Top Tweets for #mbNF
May 17 is Neurofibromatosis World Awareness Day.
@MBNFSupport MB Neurofibromatosis Support Group provides support, promotes awareness by educating the public, and aids in funding research to improve treatment & ultimately find a cure. #EndNF #Neurofibromatosis #mbNF
Chloe’s mom said, “You’d never know from looking at her that she has all this going on. She lights up every room she walks into”. NF varies so much and each case is unique.
#rarediseaseday2024 #shareyourcolours #MBNF #neurofibromatosis #Manitoba #supportgroup
In honour of Rare Disease Day. 💙💚 We asked our NF Heroes in Manitoba to share a photo & short message of their challenges and triumphs. We will post a few today!
#rarediseaseday2024 #shareyourcolours #MBNF #neurofibromatosis
Check out these awesome #MBAlumni meet ups! Executive Director @kfox75 met with Alumni Representative at-large @jszolwinski for lunch, and #MBNF Trustee @jonibc met with @lesliepagee at the Women Leaders in College Sports Convention in Kansas City! #MortarBoard #leadership
Hannah Giannini is one of this year's #MBNF Fellows! Initiated in 2020 at @UofSouthAlabama, she volunteered with @myED4life and at the Mitchell Cancer Institute assisting families through treatment. She's a member of @phikappaphi and is pursuing a M.D. and a Ph.D. at @VUmedicine.
What an amazing day! Thank you @cityofwinnipeg for helping us with our Neurofibromatosis Awareness Day! New families and friends were connected! NF awareness and support helps makes this crazy disorder a little easier to live with. 💙💚🌎
#EndNF #NFAwareness #makeNFvisible #MBNF
Thank you to Mayor @RickChrest and @CityBrandon for proclaiming World NF Awareness Day! 💙💚🌎
#endNF #MBNF #MakeNFVisible #neurofibromatosis
It’s here!!! Don’t forget to share about NF today. Wear some blue and green to be seen! The Winnipeg sign will shine and Brandon’s Mayor @RickChrest will be signing a Proclamation. @WinnipegMayor #NFawareness #blueandgreen #MBNF #EndNF #Manitoba #Neurofibromatosis
We are excited to announce that as our NF Awareness Month approaches, the Winnipeg Sign will once again be lit up blue and green on May 17th. 💙💚
#MBNF #EndNF #ShineALightonNF #BlueAndGreen
Hoping your baskets overflow with joy and your home is filled with happiness today. Happy Easter friends! #HappyEaster2022 #MBNF #Blessings
We helped purchase CinemaVision to let children watch a movie during their scan. I wish this was available for purchase, we’d gift our young friends who go through annual MRI scans this set! #EndNF #mbNF #MRI #scanxiety #Lego #Manitoba @CHFManitoba
Getting an MRI scan can be scary, especially if you're young.
Together with @LEGOFoundation, we’re supporting a volunteer-led project to take the fear out of MRIs for children. Find out more and how hospitals can apply for their own LEGO MRI Scanner - at https://t.co/oA2gBtiLmk
#happyinternationalwomansday to all the lovely ladies that overcome barriers everyday. Your passion to help those living with #neurofibromatosis does not go by unnoticed. #mbNF
Meet Hannah Clipp, a 2021-2022 #MBNF Fellow! She was initiated into the Laurel chapter @WestVirginiaU in 2015. She is the president of the Mountaineer chapter of the @audubonsociety and is pursuing a Ph.D. in forest research science. @AllThatWildlife #MortarBoard
TONIGHT at 7-8 p.m. Eastern is the MBAA’s financial literacy workshop! Learn how to handle your finances with tips and tricks from @CharlesSchwab & Co.! We hope to see you there! Register here: https://t.co/JGNJirw6On #MortarBoard #MBAlumni #MBAA #MBNF
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