Top Tweets for #themogproject
Join us for our Inaugural International MOGAD Patient Summit!
What a way to bring in #MOGADAwarenessMonth! This virtual event, hosted by #TheMOGProject with Master of Ceremonies, @mlevy18 , is streamed live from San Diego, CA on April 5th, 2025 from 10AM to 4PM PDT.
You can’t miss this full day of MOGAD delivered by experts along with opportunity for Q&A, moderated by MOGAD patients and caregivers! You must register to join:
https://t.co/hVy0ZXUC2R
We have some of the most knowledgeable experts in the field internationally providing up-to-date information on diagnosis, disease management and clinical challenges for both adults and pediatrics.
Tune in to be the first to hear about our EXCITING announcements including the first WORLD MOGAD DAY!
If you can’t come, please register anyway to get early access to the recordings!
Thanks to our sponsors @UCBUSA & @Roche for their generosity, making this day, a reality!
#IMPS2025 #InternationalMOGADPatientSummit #MOGADExperts #MOGAD #MOG #raredisease #rare #rarediseases #chronicillness #neurology #neuroophthalmology #neuroimmunology #rareneuroimmunedisorders #MOGAD #RareDiseaseAwareness #ChronicIllnessSupport #NeurologyCommunity #MOGADPatients #PatientSummit2025
Join us for our Inaugural International MOGAD Patient Summit!
What a way to bring in #MOGADAwarenessMonth! This virtual event, hosted by #TheMOGProject
Streamed live from San Diego, CA
April 5th, 2025
10AM to 4PM PST
Don’t miss this full day of MOGAD delivered by experts along with opportunity for Q&A, moderated by MOGAD patients and caregivers!
👇 register to join:
https://t.co/hVy0ZXUC2R
👉🏼 knowledgeable experts in MOGAD internationally: @mlevy18, @EliaSechi, @drBWillekens, @marignierro +more!
👉🏼 up-to-date information on diagnosis, disease management and clinical challenges for both adults and pediatrics.
Tune in to be the first to hear about our EXCITING announcements courtesy of @ucb_news & @Roche
If you can't come, please register anyway to get early access to the recordings!
#IMPS2025 #InternationalMOGADPatientSummit #MOGADExperts #MOGAD #MOG #raredisease #rare #rarediseases #chronicillness #neurology #neuroophthalmology #neuroimmunology #rareneuroimmunedisorders #MOGAD #RareDiseaseAwareness #ChronicIllnessSupport #NeurologyCommunity #MOGADPatients #PatientSummit2025
Join @TheMOGProject for #MOGmatesDay! �� #MOGAD patients globally are finding others and getting together for a fun day to do just about anything you can think of. Post pictures on social media, make them public if you like, and use #MOGtober6th, #MOGAD, and #TheMOGProject
ACT now to be prepared for relapse in #MOGAD.
The more you know about MOGAD, the more empowered you are!
#MOGADAwarenessMonth #TheMoreYouKnowAboutMOGAD #TheMOGProject #ACT #RareDisease #Neurology #chronicillness
It’s MOG Awareness Month!!
Meet Katie Smith - I’ve got MOGAD, but MOGAD doesn’t have me! "Keep fighting the battle but don’t lose ourselves in it.”
[Girl with long light brown hair wearing blue shirt, smiling at the camera]
#MOGAD #mogadawarenessmonth #warrior #themogproject
![TheMOGProject's tweet photo. It’s MOG Awareness Month!!
Meet Katie Smith - I’ve got MOGAD, but MOGAD doesn’t have me! "Keep fighting the battle but don’t lose ourselves in it.”
[Girl with long light brown hair wearing blue shirt, smiling at the camera]
#MOGAD #mogadawarenessmonth #warrior #themogproject https://t.co/jRDkXpNWAc](https://pbs.twimg.com/media/FspG511XsAAEFG1.jpg)
![TheMOGProject's tweet photo. It’s MOG Awareness Month!!
Meet Katie Smith - I’ve got MOGAD, but MOGAD doesn’t have me! "Keep fighting the battle but don’t lose ourselves in it.”
[Girl with long light brown hair wearing blue shirt, smiling at the camera]
#MOGAD #mogadawarenessmonth #warrior #themogproject https://t.co/jRDkXpNWAc](https://pbs.twimg.com/media/FspG51xXwAYZZL8.jpg)
You ARE #MOGnificentlyRare!
