Top Tweets for #managingGD
Thank you to everyone who visited us at the Gaucher Community Alliance Patient & Family Conference! We appreciated the opportunity to listen and learn from every person who spoke with us.
#GaucherDisease #ManagingGD #RareButNotAlone

The AVROBIO team joined @NGFCanada for a virtual walk in October to recognize #GaucherAwarenessMonth, proving that raising awareness for #GaucherDisease knows no borders!
#GaucherAwarenessMonth #ManagingGD #RareButNotAlone

Si presentas algunos de estos síntomas, busca acompañamiento médico que favorezca el diagnóstico de tu enfermedad o comunícate con nosotros al número (601)8050913🤓🤓🤓
👉👉Actúa a tiempo
#jueves #salud #EnfermedadDeGaucher #IGD2022 #managingGD #healthy #healthcare

Gladys Victoria, the mother of Type 3 patient Nathaly Alessandra from Peru, talks about the importance of asking for help and support.
#IGD2022 #managinggd #rarebutnotalone

Gladys Victoria, madre de Nathaly Alessandra, una paciente de tipo 3 de Perú, habla de la importancia de pedir ayuda y apoyo.
#IGD2022 #managinggd #rarebutnotalone

Gustavo, un paciente de tipo 1 de Argentina, habla de la importancia de la disciplina en el manejo de la enfermedad de Gaucher.
#IGD2022 #managinggd #rarebutnotalone

Brenda Elizabeth Aragón Reyes, una joven paciente de Gaucher de México, comparte sus pensamientos sobre la vida con esta enfermedad ultra rara.
#IGD2022 #managinggd #rarebutnotalone

Brenda Elizabeth Aragón Reyes, a young Gaucher patient from Mexico, shares her thoughts on life with this ultra-rare disease.
#IGD2022 #managinggd #rarebutnotalone

James Cox says that controlling his Gaucher disease rather than letting the illness control him has been key. #rarebutnotalone #IGD2022 #managinggd
Blake, a 76-year-old Gaucher patient from the UK emphasises the importance of treatment and staying positive in managing Gaucher disease.
#IGD2022 #managinggd #rarebutnotalone
Con subtítulos en español https://t.co/nRqHZrVQwK
https://t.co/Z9uSPpWJm0
Hoy nos unimos al Día de la #EnfermedadDeGaucher. La enfermedad hereditaria, de depósito lisosomal más común y poco frecuente que tiene una prevalencia de 1 de cada 100.000 habitantes en península ibérica.
#IGD2022 #managingGD #RareButNotAlone #DondePocosLoSonTodo

Cristina Font from Spain talks about the importance of diagnosis in being able to move forward.
#IGD2022 #managinggd #rarebutnotalone

Cristina Font, de España, habla de la importancia del diagnóstico para poder avanzar.
#IGD2022 #managinggd #rarebutnotalone

The focus of IGD2022 is the management of Gaucher Disease, focusing on the whole person beyond treatment for the physical symptoms.
The community is encouraged to follow the hashtags #IGD2022, #managingGD and #RareButNotAlone on Facebook, Instagram, Twitter and Linkedin.

¿Conocías esto sobre la enfermedad de Gaucher? Síguenos en @acopelcomunica para continuar conociendo más sobre cada patología.
#EnfermedadDeGaucher #viernes #DatosCuriosos #IGD2022 #RareButNotAlone #managingGD #friday

International Gaucher Day is tomorrow. Keep an eye on Twitter for inspirational stories from patients and their carers sharing how they manage their Gaucher disease, and please share them with your followers. Thank you!
#IGD2022 #managinggd #rarebutnotalone

This International Gaucher Day (IGD), October 1, the community is focusing on a wholistic approach to managing life with this debilitating disease. Freeline's people recognize IGD and are dedicated to working towards a new therapy.
#IGD2022 #managingGD #RareButNotAlone
International Gaucher Day is one week from today. Join us next Saturday as Gaucher patients and their carers from around the world share their stories about living with and managing this ultra-rare disease. Share your story using the hashtags #IGD2022 #managinggd #rarebutnotalone

Join us on Saturday 1 October to mark International Gaucher Day (IGD). Here is a sneak preview. James Cox speaks about the challenges he faced as a newly diagnosed patient and how the IGA's Go With Gaucher initiative helped him. #rarebutnotalone #IGD2022 #managinggd
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