Top Tweets for #pagc19
#PAGC19 @HeadwayUK ask if you affected by epilepsy after brain injury? Share your thoughts in the Epilepsy Research UK survey to help guide positive change for those affected by epilepsy: https://t.co/aI1PLwEGFK @EpilepsyRUK #epilepsy #covid
#PAGC19 “Research saves lives. We absolutely have to address our research budget." #InTheNews today –chief executive @Michelle_CRUKcomments on the importance of a renewed drive on cancer in today’s @Daily_Express https://t.co/JDGfFyzBkB #cancer #covid
#PAGC19 @Got_Anxiety Don't miss out on #ADAA2022 Conference lowest registration rates! Join us in Denver for sessions on the science & treatment of #anxiety & #depression. Learn about ADAA’s #COVID-19 protocols & how we're working to put your safety first: https://t.co/fwQ1AjFjsp
#PAGC19 @MVGutierrezMD – ‘ Congratulates @patientled
for being awarded the Distinguished Public Service Award at #AAPMR21 by @AAPMR
The Patient-Led Research Collaborative has truly been leading & driving change in #LongCOVID’ #covid https://t.co/IQeDVnUcB5 #covid
#PAGC19 @LongCovidWales welcome the acknowledgment from the Health Minister @Eluned_Morgan of how challenging living with Long #Covid is and would like to work with the @WelshGovernment in the development of appropriate Dx services. https://t.co/5nkkyGztFa
#PAGC19 @long_covid ask ‘Do you live in Wales or Scotland? If you do, please follow our associate groups, campaigning for you where you live’: @LongCovidWales @LongCovidScot For a focus on children living with #LongCovid, please follow:
@LongCovidKids #covid
#PAGC19 @CFRI_CureCF share CFRI's YOUTUBE COVID-19 Q&A PLAYLIST WITH RICK MOSS, MD Dr. Moss has answered hundreds of questions from the #CFcommunity related to #COVID19 and #CysticFibrosis. https://t.co/USEK0UVcoY
#PAGC19 @AdiraFound share that #COVID-19 may heighten the risk of developing #Alzheimer’s, and COVID-19 can cause an increase in blood-based molecular biomarkers for Alzheimer’s disease. https://t.co/VZX9M3ejfQ
#PAGC19 @PatientsAssoc say that The most read information leaflet over the last month is how to see your medical records. Read by 8,200, which is 3x the next most read leaflet. https://t.co/PXkLhQGMXU
#PAGC19 @NADF_Adrenal update on whether the #COVID-19 booster shot is for those of us with adrenal insufficiency. We have a statement from our Medical Director, Dr. Margulies in response to this question. See: https://t.co/IZpmdsq123 #adrenaldisease
#PAGC19 @worldallergy ‘ COVID-19 vaccine testing & administration guidance for allergists/immunologists from the Canadian Society of Allergy and Clinical Immunology (CSACI)’ https://t.co/kfsXgskpK2 #allergy
#PAGC19 @eupatientsforum published Survey Report gathering more information on the lived experience and impact of the #COVID19 pandemic on patients and their communities. https://t.co/LDsjNf4c3S
#rheum patients: what are your thoughts about COVID-19 vaccines? Whether you have or haven't been vaccinated-we want to hear from you! https://t.co/7GMik32uPj In English, Spanish, Hebrew, French, Italian, Russian, Punjabi, Mandarin, & Arabic and more. #PAGC19
@IAPOvoice
#PAGC19 @LongCovidWales say that with over 56,000 people suffering from #LongCovid in #Wales, they have been inundated with requests from sufferers to start a Welsh support group which is associated with the 40k UK Facebook group @long_covid
Find them at https://t.co/F6L4lLdZ42
#PAGC19 @SchizophreniaCa has read multiple studies that have the same conclusion: Those previously diagnosed with #Schizophrenia are at a higher risk for severe #COVID19. Read more here: https://t.co/kfAKspf43j
#PAGC19 @age_uk storyteller, @SikhSkipping is a big inspiration for many older people, esp. in the S.Asian and Sikh community, wanting to stay active during the #covid pandemic. find out ways that you can keep moving: https://t.co/UwbJpDW2dv #ageing
#PAGC19 @MyelomaUK are launching their Hopeful Futures Appeal which aims to raise £250,000 to tackle the legacy of #COVID19. Please support this vital work and donate now: https://t.co/FRN0cfRJ7i #myeloma #covid #bloodcancer
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