Top Tweets for #type1s
Meet up on Saturday May the Fourth - be with us all you #Sheffield #Type1s! From 1pm @showroomcinema
Pens, pumps, pods - bring them on - all welcome π€
Please RT ππ½π
@cyclingweekly

#Type1s in #Sheffield - weβre gathering today - a little coven of coffee and insulin (tho we know the rules and break them safely)! @HelpSheffield @LazarusLife @diabetes_chat #gbdoc @Emmajourno @tampercoffee

Dip raid this is the third 2017 ! Should I be happy or sad ? #Silversqueeze #ChadRaid #BurnishedEagles #SilverDegenClub #DrainTheMint #Type1s

Completely looking forward to meeting up with @SheffieldType1s tomorrow.
Everyone with #Type1 is very welcome #type1diabetes
Also shout out to #Manchester #Type1s also meeting tomorrow!! #gbdoc #pwd #sheffield @SheffSocials
Whatβs on? @BBCSheffield
#Type1s + coffee = fabulousness all over!
10.30 this morning at Birdhouse, Sidney Street, S1. #gbdoc #Sheffield @GBDocInfo
@becmeas @katherinecowan
Anyone with an AWOL pancreas - meet up with people who get it!
#T1D #Type1Diabetes #Sheffield #GBDOC #mates #friendship #nopressure
If you've had it 5 days, 5 months, 50 or 69
years; you are more than #welcome
@JDRFUK @DiabetesUK @kuzmin_nikita

@dochawking @BLMK_CCG @medConfidential @phcsg In its usual half-assed fashion, @NHSX's "Information Governance Framework" for #SharedCareRecords omits to mention national opt-outs:
https://t.co/YHvbaP0d5G
And while #Type1s and #NDOO are for purposes beyond direct care, there *is* an national opt-out for #SCRs - which...
Correct. Type1 diabetics can, like anyone else, eat anything they want if they so wish. But there are consequences to "eating anything you want" and all #Type1s need to be made aware of these. Here are the questions @DiabetesUK should be asking :
Thread 1/

1/2 of newly diagnosed #type1diabetics are over the age of 18, but 38% of #type1s over 30 go misdiagnosed as type2!
I am a #type1 who was misdiagnosed as a #type2 at age 22, so my misdiagnosis, and many others are not even included in that 38%!
https://t.co/1jtCyRHajH
@gardenrichard @docneilb Indeed it would - and was, until 2018*. But @NHSDigital can and will only do what it has been lawfully Directed to do.
(We understand a #Direction is coming, not least because NHSD will need to see people's #Type1s to delete their historical data.)
__
*https://t.co/0l8tuh0V40

@sarah_white55 @PrivacyMatters @NHSDigital At present, @NHSDigital can only 'see' #NationalDataOptOuts; it stopped collecting counts of #Type1s some years back.
#NHSD / Gov't are promoting the NDOO as an opt-out 'for' #GPDPR, though it applies to all secondary uses of patients' data that NHSD holds (inc. hospital data).
Confirmation of the position for young people doing the #NationalDataOptOut π (Thanks, @NHSDigital)
Still seeking a definitive position on #Type1s, but it is unlikely to be any different; the basic principle in health being that of '#GillickCompetence':
https://t.co/SQAJAt9OwE

@alistaircannon @dochawking @NHSDigital @MattHancock @OpenSafely If it can be found a #lawful basis once the #COPI powers under which it operates have ended, if it respects #Type1s, and if it gets appropriate #governance, then @OpenSafely may indeed be one way *legitimate* #research can be done.
But, as you say, what's needed most is #trust.
@doctor_oxford Hi @doctor_oxford and @EinsteinsAttic I sent the form to my GP and received this in return https://t.co/HN0aYZxFJB but itβs not clear whether itβs the same thing. Grateful for any advice, thanks
Good shit brothers #Type1s
@GbdocTChost Very hard to answer and particularly as most of us are so well connected. It worries me #hcp donβt see the benefit of connecting us enough. Most good decisions Iβve made have come from other #Type1s #gbdoc
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![EinsteinsAttic's tweet photo. "@NHSDigital Programme Head for #GPData discusses the #benefits & #challenges of health data sharing and looks to the future for the #GPData for #Planning & #Research [#GPDPR] programme"
https://t.co/NYWffFxaD1
They've been working on #comms, #TRE-only and improving #Type1s... https://t.co/kcea4ydWsh](https://pbs.twimg.com/media/FUOvfg2WIAINxTv.jpg)








