in16yearsofendo

Endo advocate (she/her) sharing endo education. I'm very active on IG.
Check out our podcast on endo!

[in16yearsofendo @in16yearsofendo]

Have you heard our podcast on living with #endometriosis? We explore about all things endo, including treatment options, diet & lifestyle, and mindset. Come join us for well researched info told with a sense of humor! We're on all podcast apps -> In Sixteen Years of Endometriosis

[in16yearsofendo @in16yearsofendo]

@poderosautera Seeking a diagnosis 💜

[in16yearsofendo @in16yearsofendo]

I can’t believe I already have 120 episodes on my endo podcast!🤯
Interviews with excision surgeons, subject experts, and endo advocates worldwide! 🎧 If you're a fan, thanks for listening!

https://t.co/SOUSVprzEt

[in16yearsofendo @in16yearsofendo]

@poderosautera Gracias por participar Maca! Nuestra charla fue increíble😚

[in16yearsofendo @in16yearsofendo]

@isabelgreenMD Dr Green, I heard your pain post excision talk on BackTable obgyn👏 and read your published article and I'd love to interview you on my endo podcast too because patients are really lost in terms of pain post excision. I can't DM you though- would you DM me? Thank you🧡

[in16yearsofendo @in16yearsofendo]

@tmg_hou @maggiebow98 @pretty_InPain @GreysABC @shondaland @shondarhimes I wrote about the reasons why it's important to get the definition right. GA cares about social issues as shown through the topics they cover on this show, and I hope they can address their error which impacts real people https://t.co/FBSTFASZED

[in16yearsofendo @in16yearsofendo]

@GreysABC @shondaland @shondarhimes
THANK YOU for featuring endometriosis on S18 E10. But it was filled with inaccuracies that directly impact us as patients, the delay in diagnosis, and the treatments we receive. Please issue a correction of misinfo on major news outlets.

[in16yearsofendo @in16yearsofendo]

@tmg_hou @maggiebow98 @pretty_InPain @GreysABC @shondaland @shondarhimes This isn't about getting medical advice from Grey's. This is about how the incorrect definition of endo has an actual detriment on the treatment endo patients receive. There is a long history of the incorrect definition causing millions of people true harm.

[Kaitlyn @KaitlynSpills]

@GreysABC It’s so much more. Please understand as a respected public platform, you have the ability to address the correct information. This will be helping not only those with endometriosis, but people who know someone with endometriosis.

[in16yearsofendo @in16yearsofendo]

@EndoUncovered @ABC @jamiedenbo @GreysABC @shondaland @shondarhimes I've taken my instagram post and turned it into an article that can be read here: https://t.co/FBSTFASZED

[in16yearsofendo @in16yearsofendo]

@EndoUncovered @ABC @jamiedenbo @GreysABC @shondaland @shondarhimes
I and others have sent you an IG post w/ detail to your inaccuracies and WHY it matters, including credible sources. You address social issues on GA so I know that’s important to you. Please have the integrity to address the false endo info given on s18

[in16yearsofendo @in16yearsofendo]

I've taken my instagram post and turned it into an article that can be read here: https://t.co/FBSTFASZED

[in16yearsofendo @in16yearsofendo]

@GreysABC @shondaland @shondarhimes
I and others have sent you an IG post w/ detail to your inaccuracies and WHY it matters, including credible sources. You address social issues on GA so I know that’s important to you. Please address the false information given on s18e10 on endo

[in16yearsofendo @in16yearsofendo]

@horne_research @bmj_latest @exppect @MRC_CRH @EndometriosisUK @Endometriosis @mathewleonardi "Treatments for a disease target the cause whilst the management of a syndrome generally targets symptoms" --> Most commonly used treatments now are inadequate & only for symptoms -BC, Lupron, Orilissa. We don't need more symptom management! We need ways to REMOVE the disease!

[in16yearsofendo @in16yearsofendo]

@JourneysSister I'm so glad you are feeling better!

[in16yearsofendo @in16yearsofendo]

Have you heard our podcast on living with #endometriosis? We explore about all things endo, including treatment options, diet & lifestyle, and mindset. Come join us for well researched info told with a sense of humor! We're on all podcast apps -> In Sixteen Years of Endometriosis

[in16yearsofendo @in16yearsofendo]

@endo_ireland Thank you for sharing this! (She says a year later lol! I haven't been too active on Twitter!)