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@mindsofepilepsy I say that "It's bad until it isn't" and I just tell myself it will pass. The feelings of hopelessness and nausea will pass. #mindsofepilepsy
Does anyone taking tegretol and/or lamictal have had problems with their bones as a side effect of meds?
#mindsofepilepsy
Does anyone else suffer hypothermia due to long time use of epilepsy medication? And terrible migraines? Put obviously canโt stop the medication ๐ #mindsofepilepsy
@mindsofepilepsy are nervous around you ๐ my closest friends are great at dealing with my seizures now - it still upsets them to see it of course, but they know everything they should do and it helps a lot ๐ I really hope it works out ๐ (2) #mindsofepilepsy
One of our Canadian followers has just shared her experiences of epilepsy and mental health on our @mindsofepilepsy Instagram page as part of #BellLetsTalkDay - a Canadian mental health initiative โบ๏ธ @Bell_LetsTalk #mindsofepilepsy
Just incase it might help, I talk about epilepsy and mental health in my first ever radio interview, which you can listen to here: https://t.co/qZO54cu4wB ๐ @mindsofepilepsy #mindsofepilepsy #epilepsy #mentalhealth #awareness
@mindsofepilepsy You are most definitely not alone, promise ๐ if you have Instagram, follow @epilepsyposi and the epilepsy charities etc. Through those pages, Iโm sure so many people will be happy to talk with you, including me ๐ (my Insta is georgiepeterson) #mindsofepilepsy
@mindsofepilepsy (2/2) can still do, just in a modified way or with a well-thought-out plan ๐ you can enjoy your life with a condition like this, you just have to be more careful. Take your time, find out as much info as you can, and talk to people who understand ๐๐ #mindsofepilepsy
@mindsofepilepsy (2/2) establish a basic daily routine if you havenโt already - that might help a bit โบ๏ธ there is a lot of coping with anxiety advice out there! Easier said than done, but try not to be down on yourself - youโre doing the best you can ๐ #mindsofepilepsy
@mindsofepilepsy I still struggle with sleeping issues, but I think listening to your body is key, especially after seizures. I used to fight against taking naps, but now I know Iโll feel better. And especially if Iโve had clusters, I know Iโll still sleep in the night too โบ๏ธ๐ #mindsofepilepsy
@saaimali_ @mindsofepilepsy I just realized it's 19 years & a half... how fast the time passes...
I just can say that through the time you learn to cope with everything, don't let others say how it should be or you should feel though, just learn by yourself through your personal experiences #mindsofepilepsy
@mindsofepilepsy Definitely talking about it. Itโs so important for you and for others - plus, itโll help them to understand. Writing or using any other creative platforms to express yourself. Knowing that itโs completely okay to be feeling the way you are ๐ #mindsofepilepsy
@mindsofepilepsy Avoiding triggers such as lack of sleep, talking to people about epilepsy, but otherwise mostly just acceptance. Learning to let go, accepting that it isn't my fault, and trying to stay positive. ๐ #mindsofepilepsy
@mindsofepilepsy Take things easy on days when your mood is low, concentrate on basic self care like sleeping and eating enough #mindsofepilepsy
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