Top Tweets for #letPatientsHelp
Not sure if #ThePatientDoctor has gotten to N.America yet, but @ePatientDave, I highly recommend! My copy is full of notes, I hope we can discuss one day @benbravery! ๐
Ben, you'll prob be interested in #LetPatientsHelp - Dave wrote it 10yrs ago.Helped me become #patientpartner
Such a great #labpat symposium today #PPI!
I'm so proud #SCAPE that I'm part of w/ @Chantal13131313, won best abstract!๐
I'm proud to have presented our #WorldCafe with @LaureBonnevie and thrilled to have seen our #FORCES project presented. #patientpartners #letpatientshelp!
Don't forget to check out the #posters before you leave! #labpat @iufrs
(conflict decl.: these are my 3faves as they're the 3projects I'm part of +they're the first scientific posters I contributed to create!) #SCAPE #FORCES #WorldCafe
#patientpartners #LetPatientsHelp #codesign
Back in plenary to hear about the 6 different breakout sessions #labpat #PPI @iufrs
Here are a few of the takeways of this afternoon.
There is no one "perfect way", but many possibilities, the main thing is to find "your way".
#patientpartnership #letpatientshelp! #codesign
Check it out @ReginaHolliday : today, I FINALLY get to wear my jacket #313, on my own stomping ground #Lausanne for a #PPI symposium.
People are intrigued and asking, and I love telling the #TheWalkingGalkery story! โค๏ธ #letPatientsHelp! #codesign #patientpartners
#labpat @iufrs
"#PPI actually improved #engagement, #implementation, #reach and #recrutement for the #SMILE project/study. It also improved clinical/economical outcomes." @SabinaDeGeest
More here: https://t.co/ziQdkMa7xn
#letpatientshelp! #patientpartnership #codesign
#labpat @iufrs
Published! ๐ฅณ #article #journal #cancer #letpatientshelp
"#Patients' #experiences with #cancercare in #Switzerland: Multicentre cross-sectional survey results" https://t.co/jjZRBBIbgV
Always a pleasure! @Chantal13131313 @EicherManuela @sacola00 @peters_solange @py_dietrich
Open-Source Automated Insulin Delivery in Type 1 Diabetes: the use of an open-source patient generated AID system resulted in 3 more hours a day in target glucose range than the use of a sensor-augmented insulin pump h/t @ePatientDave #letpatientshelp
https://t.co/a35WcudZSC
@stacy_hurt @neel_shah @seanduffy @AshleeWisdom @RasuShrestha @AcademyHealth @cvonraesfeld @MatthewZachary @Hassanah2017 @MightyCasey @mike_mitt โข Behavior change is everything, in improving health. Give a long thoughtful read to @BJFogg's great "Tiny Habits." It's a version of my #LetPatientsHelp line "Make it easy to do the right thing," aka in behavioral econ "Make the right choice the easy choice" #HDPalooza #NHPC22
@SusanLinOT @patientispard @texhern @VeroniqueRoger1 @bnallamo @TheLizArmy @PCORI This study design #fail โ๏ธโ๏ธโ๏ธ betrays a scientific paradigm that better knowledge is found by just asking what would be NICE to discover, regardless of feasibility.
Better to engage *with* those you're studying: "How might we figure this out, practically?"
#LetPatientsHelp
3. We're getting there, people are realising importance of #patients being part of the process for building better #Healthcare. end/
#LetPatientsHelp #coproduction #collaboration #partnership #empowerment #collectiveintelligence #experientialknowledge #nothingaboutuswithoutus
1/ Back to business. Just finished giving a 4 hour class on patient empowerment, partnership, co-creation, etc. to future #Pharmacists.
1. It's nice to be in-person and on-campus @unil again.
#ePatient #empowerment #LetPatientsHelp
Biomedical research should #LetPatientsHelp. Love this study by @gregorymmarcus but itโs a blunt instrument compared to the granularity of what @HugoOC was able to discover using his own data. https://t.co/sbWxYDCEdg
@kimbbellard Thanks, yes, Iโm writing about #LongCovid and the biomedical blind spot in my book. To borrow from @ePatientDave: #LetPatientsHelp
@GlobalHeartHub @ePatientDave Just watched this recording. So inspiring! Thank you for sharing.
Went on to watch Daveโs TEDTalk. Again so inspirational! #LetPatientsHelp โค๏ธ
Amazing accomplishment. Was a wonderful experience to be able to participate in the roundtable discussion. Congratulations!
#PatientEngagement #PatientsHaveLotsToOffer #LetPatientsHelp
I thought we were closer than this to the belief in #patients as partners ๐คท๐ผโโ๏ธ #Coproduction? This isnโt that hard!! @CF_Foundation @S4PM @savvy_coop #cysticfibrosis #patientsaspartners #wtfix #letpatientshelp
Come on @CF_Foundation this one should be a slam dunk! Are medical conferences (especially virtual ones!) not appropriate for patients and families? What do we think @TDICoproduction?!
Plz fix: https://t.co/SadYaWZZ9i
@jstclair1 @techguy Delta airlines did not have me manage my lost bags because they got more money, the app eliminated the costs for them and made me more satisfied. #efficiencymakesmoney too! #letpatientshelp #hitsm
@rickybloomfield @MyPatientLink Sadly, her father too was severely mismanaged but thru the app she was able to get his problem correctly identified to ease his intense pain in his final days. https://t.co/ghJ6Ot5caH
Note: in both cases this was data the providers had & were failing to manage. #LetPatientsHelp
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