Top Tweets for #nlorem
Meet Colbie 💙
This Mother’s Day, honor families like Colbie’s with a gift that gives back—and help carry hope forward. 💐
Donate here: https://t.co/JEaUIqtHlU
#nLorem #MothersDay #CarryHope #DonateToday #SupportMoms
12/12/24 1日でも早く薬が届きます様に
⇒ https://t.co/s9NFRQbHY1 #アメブロ @ameba_officialより ＃ハワイ ＃介護 ＃難病 ＃DRPLA #CureDRPLA #nLorem
Target ALS is committed to finding treatments for all forms of ALS.
We are proud of our collaboration with @n_lorem Foundation to find treatments for nano-rare forms of ALS.
#collaboration #nlorem #nanorare #EndALS #ALSresearch
Today is SCN8A Awareness Day! At n-Lorem we celebrate our SCN8A superheroes everyday. @SCN8AAlliance #nlorem #mynanorarestory #supportnanorare #SCN8A #SCN8AAawareness
Happy Martin Luther King Jr. Day! We thank all of you for being on this journey with us, creating an opportunity for a better life, renewed hope and brighter dreams for our nano-rare patients and their families. #MLKDay #MLKDay2023 #nanoraredisease #nanorare #nlorem
n-Lorem's Chief Operating Officer, Sarah Glass, Ph.D., is in purple in support of #EpilepsyAwarenessMonth! Join in on spreading awareness by wearing purple. @EpilepsyFdn #nlorem #mynanorarestory #nanorare #supportnanorare #raredisease #nanoraredisease
@eperlste @Erika_Check @cureffi @dgmacarthur @timyu Excellent point, Ethan. ASOs seem simple solutions for genetic diseases. But 30+ year of industry experience can’t be discounted. Patients are free to make decisions, but such leverage best available in partnership. The alternative is potentially life-threatening risk. #nlorem
@cureffi @dgmacarthur @Erika_Check @timyu Thanks for alerting the community. #nlorem is taking this issue seriously and taking with the #fda to ensure future safety. #nlorem thinks the issue is largely preventable by following industry-standard guidelines. Drug design should be left to professionals.
@chaserrdad @VGaneshMDPhD @curechd2 @AnneOtation @CarvillLab @IgorUlitsky @UDNconnect @broadinstitute @UDN_PEER @GREGoR_research Recommend to nominate this patient to #nlorem to normalize #CHD2 levels with #aso. Pls DM me if interested.
ICYMI: Tracy Cole, Ph.D., n-Lorem's Sr. Director of Research, speaks about the n-of-1 journey at the Illumina Genomics Forum. #CareAboutRare #RareDisease #RareCommunity #nlorem #nanorare
Tomorrow, n-Lorem’s Senior Director of Research, Tracy Cole, Ph.D., provides expertise in n-of-1 therapies, ASO technology and many other precision medicine topics in two panels at the inaugural Illumina Genomics forum. #CareAboutRare #RareDisease #RareCommunity #nlorem #nanorare
Tomorrow, n -Lorem’s Chief Operating Officer, Sarah Glass, is speaking on a panel at the Rare-X conference. Join her as she speaks about N-of-1 Therapies amongst others, either in person or virtually. #CareAboutRare #RareDisease #RareCommunity #nlorem #nanorare
Great news! There's a new exciting collaboration between SOLVE FSHD and n-Lorem.
Click the link to read all about it on our website.
https://t.co/vdYhr4yjYg. #FSHD #nlorem #nanorare #CureFSHD #careaboutrare #supportnanorare
ICYMI: Our latest podcast, Anna's Story of Hope and Help, is live! Join us in conversation with Dr. Stanley Crooke every other week and let us know what you think!
Stream here:
https://t.co/Ok0PxHiHB5
#nlorem #ALS #treatment #columbiaMed #podcast
New episode LIVE! This week, Stan interviews Sonja and Dr. Neil Shneider of @ColumbiaPS as they discuss Anna’s story – a girl fighting a fatal form of ALS.
Stream here: https://t.co/4Y43FKjyJ9
#nlorem #ALS #treatment #columbiaMed #podcast
Next week: Hope and Help for Anna. Anna has the worst form of ALS, an aggressive fatal form. She was 15 when she became sick. Stan interviews Sonja Kӓmpfer and Dr. Neil Shneider of @ColumbiaPS
https://t.co/U66tXd5yR2
#nlorem #ALS #treatment #columbiaMed
New episode LIVE! In this episode, Dr. Stan Crooke describes why ASO technology is often the best choice for nano-rare patients.🥇
Stream here: https://t.co/bDhjAYABdB
#nlorem #dna #sciencepodcast #drugdiscovery
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