Top Tweets for #NFstrong
Dueling Pianos. Big Energy.
One Powerful Cause.
When: July 17th 2026
Where: Woodstock Arts Event Green, 111 Elm St., Woodstock, GA, 30188
Time: 5:30-9:30 pm
https://t.co/QnSJJE497S
#neurofibromatosis #NFnetwork #NFstrong #georgia #CharityConcert
NF is not contagious.
Contact with a person who has NF cannot transmit the condition.
This NF Awareness Month, help us spread understanding, support, and hope for everyone affected by NF.
#ConnectingNF #NFAwarenessMonth #Neurofibromatosis #NFStrong
Meet Claire ๐ At just 3 years old, sheโs facing NF1 with incredible bravery, strength, and joy. Despite brain tumors, vision challenges, and chemotherapy, Claire continues to shine bright and inspire everyone around her. #NFAwarenessMonth #NFStrong
๐ Happy NF Awareness Month! ๐
All month, we'll share important facts about neurofibromatosis (NF).
This NF Awareness Month, help us spread understanding, support, and hope for everyone affected by NF.
#ConnectingNF #NFAwarenessMonth #Neurofibromatosis #NFStrong
Massive #CharityTuesday shout-out to Wayne, completing the @nycmarathon with just 5 weeks training, amazing effort! Huge thanks to Wayne + all those who've sponsored him, you can find his page + more of his story at: https://t.co/Zu3pSYjNVF
#NFSupport #NF1 #NFStrong ๐ช ๐ ๐ ๐ฝ
NF is often misunderstood. Letโs set the record straight.
45% of people with NF experience social isolation.
36% have been bullied.
Awareness matters. Together, we can change this. ๐
https://t.co/lLP6tLcdR6
#CureNFwithJack #NFStrong #EndNF
@nfnetwork @Grungekid84 ~1k in/~4k in
I know my shirt says โDonโt Give Upโ but itโs โon a Dallas skyscraper rooftop looking for a bombโ hot here today-iykyk!
Scroll up if you still wanna donate to the @nfnetwork #NFStrong 5K. #ScullyCoffee4NF
We are so honored to have this extraordinary person dedicating his professional life to improving the lives of all affected by NF. Thank you Dr. Gutmann!
Join us in celebrating this well-deserved recognition!
#CureNFwithJack #NFResearch #NFStrong
To every father, stepfather, grandfather, and father figure in the NF communityโthank you. We see you. We honor you. And weโre grateful for your love, your strength, and everything you do. ๐๐
#FathersDay #EndNF #NFStrong #MakeNFVisible
Weโre excited to share that our Co-Founder & CEO, Beth OโBrien, will be speaking on a panel at the CTF Summit! This panel kicks off the NF Summit. View the full agenda at https://t.co/JhB3AFFCot
#CureNFwithJack #CTFSummit #NFStrong #collaboration
May 1 marks the beginning of Neurofibromatosis (NF) Awareness Month!
We continue to announce a series of events happening throughout the month with our spotlight on the Kansas City #nfstrong walk that caps off this month of awareness! https://t.co/Mm9cy0C4xM
Weโre extremely grateful for doctors like Dr. Walker, whose compassion, understanding, and unwavering dedication to finding a cure for NF1 give our community hope and strength every day.
#CureNFwithJack #NFStrong #TogetherForACure
Thanks to The Bar Method Tampa, we just received a generous donation for our #NFStrong Orlando Walk! Because of everyone's generosity, we are able to offer things like next weeks educational meeting in Orlando! https://t.co/yIIA03GLfo
Trick or Treat! Raising funds for NF is Sweet! ๐ญ
If you haven't already signed up for the Memphis #NFStrong Walk/Fun Run on November 10, you are not too late! We are less than two weeks away!
Register now... https://t.co/lbWCKoSIoT
Way to go Amit! You are an amazing ambassador! Thank you for sharing your challenges and staying positive, you have many friends who understand the challenges of NF in your corner! #endNF #resilience #NFstrong
"You have to keep telling yourself you're good enough."
Amit Ghose, one of our FEI Ambassadors who lives with #Neurofibromatosis type 1, shares some advice on developing your #Confidence .
What are some of the habits you have formed to boost your self confidence?๐
Junior infants Vs 6th class. The years have flown by.
As he awaits scans and operations again!! he will miss a lot of his final year of primary school. He faces a lot with Neurofibromatosis but he does it all with a smile. So proud of him.
#NFstrong #NFawareness
He thought I couldn't get Phryge for his birthday. He didn't know I had him ordered. Someone is a very happy boy today.
Waiting for the Paralympics to support @thomasyoungt38
An inspiration to what can be achieved living with NF1
#NFstrong #NFWARRIORS
Orlando, your #nfstrong walk is around the corner! Did we mention that we are celebrating 10 years? Make sure to sign up early to get the early bird pricing. Sign up here https://t.co/8Cwi5OChnC and let's prepare to make some strides for a cure!
Tune into an inspiring discussion with John Manth on Decoding NF as we explore the profound impact of service dogs for those with Neurofibromatosis. John's insights and experiences are truly enlightening. Listen today at https://t.co/8FsNnDwIMf! #DecodingNF #ServiceDog #NFStrong
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