Top Tweets for #teamsusannah

almost 4 years ago

Caption: “Could anything taste better? And of course the New York docs @KidsAtColumbia are going to find treatment for our @KIF1A kids. It’s New York, and great things happen in New York. #TeamSusannah and all her KIF1A friends are tough as nails.”

almost 4 years ago

Caption this 👏 #BobbysTripleThreat

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over 4 years ago

Everybody knows I love family podcasts. Here’s one close to my heart. #TeamSusannah & our mission to bring treatment to kids who don’t have any.

over 4 years ago

❤️Episode #1: Path to @n_lorem: Suz's Story: "We have an amazing army behind Suz. It's about how we can do this for Suz, her #KIF1A friends & the 500 or so neurogenic diseases we know about today. We have an incredible opportunity ahead of us to do this." https://t.co/ysdc42Mh99

lukebrosen's tweet photo. ❤️Episode #1: Path to @n_lorem: Suz's Story: "We have an amazing army behind Suz. It's about how we can do this for Suz, her #KIF1A friends & the 500 or so neurogenic diseases we know about today. We have an incredible opportunity ahead of us to do this." https://t.co/ysdc42Mh99 https://t.co/J5dSDs9O13

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over 4 years ago

@Y_uPeekaboo69 @bflay @n_lorem Thanks @bflay and @n_lorem for always thinking of #KIF1A and kids like #TeamSusannah. Your #relentless support and work means the world to us. Hope is alive and well for kids like Susannah with extremely rare neurological diseases because of people like you.

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n-Lorem Foundation @n_lorem

over 4 years ago

“Our team is driven to provide hope and help today and to explore ways to find more resources to help even more patients tomorrow…” Hope & help. There is nothing more important to our family; to our community. Thank you @n_lorem #KIF1A #TeamSusannah

over 4 years ago

At n-Lorem, we feel very fortunate that so many patients & their families are putting their trust in us. Check out the progress we have made in two years. Read more https://t.co/ANfVUb21xe & consider donating https://t.co/H33hYRDZCn #mynanorarestory #nanorare #nlorem #ASO

n_lorem's tweet photo. At n-Lorem, we feel very fortunate that so many patients & their families are putting their trust in us. Check out the progress we have made in two years. Read more https://t.co/ANfVUb21xe & consider donating https://t.co/H33hYRDZCn
#mynanorarestory #nanorare #nlorem #ASO https://t.co/AycAl3azQf

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over 4 years ago

Thank you @EpilepsyFdn for sharing this story and raising important awareness about rare epilepsy communities like @KIF1A. #TeamSusannah

KIF1A.ORG @KIF1A

over 4 years ago

Check out a story on pg 16 w/ @lukebrosen & @EpilepsyFdn to learn more about how one family’s mission turned into a global patient + scientific community working together to find treatments for KIF1A Associated Neurological Disorder. https://t.co/CfzTNwddPZ

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over 4 years ago

On this #RareDiseaseDay I’m proud of our pioneers on #TeamSusannah, every member of our ⁦@KIF1A⁩ community, and all families that participate in clinical research fighting to find treatments for devastating rare diseases.

lukebrosen's tweet photo. On this #RareDiseaseDay I’m proud of our pioneers on #TeamSusannah, every member of our ⁦@KIF1A⁩ community, and all families that participate in clinical research fighting to find treatments for devastating rare diseases. https://t.co/KzBW7sCt6d

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over 4 years ago

He is indeed a remarkable young man. #TeamSusannah ⁦@KIF1A⁩

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over 5 years ago

Thanks for being a superhero to our superheroes @bflay #CureKIF1A #TeamSusannah

Saint Louis Baseball @SLUBaseball

over 5 years ago

Even superheroes need our support sometimes ♥️. @KIF1A

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billy b @bbbejeck

almost 6 years ago · Sanger

#TeamSusannah ⚾️💙

almost 6 years ago

Hear what the players and managers had to say leading up to game one of the #Billikens Fall World Series tomorrow. 📽️ Best of Media Day ⬇️

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almost 6 years ago

FaceTime visit with our gal. All settled in for a planned visit and hoping for some answers. Only one parent/family member allowed to accompany her in the room. Sally is a superhero mom. #TeamSusannah. #KIF1A

lukebrosen's tweet photo. FaceTime visit with our gal. All settled in for a planned visit and hoping for some answers. Only one parent/family member allowed to accompany her in the room. Sally is a superhero mom. #TeamSusannah. #KIF1A https://t.co/kIqJFGk9UV

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over 6 years ago

Thanks @bflay #TeamSusannah