Does anyone who reads this tweet know any practitioners who specialise or even work in the #NHS with patients with genetic #EhlersDanlosSyndrome#physiotherapist#rheumatologist in the north of England, desperate for help please.
๐ฃHELP Iโm desperate. Lost my B7 ICU job of 23 yr due to ill health this month. With life altering symptoms of #MECFS. Likely #POTS ?#MCAS ?#EDS can my NHS colleagues share this or suggest any team up north that I could be referred to rather than stagnating at home Iโm desperate.
@babsmccready23@Katie_H_Carey@NCICNHS Thank you. Are you able to refer on to investigate for diagnosis or is it mostly management of symptoms as Iโve done the full PPSS 10 week living well programme. But itโs proper assessment and diagnosis that i think I need first.
@babsmccready23@Katie_H_Carey@NCICNHS 2/2 Thankyou for taking time to help I really really appreciate it. Due to covid everything has taken longer to deal with and unfortunately now I donโt have my job!!
@babsmccready23@Katie_H_Carey I worked at @NCICNHS at west I think I was actually referred to you by Dr Hewson a few years ago for breathing but saw Hillary at west instead for convenience. I have a referral for Newcastle POTS clinic but nothing yet for the other two things. 1/2
@_alicebeer do you know if there is trouble in @JDSports made order for ยฃ45 worth of gift cards on 24th Nov and cant get in touch with them to either cancel my order or make an enquiry. Terrible customer service #JDsports
@happymandylou @holland_barrett So frustrating, whilst being patient due to COVID the communication is really poor! Yet they still advertise their penny sale on TV!!
@holland_barrett Iโve been waiting for my order since 5th June. You have taken payment. Iโm not the only one. Please tell me when I can expect it to be dispatched. Terrible customer care. #hollandandbarrett.
@JoSonneteer @holland_barrett Try DM ing them see if you get anywhere. I eventually got a response after 4 hours calling to find out the order had been โlostโ by the courier even though my tracking said not left warehouse and it was now out of stock so unavailable. #poorcommunication
#SALT assessment in tracheostomied patients. Whatโs your recommend ITU protocol for oral intake? NBM or soft diet and free fluids?? #speechtherapy#criticalcare#nutrition
@HaydenRhona @ITUHDU_Southend @CCOT_Southend@HOOH_Southend @SafeAtSouthend We need to normalise discussing DNAR and TEP on admission. Yes itโs a clinical decision, but itโs also a chance for us as clinicians to hear about what is important to the patient and their families. This helps us provide better care regardless of the escalation plan.