Top Tweets for #patternoffailure
@als_now @AKJKLove4Ever @ShereeWLWT @FDACBER @johndhopkins @WLWT @iamalsorg Great point, I've seen more bullying & unethical behavior from the other side (ie going on 60 Minutes giving FLAT OUT WRONG data about NurOwn, blocking pro-#NurOwn pALS who voiced opposition or cited the actual data, etc).
With no reason given, to boot. #patternOfFailure #ALS
@hitman011 Sure. You’re right. They’ve screwed up plenty of far bigger things than this … #PatternOfFailure
YES YES YES! The normal pattern has failed for 30+ years for no valid reason. It's time to change the #patternOfFailure like #hiv did & save this beautiful husband of mine & tens of thousands more. Join us today @RepScottPerry @EmmonsRachel
#ALSisNotRare #als #turnMapRed
@RepScottPerry I’m normal, unfortunately
Diagnosed in the normal age range
Progressed normally (cane walker chair feeding-tube vent)
Treated normally with two approved drugs
Outcome normal, death
Please stop the normalcy of ALS
#ACT4ALS
@sandymorris333 @PaustDeb @farmstronginfo
Great photo! @RepScottPerry is gonna do it! I know it! He knows this can save my husband's life, yours, and tens if thousands of others. We're on the bubble! #als #dyingwaiting #drugsinbodies we're ending the #patternofFailure #love
.@RepScottPerry I was in your office when Rep Walter Jones was dying of ALS & you said to your staff, "help her with this disease, it's the worst"& you referenced Walter. You've been very supportive of ALS families. We look to your continued leadership to get HR3537 over the line
Thanks @NicholasFlorko for investigating to understand the #patternoffailure in #als due to many things: 1) a nat'l org who doesn't do their job 2) the FDA who doesn't take disease brutality into account 3) researchers with no funding due to #1 @statnews @wjs @NPR #dyingwaiting
The decision on aducanumab is already enraging ALS advocates, who are wondering "why them and not us." They've been calling for FDA approval of a number of experimental drugs that have shaky evidence bc of the severity of their disease. Names redacted from a FB group I'm in.
#ALS will paralyze @Robdback just like #LouGehrig unless #FDARedTape stops blocking Coach from getting drugs that work. Congress needs to hold #ALShearings with the FDA. Media must expose the #patternoffailure. @latimes @WSJ @nytimes @CNN #aducanumab #DyingWaiting #DrugsinBodies
Welcome to the club!#celebritycruisesfail @CelebrityCruise refuse to own any of their failures @RoyalCaribPR. Happy customers tell 4 people. Unhappy ignored abused customers take to social media & tell everyone they know and warn them to #stayaway #patternoffailure #silence https://t.co/d1OreZyDPp
@CelebrityCruise Do you actually care about customer service anymore? I sent an email to [email protected] 5 days ago and have yet to hear anything back. Has Celebrity Cruises gotten so big it no longer cares about customers satisifaction? #celebritycruisesfail
2 hours in port....third tender going. 🤔#patternoffailure #howtolosecustomers #celebritycruisesfail #getittogether how are the tenders on #presidentscruise @LisaLutoffPerlo ? I bet you don’t have to wait in line https://t.co/NmEvziHvtf
@PetalFanatics @CharlieOconnel @RcwHr @CruiseNorwegian @PrincessCruises @CarnivalCruise @CelebrityCruise Voting with your wallet clearly has the most impact, as phone calls, emails, and social media have been futile. #celebritycruisesfail #celebritycruises #pattern #patternoffailure
@CelebrityCruise @LisaLutoffPerlo someone is trying to GIVE YOU MONEY - this is as basic as it gets #celebritycruisesfail #patternoffailure #Pattern #OverpaidCEO #celebritycruises https://t.co/UmMQElxVc8
@CelebCruiseFail @gbarnes1515 @CelebrityCruise @LisaLutoffPerlo @RoyalCaribbean Does four hours of daylights and only a couple hours of shopping count as half a port? Okay #mediocrity #patternoffailure #celebritycruisesfail
@gbarnes1515 @CelebrityCruise All jokes aside @CelebrityCruise takes advantage of and ignores their guests - thanks gbarnes for reminding us #celebritycruisesfail #wewontstop #ignorance #PRnightmare #patternoffailure #CEOfail #cruising @LisaLutoffPerlo @RoyalCaribPR
@PetalFanatics Think of all the #captainsclubelite they are so upset #celebritycruisesfail #celebritycruises #patternoffailure
@CelebrityCruise @LisaLutoffPerlo hell hath no fury like a travel agent who has a terrible vacation - a member of our FB group is a travel agent - so displeased he’s cancelled groups from future sailings. #patternoffailure #celebritycruisesfail
@CelebrityCruise @LisaLutoffPerlo I am one of the individuals your crew members attempted to intimidate. They escalated a pleasant conversation unnecessarily. I am angry. #PatternOfFailure #celebritycruisesfail https://t.co/7pdQtXgjHx
@CelebrityCruise @LisaLutoffPerlo @usatodaytravel #PatternOfFailure #celebritycruisesfail https://t.co/XJBt7kE8Aw
#celebritycruisesfail @LisaLutoffPerlo @CelebrityCruise Latest reviews of disastrous Infinity sailing on 21 Jan : https://t.co/S2rxmbmJgg What could have been a customer service coup has turned into a PR disaster. Do the right thing.
@CelebrityCruise @LisaLutoffPerlo you are now up to 10 lost bookings and 20ish lost passengers for life - they will tell everyone they know. You can still fix this #PatternOfFailure #celebritycruisesfail https://t.co/mYT9jLQU1p
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