Top Tweets for #mekids
Der (kleine) Elefant wird
nun wohl häufiger gesehen –
aber leider oft noch fehlgedeutet.
#MECFS #MEKids #MECFSKids
#PEM #PEMistnichtverhandelbar

#MEkids & #LongCovidKids need medical care & treatment, not removal from their families.
“New research shows that FII has been substantiated only in four serious case reviews since 2010.. Yet a snapshot survey.. 2023 found that almost 400 families reported having been accused..”
New: the hundreds of parents being investigated for child abuse when they seek help or diagnosis for their sick children
https://t.co/yfFZ4bgkNB
Eure Expertise ist gefragt!
Kinder+Jugendliche mit #LongCOVID (akut od.genesen), Eltern,Angehörige, Behandelnde, Pflegepersonal, Lehrer, Erzieher,Trainer,Vertreter der Krankenkassen+des MDKs sind eingeladen-
und #MECFSKids selbstverständlich auch!
#MECFS
https://t.co/BwZnWknbnK

🪧 Am Donnerstag, dem 17. Oktober 2024, ab 14 Uhr. Wir brauchen euch, seid dabei, setzt ein eindrucksvolles Zeichen für die Betroffenen!🆘
@BerlinBuyers #Liegenddemo
#berlin #b1710 #pleaseHelpPWme #severeME #verySevereME #meKids #Longcovid #postvac
@NichtGenesen @NGKGermany
👆Deshalb brauchen wir dich als Stellvertretende/n, jetzt!
Komme anstelle der Betroffenen zu unserer Demo vor das Bundesministerium für Bildung und Forschung in Berlin / Kapelle-Ufer.
🙏🏻💙 Danke!
#pleaseHelpPWme #severeME #verySevereME #meKids #Longcovid
#LiegendDemo
☝️Weltweit 17 Millionen, in Deutschland, mindestens eine halbe Million Betroffene, für die ein normales Leben zur Utopie geworden ist. ⬇️
@BerlinBuyers
#pleaseHelpPWme
#severeME
#verySevereME
#meKids
#Longcovid
#LongcovidKids
#LiegendDemo
#bmbf
#b1710

Kommt und unterstützt unsere Aktion.
#pwME
#meKids #MECFS
#Longcovid
#LongcovidKids #PostVac
#LiegendDemo #Anerkennung #Forschung #Versorgung
@millionsmissing
@dg_mecfs
@me_cfs_portal @pvs_germany @FatigatioeV @longcoviddeutschland @nichtgenesen
@nichtgenesenkids
The worst thing you could do is give someone that is dangerous power over a child but that’s exactly what happens in family courts all the time.
#bloodisnotthickerthanabuse
Happy #mothersday for all mothers but especially the ones mothering to #mekids and the ones having ME. #MEAwarenessDay
Happy Mother’s Day to you too, who have had to witness their child suffer...
Have you ever pulled your child back from the brink of death and felt the same indescribable desperation each time, with the same intensity? I have.
Have you ever had to answer your child’s question, "Mom, am I going to die?" I have.
Are you living in fear of losing your child every second of your existence? I am.
Have you ever been ignored, dismissed, or invalidated while experiencing all the feelings I described over and over every day? I have.
And I am not alone. We are the mothers of an unimaginable dystopian world. We are the mothers of the #ME #LongCovidKids who once had a healthy and happy child as you have right now. We do exist, hoping you don’t have to join us one day. #MEAwarenessDay #MothersDay #mothersday2024 #HappyMothersDay2024 #HappyMothersDay
Erschütternd, unglaublich und traurige Realität...
https://t.co/50wdLWsV0b
#MEkids #MECFS #severeme #verysevereme #blueroses #pwME #canyouseeMEnow #millionsmissing
@Talmandaniel @pempodcast23 Where will the next generation of brave Paediatricians, able and willing to see #MEKids, come from?
#MEAwarenessHour #MEawareness #MEcfs #MEkids
Mittwoch 21:00-22:00 Uhr MEcfs Awareness Hour
Time to shine
weltweit verbunden jetzt
Spot on MEcfs!
Wir brauchen Aufklärung!
Wir brauchen Forschung!
Wir brauchen Versorgung!
Wir brauchen wieder Leben!

Ja man sollte sich immer daran erinnern was war.
Jetzt scheint die CDU ja aufzuwachen. Jedoch ist das Fordern in der Opposition immer leichter.
Wir brauchen JETZT eine überparteiliche Zusammenarbeit aller demokratischen Parteien zum Wohle #pwME #pwLC #pwPV #Longcovidkids #MEkids
Dieser Dude👇 hat übrigens 2020 unsere Meldungen zu #LongCovid ignoriert, und die Bevölkerung nicht informiert. Zudem lag ab 2020 Medikamenten-Liste der
@ChariteBerlin im damals @cdu-geleiteten Forschungsministerium vor: NICHTS ist passiert.
Danke @jensspahn
Danke @AnjaKarliczek

I dont have kids. Is this normal?
I dont remember ever being acutely ill for 2.5 months straight as an adult though
I cant see how this is good for kids
Seriously worried for the future
#LongCovidKids #MEkids

⚠️At the moment 🇬🇧 #LongCovidKids have less protection than #MEkids due to the NICE guidelines
⚠️Without a serious sea change in research, guidelines & culture #LongCovidKids face a difficult future
⚠️Serious lines in sand need to be drawn
⚠️
Interview with #MEcfs expert Dr Nigel Speight who has years of experience working with children with ME
Hearing of the truly horrifying ways that children with ME are treated is heartbreaking.
So much has to change for this to stop.
#MedTwitter
https://t.co/LiBei8GUqo
Følelsen når ens mareridt bliver til virkelighed 💔
“Kids are suffering. But nobody seems to be listening or care that much."
@BirkelundKlaus hvad gør DK for #LongCovidKids og #MEKids?
#covid19dk #sundpol #senfølger #dkmedier #sundhed @kirsten_nilsson
https://t.co/VhHTcW6uAY
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