Each of you is a TENACIOUS HUMMINGBIRD WARRIOR! Don't forget that.
This disease will not get the best of you and this community will not let you walk alone.
#RareDiseaseDay2023 #TheMOGProject #MOGnificentlyMade #MOGnificent #MOGAD #MOG
Happy New Year! The #MOGSquad would like to thank our #MOGAD community of patients and HCPs for their involvement in our collective mission.
YOU are #TheMOGProject and together WE are on a mission!
THANK YOU for a great 2022! We’re ready for 2023!
#HappyNewYear2023
#TheMOGProject & the @wearesrna partnership started when the SRNA launched #MOGAD advocacy just when our Exec. Dir. Julia Lefelar was diagnosed after a 17-yr wait for an answer that changed her life.
Read Kristina Lefelar's account:
👉https://t.co/RoRKJbiJR7
#MOGAwarenessMonth
The story of #TheMOGProject and SRNA's partnership started when SRNA decided to add #MOGAD to the rare neuroimmune disorders SRNA advocates for, just when The MOG Project's co-founder, Julia Lefelar, was diagnosed with MOGAD after 17 years of misdiagnosis. https://t.co/NCsMFSFAP4
This #GivingTuesday we want you to know that there are many ways to help us help our Tenacious Hummingbird Warrior Community!
We've laid it all out for you, so check it out on our Donate page 👇
https://t.co/ktLor8y6cj
#TheMOGProject #MOGAD #MOG #fundraising
FINAL REMINDER to take our IGNITION SURVEY on FATIGUE in MOG-AD!
Closing out MONDAY, Nov 22, so please consider it WHETHER YOU HAVE FATIGUE OR NOT.
👉https://t.co/Gk4xS07Zsr
For more information on our I/Ss
👉https://t.co/T6iuuRR0KU
#TheMOGProject #IgnitionSurvey #FatigueInMOGAD
Time for a good #TipsyTuesday tip from The MOG Project!
In honor of Blindness Awareness Month, we have added a great resource from our community outreach associates at NVision. 👇
https://t.co/Tk9O0GUj3Q
#TheMOGProject #BlindResources #MOGAD #MOG
For more resources for the blind and visually impaired, please visit our website:
https://t.co/lZcFTSmnRX
#BlindInsight #TheMOGProject #MOGAD #MOG #blind #visuallyimpaired
The MOG Project is in the news!
With the help of the amazing @kimballpr we have put out our first press release!
👇https://t.co/EsGnPNr3fv
More exposure = more awareness = more research = a path to a cure
#TheMOGProject #MOGAD #KimballPR #MOG #news
Here’s more exciting news from Australia. @JustJen_K a Primary teacher has raised $920 since April 1 for the #KidsNeuroscienceCentre, Syd & #TheMOGProject to spread awareness for #MOGAD & help us/little kids get the correct diagnosis/support. https://t.co/M9jdTX37zm #SoftHearts💚
@JustJen_K has started a campaign to bring awareness in Aus and raise funds to support both the #KidsNeuroscienceCentre in Sydney & #TheMOGproject. Us & our kids suffer so much from #MOGAD. An Aus international collab will be announced in the next week. https://t.co/3NRFzDBNvg
It is quite a MOGnificent Monday!
To celebrate our community we have a special feature from one of the members of our MOG Nation:
https://t.co/8bqIcBZryJ
Special thanks to Julie for sharing her story!
#MOGnificentMonday #MOGNation #TheMOGProject #MOGBlog #MOGAD #MOG
We salute these Tenacious Hummingbird Warriors for showing their stripes on #RareDiseaseDay! Some of the strongest are the smallest and our hummingbird mascot certainly represents that: resilient, strong, determined & courageous. 💚
#TheMOGProject #MOGAD #MOG #ShowYourStripes
Meet Francis, one of our MOG Nation Warriors. Through strength, determination and faith, he persevered through a long road to diagnosis.
Read his incredible MOG journey:
https://t.co/dreSTHn0FJ
#MOGnificentMonday #MOGNation #MOGBlog #MOGAD #MOG #TheMOGProject
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