MyPurplePatch 💙

Living with ITP & Fibromyalgia. Author of My Purple Patch - Living with ITP. Lover of sport, music, threads, gardening, nature, reading & writing.

[MyPurplePatch 💙 @Patch1Purple]

My take on the woe is me faux Royal Tour to Australia by Harry and Meghanhttps://open.substack.com/pub/anthonyph/p/a-spoonful-of-sugar-doesnt-always?utm_campaign=post-expanded-share&utm_medium=web

[MyPurplePatch 💙 @Patch1Purple]

@MartinJCooke @AnthonyH7 @LFC @NFFC @SpursOfficial Me too Martin. It was a disaster waiting to happen. The same venue had 2 similar incidents in 1987 and till nothing was done.

[Anthony Heard @AnthonyH7]

37 years ago 97 people were killed unlawfully at Hillsborough. Warning signs were there in 1981 as I witnessed terrible overcrowding & chaos. Here’s my tribute to those 97 people who lost there lives. May they rest in peace. https://t.co/vBjUb0UGaQ @LFC @NFFC @SpursOfficial

[BBC Breakfast @BBCBreakfast]

'The demand for it is huge... There isn't anything like this in the North East'

Former England and Newcastle United striker Alan Shearer told #BBCBreakfast about the next ambition for the Centre he created 20 years ago to help people with complex disabilities and their families

https://t.co/ocxvEgXr6c

[MyPurplePatch 💙 @Patch1Purple]

@APainPrincess @AChVoice Yes it's relentless.

[Princess, The Tower @APainPrincess]

“The idea that ‘you will never recover’ is foreign to most people. When illness or pain wrecks you, you know that it will pass. This knowledge grants you some strength and comfort. But #chronicpain has no beginning or end.” https://t.co/ecT5OpeRBS @AChVoice #chronicillness

[MyPurplePatch 💙 @Patch1Purple]

@DaleRockell Brilliant - yes a perfect metaphor for Fibromyalgia. I also spotted something similar in Hay on Wye last September -

[MyPurplePatch 💙 @Patch1Purple]

SOUND AND VISION - My favourite music, books and TV from Q1 2026 including the new RAYE album just released - https://t.co/SYk04wp7l1

[Dr Rangan Chatterjee @drchatterjeeuk]

Do you snore… or live with someone who does?

It’s not something most of us think about but it could be quietly impacting how we feel during the day. Energy, focus, mood and even how stressed we feel.

In this weeks new episode of my 'Feel Better, Live More' podcast, James Nestor (@MrJamesNestor) shares why nighttime breathing might be one of the most overlooked pieces of our health, with over 60% of adults breathing through their mouths at night.

Sometimes, the signs are subtle. Feeling tired despite a full night in bed. Waking up groggy or being told you snore (even if you don’t quite believe it!).

This conversation is a powerful reminder that small, foundational habits can have a much bigger impact than we realise.

You can listen to our full conversation on how to change the way you breathe in episode 644 of my 'Feel Better, Live More' podcast.

[Dale Rockell @DaleRockell]

In this wks #blog post, #photography from a rare #sunny February day after a very wet start to 2026, and the dichotomy of #psychological wellbeing vs how #Fibromyalgia makes you feel.🤔
#fibrolife #menwithfibro #photographer #spoonie #chronicillness
https://t.co/JliJDaaLbP

[MyPurplePatch 💙 @Patch1Purple]

My take on the new blockbuster book by Tom Bower - REVENGE WAS VERY GOOD, BETRAYAL IS EVEN BETTER https://t.co/exlrpnBl3s #TomBower #Betrayal #Revenge

[Dale Rockell @DaleRockell]

In this week's post I share that despite knowing how to manage our #Fibro & #centralsensitivity symptoms, the unexpected will push you into a flare up.
#fibromyalgia #spoonie #fibrolife #chronicillness #menwithfibro
https://t.co/Nu1wm3pnIf

[MyPurplePatch 💙 @Patch1Purple]

My take on why Rare Disease Day is so important - https://t.co/ZekzwhNdds @GeneticAll_UK @rarediseaseapps @RareRevolutionM @RareDiseases @eurordis @rarediseaseday @rarepatientvoic @ITPSupportAssoc #RareDiseaseDay #ITPAware

[MyPurplePatch 💙 @Patch1Purple]

@TheBabalicious Brighter next week here - hooray !

[MyPurplePatch 💙 @Patch1Purple]

AN IMPORTANT RARE PLATFORM ANNOUNCEMENT - A FREE NEW SUITE of APPs for anyone rare or caring for rare check out the story of how it came about https://t.co/D8UTW9GnQN @GeneticAll_UK @rarediseaseapps @rarediseaseday @NoInvisibles @RareRevolutionM @ITPSupportAssoc #RareDiseaseDay

[Ataxia and Me CIO 1184030 @Ataxia_and_Me]

Great and proud to attend the #RareDiseaseDay Parliamentary reception in #CardiffBay, last night

#Networking, #Ataxia awareness and meeting #RareDisease colleagues and friends
#Equity for #Rare #health conditions

[MyPurplePatch 💙 @Patch1Purple]

@APainPrincess Wise words indeed. Thanks for sharing.

[Princess, The Tower @APainPrincess]

“You don't always have to pretend to be strong, there is no need to prove all the time that everything is going well, you shouldn't be concerned about what other people are thinking. Cry if you need to, it's good to cry out all your tears…” ~ Paulo Coelho

#MentalHealthMatters

[Genetic Alliance UK @GeneticAll_UK]

Last night the community united in Wales for #RDD2026 to celebrate progress, listen to powerful and inspiring voices, and champion equity for rare conditions. Find our new RDD2026 publications on our RDD 2026 web page 👉 https://t.co/1Ed6CwXOys

#Rarequity #RareDiseaseDay2026

[Genetic Alliance UK @GeneticAll_UK]

For #RareDiseaseDay2026, the University of Edinburgh's Institute of Genetics and Cancer is hosting 'AI and Rare Disease: Discovering the Missing Pieces' hybrid (online/in person) event from 17:30 on Wednesday 4 March 2026. Register your place: https://t.co/vRAVVVeAQr