the main topics surrounding or enigmatic condition - https://t.co/GPVwrh7GQs @mervyn_t_morgan @UKITPR @ITPResearch @GeneticAll_UK #ITPAware #ITPAwareness #RareDiseases
The latest edition of the UK Adult ITP Registry Newsletter is now available! 📰✨ Dive into the latest updates, research, and insights on the #ITP Registry. 📥🔗
https://t.co/1K7lBvI69y #ITPaware #Research #Healthcare #Newsletter #recruitment #study
We are pleased to share that we our first paper on AI & ML and its application in ITP, titled ‘Can
Machine Learning Assist in Diagnosis of Primary Immune Thrombocytopenia? A
Feasibility Study’ has been accepted and published.
https://t.co/ChoRhM4TVP #ITPaware #MachineLearning
Rare Disease Day 29th February. Here is my rare disease story - Me and My ITP - Genetic Alliance #rarediseaseday #itpaware @ITPSupportAssoc @ITPResearch @UKITPR @GeneticAll_UK @rarediseaseuk @rarediseaseday https://t.co/kkalQc585R
NO BAD BLOOD - A film by UK ITP Patients
We would like to thank all the ITP Patients featured in this film.
ITP Discussion Guide download from https://t.co/abS8Fb0h66
This film was co-created by SOBI and the ITP Support Association.
#NoBadBlood #ITPAware
https://t.co/Uqv5N18EnC
ITP September Awareness Campaign 2023 - 25th to 29th September - here is my take on why it is so important - https://t.co/lKjFuSTpTi #ITPAware #ITPAwareness @Patch1Purple @mervyn_t_morgan @RareDiseases @rarediseaseuk
Happy 10th birthday to my eldest! - Wrexham super fan Charlie!
I love you with all my heart son. Super proud of you, especially with everything you've been through with your ITP @ITPSupportAssoc So glad @Wrexham_AFC got a win for you last night too!. #itpaware #WxmAFC
Beautiful (albeit a bit rainy) evening for a river boat architecture tour!
#ITPConference2023
#ITP2023
#25yearsPDSA
#ITPaware
#ITPConference
The ITP community is back together to participate in ITP Conference 2023 and patients and caregivers alike are excited to learn and benefit from this shared experience! #ITPConference2023 #ITPaware #25yearsPDSA #WishYouWereHere
ITP Conference 2023 kicks-off today. We have a packed agenda of inspiring and helpful sessions and activities planned for ITP patients and their families with our world-renowned Medical Advisors. #ITPConference2023 #ITPaware #25yearsPDSA #WishYouWereHere
The ITP Support Association - ITP in Adults for anyone new to ITP here is a summary about this rare condition - #itpaware #itpawareness @mervyn_t_morgan @rarediseaseuk @UKITPR https://t.co/SVHhCvyxGh
The first presentation after our lunch break will be at 1.30pm with Professor John Semple discussing - Why do we get ITP ? #itpaware #itpawareness @mervyn_t_morgan @Patch1Purple @rarediseaseuk @UKITPR
At 11.50 we have Dr Cindy Neunert updating us on the ITP Paediatric Registry taking the place of Dr John Grainger who cannot be with us today as previously scheduled @mervyn_t_morgan @UKITPR @rarediseaseuk #itpaware #itpawareness
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