iSMART

iSMART was a project for young people with juvenile idiopathic arthritis #JIA and their families, led by Dr @SimonRStones. The project ended in 2021.

[iSMART @iSMARTResearch]

Simon has submitted his #PhD thesis on the @iSMARTResearch study! This account has been a little quiet over the last year, but now that his thesis is out of the way, Simon can work on sharing all of the results with you - watch this space! #JIA #selfmanagement #sharedmanagement

[Dr Simon Stones @SimonRStones]

My #PhD thesis has been submitted! What a rollercoaster it has been since October 2016. Thank you to everyone who has supported and encouraged me along the way - especially my incredible supervisors, @LindaMilnes_UOL and @SwallowVeronica! #phdlife #phdchat #IFNC15 #IFNASEG

[iSMART @iSMARTResearch]

🙋‍♂️Do you have experience of #JIA as a:
✏️ Parent, carer or grandparent
✏️ Sibling (aged 16+)
✏️ Teacher or teaching assistant
✏️ Allied health professional #AHP
✏️ Charity representative/volunteer

If so, send us a Direct Message to discuss! 📨
#WORDDay2020 #Arthritis #Research

[iSMART @iSMARTResearch]

You may have noticed that this project page has been quiet for several months, while @SimonRStones was away from his studies - but he's back, and iSMART is back on track!

Find out more: https://t.co/V3BzR6UXc8

#JIA #WORDDay2020 #Research #BePartofResearch

[iSMART @iSMARTResearch]

Simon is back working on iSMART https://t.co/V3BzR6UXc8

[Dr Simon Stones @SimonRStones]

I attended an event at the House of Lords in London this afternoon, after being included in the Disability Power List 100 2019 – an annual publication of the 100 most influential people with disabilities in the United Kingdom. Shocked, thrilled, and deeply humbled!

[Emily Earle @EmilyEarle5]

I’m speaking at #BSPAR2019 next week about the impact of #jia on siblings in the family - it’s proven a valuable topic and there is lots to say. So important that the patient voice is heard and in the case of children/young people, the voice of parents and families too.

[iSMART @iSMARTResearch]

👩‍🏫👨‍🏫 Are you a teacher or member of school support staff with experience of juvenile idiopathic arthritis #JIA and/or other long-term health conditions in children? If so, please get in touch by direct message or email to @SimonRStones: [email protected] #BePartOfResearch

[Dr Simon Stones @SimonRStones]

Say YES and help @CAPA_Arthritis and @iCANIreland to understand more about how young people take (or have taken) methotrexate #MTX. Responses will be used to create tips and tricks to share with other families. Complete the survey here:
https://t.co/zfjag4GJpl #JIA #Rheumatology

[Dr Simon Stones @SimonRStones]

Posters at #BSR19 on paediatric and adolescent rheumatology! @MFTnhs @GreatNorthCH @AlderHey @AHFTResearch @EATC4Children @UoLchildnursing @LeedsHealthcare @iSMARTResearch

[iSMART @iSMARTResearch]

Our poster is up! Visit 177 in the Hall 3 landing to learn about #iSMART! #BSR19

[Dr Simon Stones @SimonRStones]

Please come and chat to me today during lunch at Poster 177 - find out about my PhD approach with @iSMARTResearch - looking at self-management of JIA by young people, and shared-management of JIA by families, health professionals, teachers and JIA charities! #BSR19

[Dr Simon Stones @SimonRStones]

As we come together for #BSR19, let us remember the reason why we are here - and why patients and families must be driving forward innovation within #rheumatology in partnership with our talented healthcare professionals. 'Dear JIA' by @neevcost_!

https://t.co/POuxgIa0IJ

[iSMART @iSMARTResearch]

Look out for @iSMARTResearch’s @SimonRStones at #BSR19! He will be presenting a poster on Wednesday about iSMART - be sure to say hello, and learn about the work he has been doing on self-management of #JIA! #WhyWeDoResearch

[Dr Simon Stones @SimonRStones]

I'm really looking forward to attending #BSR19 this week. I'll be speaking about all things social media, chairing a fabulous session on #PPI, presenting a poster on my PhD project @iSMARTResearch and managing our @fmauk stall. Please say hello if you bump into me!

[Dr Simon Stones @SimonRStones]

📱11 to 18 years old? Have you used #tech to help manage your health condition? Join us at an exciting workshop this SATURDAY 27TH APRIL 2019 11am-2pm at @UniOfYork. Travel will be paid for, and everyone receives a thank you voucher. Contact @JMartinKerry if you can join!

[iSMART @iSMARTResearch]

#ThrowbackThursday to #BeCurious2018, where @iSMARTResearch and @raiiseuk hosted a busy stall all about invisible illnesses in children and young people! https://t.co/xbLs0nO7xG

[iSMART @iSMARTResearch]

Be Curious 2018 https://t.co/xbLs0nO7xG

[iSMART @iSMARTResearch]

🙋‍♀️🙋‍♂️ Would you like to take part in @iSMARTResearch? We are specifically looking for siblings of young people with juvenile idiopathic arthritis #JIA, healthcare professionals, teachers and JIA-related patient organisation in the UK Find out more: https://t.co/dGSMsawnxu

[iSMART @iSMARTResearch]

A1: Also remembering that rheumatic diseases affect the young person, and their family and friends. We’re generally not very good at looking at the bigger picture - young people with rheumatic diseases have lives beyond the Clinic! #WORDDay2019

[Dr Simon Stones @SimonRStones]

Right, let's get started! Q1: What are some of the key challenges for children and young people with rheumatic diseases? Respond/quote retweet with 'A1' - and include the hashtag #WORDDay2019! @JordanCanning_

[iSMART @iSMARTResearch]

Take part in the #WORDDay2019 Twitter Chat, hosted by @iSMARTResearch’s very own @SimonRStones! #arthritis #jia #itsnotjustjia #kidsgetarthritistoo #rheumatology @LeedsHealthcare

[Dr Simon Stones @SimonRStones]

🎉Celebrate the first ever WOrld young Rheumatic Disease Day on 🗓️Monday 18th March by taking part in our 📱Twitter chat, which I am hosting. It's all about rheumatic diseases in children and young people. ⏰6-7 pm UK time. Use #WORDDay2019 to take part! 💃🕺

[World Young Rheumatic Diseases day (WORD day) @WORDDay_org]

This video is about James' campaign to raise awareness of juvenile arthritis. He not only shares how important early diagnosis is, but breaks every stereotype you may have about children with rheumatic diseases. You rock James! https://t.co/OeHvIGBMoc