Top Tweets for #sayscleroderma
It’s #WorldSclerodermaDay—a time to come together to raise awareness, fuel hope, and move toward a cure for scleroderma. Here are just a few of our incredible community members, and why they #SayScleroderma to raise awareness.
For Scout L., her mother Jackie’s experience with scleroderma is why she chooses to #SayScleroderma: to help drive research that leads to better, more personalized treatments.
You can #SayScleroderma too: https://t.co/Hb1SdKAGMu
Have you watched our #SayScleroderma film yet? 🎥 Dawn Neill from Magherafelt is one of 7 people featured. She recently spoke to @DerryNow about living with systemic sclerosis & why raising awareness matters 💜
Read more 👉 https://t.co/8OoIPtgauE
#SclerodermaAwareness #SRUK
June is #SclerodermaAwarenessMonth. @WeAreSRUK is raising awareness with their short film #SayScleroderma. 🎥 Watch the film and learn more about scleroderma and ways you can support on their website ➡️ https://t.co/sxcqIj5eax
#Scleroderma
For #SclerodermaAwarenessMonth, join us to # SayScleroderma.
#SayScleroderma with us—share your story, raise awareness, and help us move closer to finding a cure.
Check out these resources to get started: 🔗 https://t.co/L0EhYkEzkQ
Many people with an auto-immune condition such as inflammatory arthritis also have other auto-immune conditions, so we're always happy to help our friends at @WeAreSRUK raise awareness of these. It's Scleroderma Month - we encourage you to find out more.
#SayScleroderma
This Scleroderma Awareness Month join @WeAreSRUK as it launches its #SayScleroderma film to help raise vital funds into research of the rare, autoimmune disease.
🎥 https://t.co/DhcwHpmlL7
#SclrodermaAwarenessMonth
It’s Scleroderma Awareness Month so please join SRUK as it launches its #SayScleroderma film to
help raise vital funds into research of the rare, autoimmune disease
https://t.co/vlOYPHj4Td
#sjogrens #sjogrensuk #sjögrens #sjögrensuk
🗣️ “Early diagnosis is vital.”
Dawn, 43, from Northern Ireland, shares her journey with CREST syndrome in support of #SayScleroderma, raising awareness of this rare autoimmune disease.
Read her story 👇
https://t.co/mqICwGhcTr
#SclerodermaAwarenessMonth
Just to say ... I have this ...
#SayScleroderma
#SclerodermaAwarenessMonth
Please RT to help raise awareness
🎗️June is #SclerodermaAwarenessMonth!
Around 19,000 people in the UK live with this rare autoimmune disease.
Help us spread the word, share our #SayScleroderma film and support vital research 💙 https://t.co/XWGmAeUQ9H
#SRUK #Scleroderma
I have this #SayScleroderma
🎗️June is #SclerodermaAwarenessMonth!
Around 19,000 people in the UK live with this rare autoimmune disease.
Help us spread the word, share our #SayScleroderma film and support vital research 💙 https://t.co/XWGmAeUQ9H
#SRUK #Scleroderma
🎗️June is #SclerodermaAwarenessMonth!
Around 19,000 people in the UK live with this rare autoimmune disease.
Help us spread the word, share our #SayScleroderma film and support vital research 💙 https://t.co/XWGmAeUQ9H
#SRUK #Scleroderma
Rare Disease Day is here: Today, we are coming together to #SayScleroderma and shine a light on the 300,000 people in the U.S. living with scleroderma.
#GivingTuesday is tomorrow! 💙 Join us in raising funds and awareness for scleroderma research. Donate: https://t.co/lENVjXydUc
Or spread the word about scleroderma on social media! Add the SRF #SayScleroderma frame to your profile picture: https://t.co/eiQmYhUjpa
Throughout June, we invited you to join us in the #SayScleroderma campaign.
Although Scleroderma Awareness Month has ended, it's important to remember that this effort does not have to stop here.
Let's keep the momentum going—stay engaged, and continue to #SayScleroderma.
This month, members of the scleroderma community joined us to #SayScleroderma by sharing their valuable lifehacks, which are practical tips and strategies for navigating life with scleroderma.
Check out Helene's finger-cot trick in this video!
What exactly is scleroderma, and how does it affect people? Scleroderma is best thought of as a single, yet complex disease that can progress in two main types: Systemic and Localized.
Learn more about scleroderma and how to #SayScleroderma this month: https://t.co/7mFgolyhNx
Why does Hồng Thư #SayScleroderma? “Many people feel like I am different from before, but have no clue about what I am suffering from,” she explains. “I #SayScleroderma to raise awareness so that more people learn about this disease.”
Read her story: https://t.co/O2kHpPiWuu
Why does Jennifer #SayScleroderma? 📣
“I #SayScleroderma because, although it is a rare disease, it affects many people and should not take years for patients to receive a diagnosis," she says.
Read the full story here: https://t.co/58l2rXs7IC
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