HBA Support

We've decided to no longer post on X. You can find us on FB, Insta or LI – please join us there to stay up to date with brain aneurysm support, news & research

[HBA Support @hba_support]

We've decided to no longer post on X. You can find us on https://t.co/4ajxT0HknW, https://t.co/mRFwI5IM8b or https://t.co/EtoxHUdL8M – please join us there to stay up to date with brain aneurysm support, news & research.

[HBA Support @hba_support]

@RareRevolutionM Thank you for sharing! We're here for anyone affected by brain aneurysms and families with increased risk so please visit us at https://t.co/9QH7bnQgUL if you would like more information

[HBA Support @hba_support]

@RareRevolutionM Thanks for sharing!

[HBA Support @hba_support]

Our new "Brain Aneurysms & Beyond" Podcast is out NOW!
Join a neuroscience nurse and brain haemorrhage prevention charity in Ep1 as we ask “How do you live well with a brain aneurysm?” with practical tips on navigating everyday life with an aneurysm.

https://t.co/Hy64LGoCKc

[Brain & Spine Foundation @brainspine]

Join representatives from @hba_support and Brain & Spine Foundation on the 25th of September for an online session for people living with unruptured brain aneurysms.
The session will be live and not recorded, and completely free to attend.

Register here: https://t.co/E8p1RjkTrO

[HBA Support @hba_support]

#BrainAneurysmAwarenessMonth is all about changing the silent story of brain aneurysms, replacing fear with facts and worry with support. We're here to support people affected by brain aneurysms and families with increased risk. Please visit https://t.co/hMz2svKGpx for more info

[HBA Support @hba_support]

We are delighted to be a patient partner for this pivotal and ground-breaking study. As a charity representing patients impacted by brain aneurysms and their families, who possibly have hereditary risk, this research is critical for better, more personalised patient care.

[NeuroNews @NN_publishing]

A landmark research initiative attempting to lay the foundation for the UK’s first genetic screening programme for brain aneurysms is set to get underway soon
@hba_support @RebeccaMiddle16 @unisouthampton @UHSFT
https://t.co/4c5GDoeo8d

[NeuroNews @NN_publishing]

A landmark research initiative attempting to lay the foundation for the UK’s first genetic screening programme for brain aneurysms is set to get underway soon
@hba_support @RebeccaMiddle16 @unisouthampton @UHSFT
https://t.co/4c5GDoeo8d

[HBA Support @hba_support]

@NN_publishing @RebeccaMiddle16 @unisouthampton @UHSFT We are delighted to be a patient partner for this pivotal and ground-breaking study. As a charity representing patients impacted by brain aneurysms and their families, who possibly have hereditary risk, this research is critical for better, more personalised patient care.

[The Neurological Alliance @NeuroAlliance]

We need action from government, not just words. In My Neuro Survey, people most reported being unable to access specialist mental health support despite needing this.

Sign our open letter to now. https://t.co/pkP6XjAFca Thank you.

[HBA Support @hba_support]

Calling all neurovascular or medical professionals supporting people with brain aneurysms with possible hereditary links - please fill our survey to help us create a guide to help newly diagnosed patients https://t.co/gSOhdeQX04

[HBA Support @hba_support]

@RareBeacon thank you for sharing our report and for your support 🥰

[HBA Support @hba_support]

Great to see our founder's podcast episode being shared - have a listen if you want to hear how Hereditary Brain Aneurysm Support began.

[North East & Yorkshire Genomics @NEYGenomics]

Tune into The Road to Genome MON 24 MARCH to hear Rebecca Middleton (@RebeccaMiddle16) share her experience as a patient & creation of the organisation Hereditary Brain Aneurysm Support (@hba_support)

Listen here https://t.co/3LRVG2jDeA or wherever you get your podcasts

[HBA Support @hba_support]

@NEYGenomics @RebeccaMiddle16 Thanks so much for highlighting this🥰

[HBA Support @hba_support]

Thanks to @clemencybh for sharing her story on @BBCNews & @BBCTwo to raise awareness of brain injury and recovery. Our brain aneurysm rupture survivors understand the shock of a sudden rupture, huge recovery challenges and the devastating impact brain injury has.
#aftertherupture

[HBA Support @hba_support]

Last chance to take part in research to help us learn more about the experiences of families with hereditary brain aneurysms. If you or your partner is at-risk of hereditary brain aneurysms we need to hear from you before Jan 31st! Find out more here https://t.co/OmJXkFOcwV

[HBA Support @hba_support]

FREE Guide - Understanding Familial Brain Aneurysms
Most brain aneurysms occur sporadically, meaning randomly with no pattern, and are not hereditary. However, sometimes patterns can occur in families.
Find out more in our free downloadable guide here: https://t.co/BDajnT0gst

[HBA Support @hba_support]

We're posting less on X so to stay updated you can follow us on https://t.co/lAWhx9z6wU or https://t.co/0p11Gfr8qS

[HBA Support @hba_support]

Have you or your family been impacted by a brain aneurysm?
We're running research projects that need to hear about your patient experience to help improve care and support. A friendly chat is all we need.
Find out more here: https://t.co/2GsNUkWSBs
#brainaneurysms

[The Neurological Alliance @NeuroAlliance]

We have responded to Lord Darzi’s Independent Investigation of the NHS in England. Read the
full statement from our Chief Executive @GCarr_Neuro on our website https://t.co/FkqwFndWcf #NHS #BackThe1in6