Top Tweets for #mCAs
It's called Mast Cell Activation Syndrome (MCAS). The most frequent comorbidity of #MCAS is #POTS. Both POTS/#dysautonomia and MCAS are pathophysiologic mechanisms of #LongCOVID.
COVID-19 linked to increased risk of six allergic conditions in children and adults:
atopic dermatitis, asthma, food allergy, rhinoconjunctivitis, medication allergy, urticaria.
https://t.co/mcAxJ26RaZ
People keep telling me to fix my gut but I’ve got MCAS, react to everything and have no money. So wtf am I supposed to do? By the way it’s going, probably d!e of these illnesses in my early 20’s with barely any life. #chronicillness #mcas #mecfs
Tried a homemade low histamine flapjack with “safe” ingredients and it’s seemed to set up this awful, long MCAS reaction and now I’m reacting to everything and I feel awful. I don’t know what to do, I’m on meds and what about if I never improve :((((( #mcas
Een nieuwe stichting vraagt aandacht voor MCAS: mestcelactivatiesyndroom.
MCAS kan soms lijken op PDS.
https://t.co/S52thNzAiP
#PrikkelbareDarmSyndroom #MCAS #patiëntenorganisatie
Een nieuwe stichting vraagt aandacht voor MCAS: mestcelactivatiesyndroom.
MCAS kan soms lijken op PDS.
https://t.co/S52thNzAiP
#PrikkelbareDarmSyndroom #MCAS #patiëntenorganisatie
8/8 Where yours is coming from is a question for your own doctor, and the answer changes what is worth trying.
(Consult with your doctor before starting any new treatment.)
Follow @Covid_institute.
#LongCOVID #HistamineIntolerance #MCAS #GutHealth
I don’t think we can ever convince the people who don’t believe in this illness how real and horrifying it is. Even with evidence, I have people I know telling me it’s all my mental health. Genuinely how people can be so ignorant, I don’t know. #chronicillness #mecfs #mcas
Still gutted how sick LDN made me
:((( I had so much hope it would help. Meanwhile it turned my nails black and I felt the sickest I’ve ever felt. #chronicillness #me #mcas
Very promising. Don’t forget #MCAS. Connected to (if not underlying) all of the above mentioned diseases.
Thanks @Forbes for featuring the great work we’re doing @ChronicleBioAI.
There are exactly 0 FDA-approved therapies for the hundreds of millions of people suffering from diseases like POTS, Long COVID, MECFS or hEDS. We created ChronicleBio to change this.
By building the deepest dataset on these conditions and leveraging AI, we will understand what the biology behind the symptoms is. From there, we can map the right drugs to the right patients.
@fidjissimo @RenegadeRes @Forbes @ChronicleBioAI Very promising. Don’t forget #MCAS. Connected to (if not underlying) all of the above mentioned diseases.
@ClevelandClinic you make way too much $$ off me every year to justify this #Healthcare #CCF #ChronicIllness #POTS #hypermobility #mcas #mecfs #invisibleillness
https://t.co/WXM1qUoDIN
Ich schaffe es am Tag ca. drei Mails zu schreiben. Bin aktuell bis auf wenige Ausnahmen 22-23h/Tag bettlägerig. Die ein bis zwei Stunden außerhalb des Bettes verteilen sich dabei auf Nahrungsaufnahme, Körperpflege, Toilettengänge, etwas Balkonzeit im Sitzen.
Der Grund, weshalb ich noch hier bin: Ich möchte noch miterleben, dass sich für Betroffene schwerer multisystemischer Erkrankungen etwas zum Positiven verändert. Ich glaube nicht mehr daran, dass ich noch von Therapien profitieren kann, aber ich möchte meine naive Hoffnung, dass sich zumindest für die nächste Generation noch etwas verbessern kann, noch nicht zu Grabe tragen. Wenigstens versuchen will ich es. Jeden Tag. Drei Mails.
#MEcfs #LongCovid #Postvac #PoTS #MCAS #SFN #CCI #hEDS #Marfan #Lyme #FQAD #longlist
@fidjissimo @Forbes @ChronicleBioAI #MCAS with neuroinflammation from vascular permeability can be a driver of all of these in some patients. With effective blockade of an exuberant immune type 2 response, and tissue level blockers, some can get near total amelioration of symptoms. Ask me how I know.
Has anyone seen a SIBO specialist who understands MCAS in the UK? I’m living in stomach pain and debilitating symptoms everyday even on MCAS meds, so I suspect the SIBO underneath is fuelling it aswell. :(((
#mcas #chronicillness #sibo
Ich kann Veranstaltungen zu #LongCovid und #MEcfs, in denen nicht zumindest EINMAL die Komplexität der Situation erwähnt wird, namely:
#LongCOVID #PostVac #MEcfs #PoTS #MCAS #SFN #CCI #tetheredcord #compressionsyndromes #hEDS #Marfan #FQAD #Lyme #connectivetissuedisorders #longlist
... nicht mehr ernstnehmen.
Und ich halte es für ein katastrophales Versagen der Expert*innen, diese Zusammenhänge kaum bis nie zu thematisieren. Hinter diesen #-Kürzeln stecken Menschen mit echten Diagnosen, die keine Hilfe bekommen und nicht selten elendig vegetieren und/oder sterben.
I love Autumn🍂 I love the calm of it, the longing and pressure to be somewhere is lifted, and It's so comforting to feel as if I'm now like everyone else, just hunkering down for the winter.
#MEcfs #EDS #Dysautonomia #MCAS #Hashimotos #ChronicIllness
"Despite [her #ChronicIllnesses], @hospitalprncss writes with such eloquence, fairness and joy. Her #blog posts are #authentic and filled with #wisdom & I love how she’s always willing to consider #perspectives different than her own": https://t.co/GEM8k8Sgxt
#MCAS #ChronicLife
![AChVoice's tweet photo. "Despite [her #ChronicIllnesses], @hospitalprncss writes with such eloquence, fairness and joy. Her #blog posts are #authentic and filled with #wisdom & I love how she’s always willing to consider #perspectives different than her own": https://t.co/GEM8k8Sgxt
#MCAS #ChronicLife https://t.co/CP3ZtnQRFv](https://pbs.twimg.com/media/HTjifJbXAAA7VEV.jpg)
#MCAS is my current leading theory why I'm still waking up with bad histamine dumping and all this gut irritation
it could be the water, my coworker said
I'm suspecting one of my other meds
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