MBNF.ca

Manitoba Neurofibromatosis Support Group empowers their friends with NF and raises awareness. 1 in 3000 affected; tumour growth and other symptoms. 🇨🇦

[Ꮮίᴢ D’Alicandro @liz_dalicandro]

#nf1 #neurofibromatosis #endnf #borNaFighter

[Children's Tumor Fdn @ChildrensTumor]

Did you know that NF occurs in 1 in every 2,000 births—impacting over 4 million people worldwide? This #NFAwarenessMonth, learn and share these NF facts! Visit https://t.co/nmJuZ2yKET to learn more!
#EndNF #MakeNFVisible

[Children's Tumor Fdn @ChildrensTumor]

NF1 affects 1 in 2,500 births and often shows up in childhood. Signs include café-au-lait spots, neurofibromas, and learning challenges. There is no cure yet but knowledge is power! 💙💚 Share this infographic & visit https://t.co/nmJuZ2yKET to learn more!
#EndNF #MakeNFVisible

[Children's Tumor Fdn @ChildrensTumor]

Lainey just five years old when she was diagnosed with NF1 and 2 optic gliomas. Now 8, she’s proudly spreading awareness and inspiring others about her condition. 💙💚
Read Lainey's Story of NF here: 🔗https://t.co/7hDColDrj9

#EndNF #MakeNFVisible

[Cure NF2 Foundation UK & Europe @nf2biosolution1]

Following the AI doll trend, we uploaded a picture of a person with facial palsy to reflect our NF2 community. We tried 3 photos & each time it corrected the face and levelled out the smile
We are funding life changing research so that NF2 tumours don't cause facial palsy
#endNF2

[Children's Tumor Fdn @ChildrensTumor]

👋Meet Sarah Morrow, a recent Young Investigator Award recipient! Her research focuses on MPNST tumor growth in NF, bringing us closer to personalized treatments for patients. Learn more here: 🔗https://t.co/y0kCc5ENrw

#EndNF #MakeNFVisible

[Children's Tumor Fdn @ChildrensTumor]

Catherine was diagnosed with NF at 6 months and has met every challenge with strength and heart—but she’s never let them define her growing up. She’s a proud graduate, animal lover, and dedicated shelter volunteer. Read more: 🔗 https://t.co/Z1KyNIoLEY

#EndNF #MakeNFVisible

[CureNFwithJack @curenfwithjack]

Neurofibromatosis (NF) is classified as a rare disease. While NF affects 1 in 2,500 people, funding for research and treatment remains scarce. This Rare Disease Month, let’s change that. Donate, share, and advocate to help find a cure for NF and all rare diseases!
#EndNF

[CureNFwithJack @curenfwithjack]

Big thanks to the @ChildrensTumor for their incredible Adult Guide on Living with NF! 🙏 Their support and resources make a world of difference for those navigating life with Neurofibromatosis. Click the link in our bio to download a free version today!

#CureNFwithJack #EndNF

[Children's Tumor Fdn @ChildrensTumor]

Explore Dr. Yang Hou & the DEaR Lab’s work on cognitive health and NF1. Dr. Hou is also seeking participants for two exciting studies: SMART-NF1 & NF1 Cognitive Aging. 🔗https://t.co/2X96wSaxlR

🎥 Watch Dr. Hou’s NF Knowledge Webinar here: https://t.co/uhEAiIixXq

#EndNF

[Children's Tumor Fdn @ChildrensTumor]

⏳ Early bird rate for the NF Summit ends Feb. 28! CTF’s annual NF Summit brings together NF patients, families, researchers, clinicians, and advocates to learn, connect, and find renewed inspiration to fight NF.

🔗 Register now: https://t.co/NX0rztN8Ij

#EndNF #NFSummit

[Children's Tumor Fdn @ChildrensTumor]

🧠Join us for the next NF Knowledge Series Webinar: Gomekli (mirdametinib), the Latest FDA-Approved Treatment for NF1 tomorrow, February 21 at 12:00 PM ET!

🔗 Register now: https://t.co/BePkC9l46j

#EndNF #Webinar

[Adam Pearson @Adam_Pearson]

Huge shout out to @ghd for the hairdryer I was #gifted at the @BAFTA Awards. Mummy P has already claimed it are her own. So I guess I’ll see you next year eh?

Thank you all for having me at #BAFTA - it was an absolute blast and a real moment / achieve for this Croydon kid!

[Children's Tumor Fdn @ChildrensTumor]

FOR CLINICIANS: Join us for a Continuing Medical Education (CME) Lecture Series for Neurofibromatosis Type 1- Related Plexiform Neurofibromas

Tuesday, February 18, 2025
3PM PT / 6PM ET

Click here to register: https://t.co/GLARhr182s

[MBNF.ca @MBNFSupport]

@NicoleRayyMusic Happy Halloween from your friends in Manitoba!!!

[NewsTok: Short Videos News App, Multiple Languages @newstok_ai]

- British actor Adam Pearson, 39, co-stars in "A Different Man."
- Pearson, who has neurofibromatosis, plays Oswald, a character with confidence despite the con ...

Read more → https://t.co/LhdlAlEunJ

#entertainment #movie #neurofibromatosis

[Nerve Tumours UK @NervetumoursUK]

💙 @SouthwarkNews highlights Oliver Bromley's experience of discrimination due to NF1. Watch his powerful interview and learn more about his story. 🎥📰 Read more: https://t.co/nFLcVNnJXb #NF1Awareness #SouthwarkNews #EndDiscrimination #StandWithOliver #Neurofibromatosis

[Children's Tumor Fdn @ChildrensTumor]

With @A24's #ADifferentMan bringing NF into the spotlight, we’re here to make sure the full story is told, plus answer the question you might be asking: should I go see the film?

Click to read our close-up on “A Different Man”:

https://t.co/MVAPHHoXM3

#EndNF #makeNFvisible

[CureNFwithJack @curenfwithjack]

NF affects three times more people than muscular dystrophy, cystic fibrosis, Huntington’s, and Tay-Sachs combined—yet it’s still largely unknown. Invite your friends & family to follow us! #EndNF #CureNFWithJack #NFAwareness

[MBNF.ca @MBNFSupport]

Way to go Amit! You are an amazing ambassador! Thank you for sharing your challenges and staying positive, you have many friends who understand the challenges of NF in your corner! #endNF #resilience #NFstrong

[Face Equality International @FaceEqualityInt]

"You have to keep telling yourself you're good enough."

Amit Ghose, one of our FEI Ambassadors who lives with #Neurofibromatosis type 1, shares some advice on developing your #Confidence .

What are some of the habits you have formed to boost your self confidence?👇