Top Tweets for #project8p
Join #Project8p’s Research Director,
@eperlste, for a family-friendly #researchupdate. This session will include Project 8p updates, time for questions, and the chance to further your participation in current 8p studies. Please register in advance.https://t.co/FMJwsKlOHe
Thank you to the (Stefan) Pinter lab at @uconnhealth for hosting our CEO, Bina Shah and 8p mom volunteer, Emma West and inviting them to the BIO CT and Jackson Labs #RareDiseaseDay event. Special thanks to Erin and Rachael , dedicated scientists in the Pinter Lab! #Project8p
The Project 8p Foundation is thrilled to welcome David Jackson to our Board of Directors! His passion and industry acumen make him an invaluable addition to our mission. Welcome aboard, David! #Project8p #HealthcareInnovation #WelcomeDavid https://t.co/5yYvconvvv
Meet one of our PLB members, Will Norris. He Co-chairs our Research Committee along with Fay. Will loves fishing and playing basketball. We appreciate all that you do for the community, Will!
#chromosome8p #8pheroes #project8p #specialneeds #inclusion #differentnotless
Join us in raising awareness and funds for our #8pheroes through the 8000 Steps for 8p! Walk, run, stride, or ride in honor of 8p heroes around the globe. Raise awareness & tag us. #8000stepsfor8p #project8p #8pheroes
Please join Project 8p Foundation for our second annual 8,000 Steps for 8p. A walk, run, stride, or ride race! With many options for your participate in-person or virtual. https://t.co/Vb6yq3q4tt
#chromosome8p #8pheroes #project8p #specialneeds #inclusion #differentnotless
Share and help us raise awareness for the 300 million people living with a rare disease around the world!
#RareDiseaseDay #RareDisease #ShareYourColours #LightUpForRare #Global #Action #Awareness #Advocate #Community #8pheroes #project8p #chromosome8p #chromosomedisorder #s ...
In the Unites States, 25 million people suffer from rare disease. Globally, close to 400 million people suffer from a rare disease. Share and spread awareness this Rare Disease Day.
#raredisease #rarediseaseday #rarediseaseday2023#8pheroes #project8p #chromosome8p #chromosom ...
Like the Lorax says, "Unlike someone like you care a whole awful lot, nothing is going to get better. It is not."
A HUGE thanks to our donors for our Year-End 2:1 Match totaling $250,000!
#8pheroes #project8p #chromosome8p #chromosomedisorder #specialneeds #differentnotles ...
We've heard the news and we're so sad that AmazonSmile is winding down after 10 years. We are so grateful for the support that AmazonSmile has given nonprofit organizations like Project 8p.
#project8p #chromosome8p #nonprofit #amazon #amazonsmile
We have raised $65,120 as of today! Help us reach our goal before the year ends! Your generosity will help us fund the Research Plan and 2023 Conference. All donations will be tripled with our 2:1 match. Give here: https://t.co/fBUXZcHYBk
#8pheroes #project8p #chromosome8p
Shout out to all our volunteers, supporters, and donors for their generosity – helping us to keep the good going – so good things happen. Thank you for donating during #GivingTuesday. With our 2:1 match, all donations will be tripled.
#8pheroes #project8p #chromosome8p #chr ...
In case you missed it, here is Bina Shah's article on Rare Revolution magazine: https://t.co/8eRmanaeki
#8pheroes #project8p #chromosome8p #specialneeds #inclusion #differentnotless
Developmental symptoms of 8p heroes are apparent early - 48% of patients with developmental delay had symptoms before 3 months of age.
Help us gain new insights for doctors and researchers by updating your 8p hero's registry profile today! https://t.co/aT5HStdSl5
#project8p
We're so lucky to have one of the leading neuroscientists in the world working with Project 8p Foundation! Meet Alysson R. Muotri, PhD and learn about what does to help us find treatment for our #8pheroes. Thanks for all that you do, Alysson!
#project8p #8pdisorders #rarediseases
Get to know Veigh, our social media manager. She's been working with Project 8p for almost a year now and she definitely loves her job. During her free time she loves to explore and go on nature trips. She hopes to meet and be friends with our 8p heroes one day.
#project8p
70% of 8p patients with Autism Spectrum Disorder had signs before 3 years of age.
Help us gain new insights for doctors and researchers by updating your 8p hero's registry profile today! https://t.co/aT5HSteqaD
#project8p #8pdisorders #rarediseases
We've raised a total of $13,520, all thanks to you! We've greatly exceeded our campaign goal and raised so much more. This will greatly help in funding research for our #8pheroes. We appreciate all the support and love!
#8000stepsfor8p #project8p #8pheroes
Thank you to all the #8pfamilies who joined us during Chromosome 8p Day! It was awesome hanging out with you all and have our #8pheroes get to know each other. We can't wait to see more #8pfamilies next year!
#8pheroes #ilove8p #project8p #chromosome8p
The most common GI symptom of 8p is constipation - 80% of all patients report problems.
Help us gain new insights for doctors and researchers by updating your 8p hero's registry profile today! https://t.co/aT5HStdSl5
#project8p #8pdisorders #rarediseases
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