Top Tweets for #theDisorderChannel
Today is #griefawarenessday @babensonwriter @onceuponagene @bobigelow talked about types of grief and #wandavision #thedisorderchannel #anticipatorygrief a reminder that we grieve things other than death. #raredisease #chronicillness https://t.co/WzJ7zCLtgO
PAIN POINTS streaming free on #thedisorderchannel about how #raredisease and #medicalgear and #wheelchairlife make air travel too difficult despite the protection the #ADA is meant to offer. #accessibility Guest Mandy Korst #cysticfibrosis #cu29 #menkesdisease
From the director of our most watched film "Life and Atrophy", comes a new film about families who have children with SCN2A and their search for treatments #scn2a #raredisease #epilepsy #seizures #autism #thedisorderchannel
Showing a film and talking up Global Genes @GlobalGenes and #TheDisorderChannel tomorrow morning. #raredisease #patientvoice #pharmaforum
Tells us the #painpoints you experience in your #raredisease life. Comment with your own. #chronicillness #specialneedsparenting #spoonie #geneticillness #careaboutrare #thedisorderchannel #notcomplaingjustexplaining https://t.co/ww5LyU7pj6
This small impact, is I'm sure one Dr. King never anticipated but despair like hope comes in many forms. A clip from #thedisorderchannel "Menkes Disease: Finding Help & Hope". #menkesdisease #cu29 #hope #raredisease #rarediseaseTV #rarediseasefilm #martinlutherking
Tell us your #painpoints as you face #raredisease We won’t judge. We know you’re #notcomplaingjustexplaining #chronicillness #specialneeds #specialneedsparenting #thedisorderchannel
En #TheDisorderChannel @DisorderRare, el último cortometraje de Emmitt H Thrower
"Disabled Artist Showcase:Creating Our Spaces"
Una mirada a las voces q “raramente” están en los medios.
#wheelchairlife Atrofia Muscular Espinal #AME #spinalmuscularatrophy
Now streaming on #TheDisorderChannel Emmitt H Thrower's latest short film “Disabled Artist Showcase:Creating Our Spaces” offers a look at the voices we hear from too seldom in the media. #disabledartists #wheelchairlife #sma #spinalmuscularatrophy #raredisease
#raredisease is a pain amirite? Stay tuned to the #thedisorderchannel we think you’re gonna like this next show. #rarediseaseTV #rarediseasestories #specialneedsfamilies #careaboutrare #rareis_ @alicepaynecomedy #notcomplaining #justexplaining
Check out the ad for #TheDisorderChannel helping bring more awareness to #cysticfibrosis #AHP #acutehepaticporphyria #sicklecellawareness #menkesdiseae #usp7 #BBSOAS #ctnnb1 #angelmansyndrome #sma #FOP #giantaxonalneuropathy #wilsondisease #syngap1 & so many more through film
Sandwiched between #onceuponagene podcast host and #thedisorderchannel creator of videos and short films about #RareDisease at #globalgenes Summit! Check them out!
Less than 1 week until
@globalgenes
#GGSummit22. I'll be there in person in San Diego and films from #TheDisorderChannel will be screening. #raredisease #careaboutrare
This new film by @bo_bigelow207 about #stxbp1 will screen @globalgenes #GGSummit22 in 2 weeks and it's coming soon streaming free on #TheDisorderChannel #raredisease @curestxbp1
Two weeks until @globalgenes #GGSummit22. I'll be there in person in San Diego and films from #TheDisorderChannel will be screening. #raredisease #careaboutrare
Today is #FOP awareness day. And the donations this month to IFOPA could get doubled by a matching grant.
@ifopa @cure_fop #rareDisease #fopawareness #fibrodysplasiaossificansprogressiva @2shotspls @pinkbananaphotography #theDisorderChannel
Meet GG Director of Community Engagement, Daniel Defabio, & his son Lucas, diagnosed with Menkes disease as a baby. After Lucus was diagnosed, Daniel knew he could use his filmmaking talents for more. Here is their story https://t.co/lMpMg7lriC
#TellYourRareStory #CareAboutRare
On the next episode of of Once upon a Gene TV we have Katheron Intson talking about her work with the #grin1 gene and her new app Varient
& a #desantoshinawisyndrome kiddo #raredisease #rarediseaseTV #rarediseaseawareness #thedisorderchannel @katheronin @OnceUponAGene
🧬🍿🎬Share this with a friend who wants (or needs) to learn more about the rare disease experience. Whatcha gonna watch today?
#rarediseasefilms #rarediseaseTV #rarediseasestories #rarediseasetruth #rarediseasefamilies on #thedisorderchannel streaming free on Roku or FireTV.
🧬🍿🎬Share this with a friend who wants (or needs) to learn more about the rare disease experience. Whatcha gonna watch today?
#rarediseasefilms #rarediseaseTV #rarediseasestories #rarediseasetruth #rarediseasefamilies on #thedisorderchannel streaming free on Roku or FireTV.
🧬🍿🎬Share this with a friend who wants (or needs) to learn more about the rare disease experience. Whatcha gonna watch today?
#rarediseasefilms #rarediseaseTV #rarediseasestories #rarediseasetruth #rarediseasefamilies on #thedisorderchannel streaming free on Roku or FireTV.
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