🗓️ Ne manquez pas le webinaire du Réseau MTN Francophone :
Le Noma, "nouvelle" maladie tropicale négligée
📅 Mardi 23 septembre 2025
⏰ 13h00 - 14h00 CEST
👉 Inscription via QR code sur le visuel
#SantéGlobale#MTN#Noma
Mulikat Okanlawon from Nigeria survived #noma—a devastating disease that destroys facial tissue and bone, killing up to 90% of those untreated. Even though she didn’t receive timely care, Mulikat survived and rebuilt her life after surgery.
At #RC75 today, I presented the Regional Framework for Accelerating the Global Oral Health Action Plan to Member States.
With @WHO and #partners, we’re training health workers to detect and treat noma and other oral health conditions that affect 42% of our region’s population.
This framework offers a bold path forward: transforming oral health, implementing global goals, and strengthening systems to ensure no one suffers in silence.
The time for action is now!
https://t.co/xkOWrqy9wV
Photo credit:Fabrice Caterini / Inediz
Collaboration and determination are the only ways to create sustainable solutions for global health. Listen more. Build trust. 'Think deeply about what you can do to make a difference for others.'
(Mulikat Okanlawon, @Elysium_NSA 2025)
Mulikat Okanlawon co-founder @Elysium_NSA shared her ask: use this visit as opportunity to think deeply and do things differently to support all people affected by NTDs, who have dreams too. #noma#uniteacteliminate
Looking forward to presenting our documentary in Barcelona next week with Mulikat Okanlawon @Elysium_NSA! Thanks to @ISGLOBALorg and #NitRecerCat for hosting this event.
🌙 #NitRecerCat | T'esperem a la Nit de la Recerca 2024 per veure el documental "Restoring Dignity" i unir-te al debat posterior.
🎬 Un esdeveniment per reflexionar i aprendre sobre la realitat dels supervivents de la malaltia de noma.
@ACCC_@Inediz@Elysium_NSA
https://t.co/YRdUS0xO5V
📢 Join us on 20 September for our symposium on #Noma, a devastating disease mainly affecting children in extreme poverty. Recently recognized as a #NTD by @WHO, we aim to unite experts & stakeholders to set a common research agenda.
🔗Register here: https://t.co/TgAnsfIdjC
@TIME's list of the 100 Most Influential People in global health is out today. Mulikat Okanlawon and Fidel Strub are honored to be a part of this group: https://t.co/w45trLcK8s
Photo by @Inediz
📢What is #noma & what next now that it is officially classed as a Neglected Tropical Disease? Please join @WHO, @Elysium_NSA, Dr Gebretsadik (@euclidint), Ms Elsig (Sentinelles), @Inediz & @ISNTD_Press!
👉https://t.co/QeCyzZWlpQ
👉Apr 18 | 13:00 UTC #NeglectedNoMore
📢Save the date: in Dec 2023, news went round the world that #noma was officially recognised as a Neglected Tropical Disease! Join us and learn: what is noma and what next to tackle this devastating disease?
👉Spotlight on Noma
👉Apr 18 | 13:00-14:30 UTC
https://t.co/QeCyzZWlpQ
In late 2023, the @WHO officially added #noma to the list of neglected tropical diseases. The @SwissTPH and @UniBasel_en both played a key role in this. That decision could open new doors for funding research programs to understand the disease better.
https://t.co/WcBQk8NB16
On #WorldNTDDay we are launching our blog ‘The Politics of Disease Framing’. Read the first post from colleagues @CAHRyork, @UoYLaw, @Inediz, and @UCOMILLAS 👇
https://t.co/eKZQEs4fi0
What a journey! We met Sakina and her mum 7 years ago in Nigeria and Hauwa insisted that we should share the story of her daughter with the world so no child has to endure the dramatic consequences of #noma. Today, we are one step closer to achieving #ZeroNoma
.@WHO officially recognizes #noma as a neglected tropical disease.
Noma is more than a disease, it is a social marker of extreme poverty and malnutrition, affecting the most vulnerable populations: https://t.co/XrwgpglOZA
Following the landmark decision by @WHO to officially recognize #noma as a neglected tropical disease, we share the words of Mulikat Okanlawon and @FidelStrub co-founders of @Elysium the first noma survivors' association, of which we are proud allies #ZeroNoma#beatNTDs
Kamran Rafiq @ISNTD_Press was an incredibly dedicated and passionate advocate for NTDs, we will miss him dearly. His dedication to #beatNTDs will continue to shape the landscape of NTD research and advocacy.
Honoured to be part of this special tribute. https://t.co/n3cxOgT5YR
Súper feliz de haber reunido a 50 personas para hablar del #noma.
Gracias a todos los que vinisteis, gracias a @AteneudelRaval por dejarnos el espacio, a Fran Bartolomé de @MSF_Espana por explicarnos el inmenso trabajo de MSF y a @Inediz por cedernos el documental.
📷 @VNatxer
‘We speak for the 90% of the victims who did not make it… We need to invest in social security, healthcare, education.’
@FidelStrub, #noma survivor, speaks about this devastating, disfiguring, and very neglected disease that mostly affects children. #ZeroNoma#WHA76