Thank you @PandasPans for asking me to be a Trustee!
I only hope I can contribute to the charity as a Trustee in a meaningful way. Raising awareness of #PANS#PANDAS in the UK is so desperately needed to help all the families trying to manage these conditions.
@NurseDiane2020
👉 Have you heard of PANS/PANDAS?
SEND Digest has previously published an article for educators about supporting children who have #PansPandas. Now, with the help of @PandasPans, we have our PARENTS version.
@TwinklParents #TwinklDigest
https://t.co/D9CMGsGOyI
Have you heard of PANS?
Children with PANS/PANDAS are sometimes misdiagnosed as having Tourette’s Syndrome, ADHD, Anorexia Nervosa, ARFID, Generalised Anxiety Disorder, OCD and ASC amongst other conditions.
Find out more in today's #TwinklDigest
https://t.co/GmoeLUIVBO
2/2. The @PandasPans charity have published a response to the BPNA consensus statement, outlining the errors in the statement & demonstrating that the statement is fundamentally flawed and exhibits astounding bias.
@BPNA_org @BPNATrainees#PANS#PANDAS
https://t.co/qFB4fcHy2q
@OxMEDiscovery @PandasPans What an exciting study! If you are in need of participants my eldest daughter (8yr old) has diagnosis of PANS, however youngest (6yr old) does not. Although,I’m sure you’ll find an abundance of willing participants wanting to contribute in more research in this area 🤞🏼good luck!
@DrAmirKhanGP This would be an amazing topic to cover on This Morning - bringing PP to the forefront of some schools, doctors and other medical professionals who are in denial of this horrible condition!
As the chair of the Scientific Advisory Board for @PANDASnetwork we have outlined a new ROADMAP for PANDAS/PANS basic and clinical research, treatment and education. You can find it here! Educate yourself! #PansPandasAwarenessDay
https://t.co/ZgPuYjM2QZ
#medtwitter PLEASE educate yourselves on #PANS#PANDAS. If your own kids suffered the way #PANS kids do, you would not be happy just self referring to CAMHS. You would be desperately trying to alleviate the suffering by treating the underlying neuroinflammation #PansPandasHour
I’ve all but given up trying 2 explain!Even those who listen, who truly want 2 help could never comprehend the suffering that is #Pans#Pandas Unless you’re living this hell it’s impossible 2 understand.Easier 2 say we’re fine! Thankful 4 @PandasPans support group #PansPandasHour